I've had ME/CFS/SEID for 4 years and in that time have seen 16 medical specialists and taken over 20 different medications - all to no avail. It's time that Ampligen is approved now.
J
Jody Keeler
11 years ago
I've had ME/CFS/SEID for 4 years and in that time have seen 16 medical specialists and taken over 20 different medications - all to no avail. It's time that Ampligen is approved now.
M
Maddy G
11 years ago
We urge the FDA to Approve Ampligen now.
M
Maddy G
11 years ago
We urge the FDA to Approve Ampligen now.
M
Mary Drager
11 years ago
Ampligen effectively treats a number of depressed immune system diseases and holds promise for others. It is a human medicine that got 100% Ebola cure rate in a new US Army rodent study (2015). Approving Ampligen for CFS clears the way to prescribe it for Ebola!
M
Mary Drager
11 years ago
Ampligen effectively treats a number of depressed immune system diseases and holds promise for others. It is a human medicine that got 100% Ebola cure rate in a new US Army rodent study (2015). Approving Ampligen for CFS clears the way to prescribe it for Ebola!
A
Anonymous
11 years ago
To FDA: do you suffer(and I mean suffer) from CFS? If not, I wish that you could spend just 1week living with what we live with -probably for the rest of our lives. You would be first in line to sign in approval for ampligen---a drug proven to help many. What is your problem?
A
Anita Blice
11 years ago
To FDA: do you suffer(and I mean suffer) from CFS? If not, I wish that you could spend just 1week living with what we live with -probably for the rest of our lives. You would be first in line to sign in approval for ampligen---a drug proven to help many. What is your problem?
M
Margaret G Taylor
11 years ago
My son has been disabled since age 12, for the last 16 years, with CFS/FM. He has been seen by the best doctors, and has the best insurance. He remains completely disabled. I have also been diagnosed, have symptoms, but am able to work part-time with a flexible schedule.
Even if Ampligen works for only a subset of patients, at least it helps a huge group of people to get better. That would give EVERYONE hope for the future for ALL CFS/FM patients.
There are no treatments that work for CFS/FM. Allow access to Ampligen for those who want it, and/or have experienced that it does work. By not approving Ampligen, the FDA is denying the opportunity for some patients to improve and return to being productive members of society. This is not beneficial for anyone.
M
Margaret G Taylor
11 years ago
My son has been disabled since age 12, for the last 16 years, with CFS/FM. He has been seen by the best doctors, and has the best insurance. He remains completely disabled. I have also been diagnosed, have symptoms, but am able to work part-time with a flexible schedule.
Even if Ampligen works for only a subset of patients, at least it helps a huge group of people to get better. That would give EVERYONE hope for the future for ALL CFS/FM patients.
There are no treatments that work for CFS/FM. Allow access to Ampligen for those who want it, and/or have experienced that it does work. By not approving Ampligen, the FDA is denying the opportunity for some patients to improve and return to being productive members of society. This is not beneficial for anyone.
R
Ruchika Gupta
11 years ago
ME/CFS is a serious disease, yet I remained undiagnosed for 20 years because doctors are unaware &/or dismissive of it. Meanwhile, I became progressively more ill, can no longer hold a regular job, and am bed bound. This is after I used to routinely put in 70+ hours per week as a molecular biologist doing scientific research. People with ME/CFS are NOT lazy. We WANT to work. We want to be able to take care of ourselves. We do NOT want to be dependent or permanently disabled. We need the FDA to approve Ampligen for ME/CFS patients. Access to Ampligen will enable some, even if not all, ME/CFS patients to get better. Just as importantly, FDA approval for a treatment for ME/CFS will make it more difficult for medical professionals to dismiss and ignore those who have to endure this illness, and start treating us seriously.
R
Ruchika Gupta
11 years ago
ME/CFS is a serious disease, yet I remained undiagnosed for 20 years because doctors are unaware &/or dismissive of it. Meanwhile, I became progressively more ill, can no longer hold a regular job, and am bed bound. This is after I used to routinely put in 70+ hours per week as a molecular biologist doing scientific research. People with ME/CFS are NOT lazy. We WANT to work. We want to be able to take care of ourselves. We do NOT want to be dependent or permanently disabled. We need the FDA to approve Ampligen for ME/CFS patients. Access to Ampligen will enable some, even if not all, ME/CFS patients to get better. Just as importantly, FDA approval for a treatment for ME/CFS will make it more difficult for medical professionals to dismiss and ignore those who have to endure this illness, and start treating us seriously.
A
Albert Chang
11 years ago
We are not asking for social security, or disability. We are asking for a treatment/drug that has shown to significantly help us -- people with conditions that is said to be preferred over having HIV from a variety of scientists/doctors from accredited institutions (Stanford, Harvard, etc.).
A
Albert Chang
11 years ago
We are not asking for social security, or disability. We are asking for a treatment/drug that has shown to significantly help us -- people with conditions that is said to be preferred over having HIV from a variety of scientists/doctors from accredited institutions (Stanford, Harvard, etc.).
B
Barbara Bloom
11 years ago
Featured
My son became ill at 16 after a viral infection that never went away.
He has been sick for 10 years and he has not benefited from any treatment.
Please don't deny him the possibility of benefiting from Ampligen.
K
Kerstin Händel
11 years ago
Ich unterstütze das Anliegen !!! Lasst die Patienten selbst entscheiden, mit ME CFS kann man nur VERSUCHEN!!!!!
Es ist eh kein Leben ansich - und schwerste ME Fälle , was bleibt uns denn übrig!?
F
Fran Ruddell
12 years ago
I was diagnosed with ME/ CFS and fibromyalgia 19 years ago. When I wake up in the morning, I don't know how my day will go. I'm tired of being tired, in pain, nauseated, having memory loss, and there are numerous other problems this disease has caused me. Ampligen MUST be approved. I want my life back. Please help people with ME/ CFS. Thank you.
A
Anonymous
12 years ago
It doesn't add up! The Food and Drug Administration Is supposed to 'Protect and Promote Our Health.' Maybe we can just campaign or sell OUR souls for donations and put the FDA in OUR pockets too! I am now the little man reduced to ranting. Check out this H. Post article... http://m.huffpost.com/us/entry/3904329/
PLEASE MAKE AMPLIGEN AVAILABLE NOW!!!!!!!!!
PLEASE MAKE AMPLIGEN AVAILABLE NOW!!!!!!!!!
I've had ME/CFS/SEID for 4 years and in that time have seen 16 medical specialists and taken over 20 different medications - all to no avail. It's time that Ampligen is approved now.
I've had ME/CFS/SEID for 4 years and in that time have seen 16 medical specialists and taken over 20 different medications - all to no avail. It's time that Ampligen is approved now.
We urge the FDA to Approve Ampligen now.
We urge the FDA to Approve Ampligen now.
Ampligen effectively treats a number of depressed immune system diseases and holds promise for others. It is a human medicine that got 100% Ebola cure rate in a new US Army rodent study (2015). Approving Ampligen for CFS clears the way to prescribe it for Ebola!
Ampligen effectively treats a number of depressed immune system diseases and holds promise for others. It is a human medicine that got 100% Ebola cure rate in a new US Army rodent study (2015). Approving Ampligen for CFS clears the way to prescribe it for Ebola!
To FDA: do you suffer(and I mean suffer) from CFS? If not, I wish that you could spend just 1week living with what we live with -probably for the rest of our lives. You would be first in line to sign in approval for ampligen---a drug proven to help many. What is your problem?
To FDA: do you suffer(and I mean suffer) from CFS? If not, I wish that you could spend just 1week living with what we live with -probably for the rest of our lives. You would be first in line to sign in approval for ampligen---a drug proven to help many. What is your problem?
My son has been disabled since age 12, for the last 16 years, with CFS/FM. He has been seen by the best doctors, and has the best insurance. He remains completely disabled. I have also been diagnosed, have symptoms, but am able to work part-time with a flexible schedule. Even if Ampligen works for only a subset of patients, at least it helps a huge group of people to get better. That would give EVERYONE hope for the future for ALL CFS/FM patients. There are no treatments that work for CFS/FM. Allow access to Ampligen for those who want it, and/or have experienced that it does work. By not approving Ampligen, the FDA is denying the opportunity for some patients to improve and return to being productive members of society. This is not beneficial for anyone.
My son has been disabled since age 12, for the last 16 years, with CFS/FM. He has been seen by the best doctors, and has the best insurance. He remains completely disabled. I have also been diagnosed, have symptoms, but am able to work part-time with a flexible schedule. Even if Ampligen works for only a subset of patients, at least it helps a huge group of people to get better. That would give EVERYONE hope for the future for ALL CFS/FM patients. There are no treatments that work for CFS/FM. Allow access to Ampligen for those who want it, and/or have experienced that it does work. By not approving Ampligen, the FDA is denying the opportunity for some patients to improve and return to being productive members of society. This is not beneficial for anyone.
ME/CFS is a serious disease, yet I remained undiagnosed for 20 years because doctors are unaware &/or dismissive of it. Meanwhile, I became progressively more ill, can no longer hold a regular job, and am bed bound. This is after I used to routinely put in 70+ hours per week as a molecular biologist doing scientific research. People with ME/CFS are NOT lazy. We WANT to work. We want to be able to take care of ourselves. We do NOT want to be dependent or permanently disabled. We need the FDA to approve Ampligen for ME/CFS patients. Access to Ampligen will enable some, even if not all, ME/CFS patients to get better. Just as importantly, FDA approval for a treatment for ME/CFS will make it more difficult for medical professionals to dismiss and ignore those who have to endure this illness, and start treating us seriously.
ME/CFS is a serious disease, yet I remained undiagnosed for 20 years because doctors are unaware &/or dismissive of it. Meanwhile, I became progressively more ill, can no longer hold a regular job, and am bed bound. This is after I used to routinely put in 70+ hours per week as a molecular biologist doing scientific research. People with ME/CFS are NOT lazy. We WANT to work. We want to be able to take care of ourselves. We do NOT want to be dependent or permanently disabled. We need the FDA to approve Ampligen for ME/CFS patients. Access to Ampligen will enable some, even if not all, ME/CFS patients to get better. Just as importantly, FDA approval for a treatment for ME/CFS will make it more difficult for medical professionals to dismiss and ignore those who have to endure this illness, and start treating us seriously.
We are not asking for social security, or disability. We are asking for a treatment/drug that has shown to significantly help us -- people with conditions that is said to be preferred over having HIV from a variety of scientists/doctors from accredited institutions (Stanford, Harvard, etc.).
We are not asking for social security, or disability. We are asking for a treatment/drug that has shown to significantly help us -- people with conditions that is said to be preferred over having HIV from a variety of scientists/doctors from accredited institutions (Stanford, Harvard, etc.).
My son became ill at 16 after a viral infection that never went away. He has been sick for 10 years and he has not benefited from any treatment. Please don't deny him the possibility of benefiting from Ampligen.
Ich unterstütze das Anliegen !!! Lasst die Patienten selbst entscheiden, mit ME CFS kann man nur VERSUCHEN!!!!! Es ist eh kein Leben ansich - und schwerste ME Fälle , was bleibt uns denn übrig!?
I was diagnosed with ME/ CFS and fibromyalgia 19 years ago. When I wake up in the morning, I don't know how my day will go. I'm tired of being tired, in pain, nauseated, having memory loss, and there are numerous other problems this disease has caused me. Ampligen MUST be approved. I want my life back. Please help people with ME/ CFS. Thank you.
It doesn't add up! The Food and Drug Administration Is supposed to 'Protect and Promote Our Health.' Maybe we can just campaign or sell OUR souls for donations and put the FDA in OUR pockets too! I am now the little man reduced to ranting. Check out this H. Post article... http://m.huffpost.com/us/entry/3904329/