Please approve Ampligen. I want my life back. And so does the 20 millions worldwide that are suffering from ME
this is not living. Our lives have hit the pause button.
J
Joseph Girsch
1 year ago
Featured
I've had Chronic Fatigue Syndrome for a year now, preventing me from working full time hours and living a full life. Please accelerate the process for this drug. There is no alternative on the market for people like me.
E
Elizabeth Kempton
2 years ago
I have ME/CFS and need a treatment
R
Robbi Santore
2 years ago
Why are there long-term delays to help CFS sufferers? DECADES! LONG OVERDUE for APPROVAL & excuses must STOP!
N
Nancy Gibbs
2 years ago
Why is the FDA hesitant to give approval? I’ve had cfs for 15 years. Very low NK cells. Willing to give it a chance.
N
Natasha Eklove
2 years ago
Please
M
Maria Johnson
3 years ago
Featured
I have had CFS for decades. One of my children has it as well. Been in and out of doctor's offices in desperation for years until finally diagnosed at the Mayo. Please give us the opportunity to live productive lives.
A
Anne Hoff
3 years ago
Please approve ampligan. I have had CFS for 43 years. Please help those of us to continue to suffer.
S
sharon salmon
3 years ago
Yes please help us heal!!!
L
Lena Griffin
3 years ago
My son has been diagnosed with severe ME/CFS. He has been Ill for 5 years, and bedridden for over a year. He is only 27 years old and can’t even even eat in his own, go to bathroom or brush teeth on his own. No one even tried to treat him, as all doctors saying it’s not treatable. If your son or daughter would in this condition, would you give them a chance to live a normal life??? We called 2 doctors who is allowed to do a clinical trial and all of them are booked a several years ahead. My son doesn’t have that much time to live. He needs help now!!!!
K
Karen schlacter
4 years ago
There are so many blatant prejudice and discrimination laws broken toward cfs. Look at special clinics support for covid long haulers (I won't even comment). Seriously..if I had energy I would organize a lawsuit. Any lawyers left with balls?
F
Franz Tudor
5 years ago
Would be able to provide a dr or clinic/hospital name that gave your aunt ampligen? That information would be greatly appreciated and helpful. Hope your aunt has fully recovered.
F
Franz Tudor
6 years ago
Lets keep the pressure on the agencies. The sept 23rd cdc stakeholder meeting was lipservice to me/cfs patients. Lots of tall but no tangible actions and absolutely no solutions. I also started a petition. The more the better. Never give up, never ever give up. http://chng.it/cbfybVcn
H
Hung Yap
6 years ago
This drug has been overdue for approval by FDA. Why??
M
Michelle Wong
6 years ago
Yes. Is good! Keep it up
A
Anonymous
6 years ago
If people really have CFS as a result of Covid in America, he should have access to Ampligen as it’s been proven effective.
A
Anonymous
6 years ago
Please allow us to use this medication
K
Kavan Singh Grover
6 years ago
Stop needless suffering
A
Anonymous
6 years ago
My aunt in Argentina was given Ampligen after series CFS from covid-19, thank god she is recovering well.
D
D
6 years ago
its cruel to hold back such a wonderful safe drug.
Please approve Ampligen. I want my life back. And so does the 20 millions worldwide that are suffering from ME this is not living. Our lives have hit the pause button.
I've had Chronic Fatigue Syndrome for a year now, preventing me from working full time hours and living a full life. Please accelerate the process for this drug. There is no alternative on the market for people like me.
I have ME/CFS and need a treatment
Why are there long-term delays to help CFS sufferers? DECADES! LONG OVERDUE for APPROVAL & excuses must STOP!
Why is the FDA hesitant to give approval? I’ve had cfs for 15 years. Very low NK cells. Willing to give it a chance.
Please
I have had CFS for decades. One of my children has it as well. Been in and out of doctor's offices in desperation for years until finally diagnosed at the Mayo. Please give us the opportunity to live productive lives.
Please approve ampligan. I have had CFS for 43 years. Please help those of us to continue to suffer.
Yes please help us heal!!!
My son has been diagnosed with severe ME/CFS. He has been Ill for 5 years, and bedridden for over a year. He is only 27 years old and can’t even even eat in his own, go to bathroom or brush teeth on his own. No one even tried to treat him, as all doctors saying it’s not treatable. If your son or daughter would in this condition, would you give them a chance to live a normal life??? We called 2 doctors who is allowed to do a clinical trial and all of them are booked a several years ahead. My son doesn’t have that much time to live. He needs help now!!!!
There are so many blatant prejudice and discrimination laws broken toward cfs. Look at special clinics support for covid long haulers (I won't even comment). Seriously..if I had energy I would organize a lawsuit. Any lawyers left with balls?
Would be able to provide a dr or clinic/hospital name that gave your aunt ampligen? That information would be greatly appreciated and helpful. Hope your aunt has fully recovered.
Lets keep the pressure on the agencies. The sept 23rd cdc stakeholder meeting was lipservice to me/cfs patients. Lots of tall but no tangible actions and absolutely no solutions. I also started a petition. The more the better. Never give up, never ever give up. http://chng.it/cbfybVcn
This drug has been overdue for approval by FDA. Why??
Yes. Is good! Keep it up
If people really have CFS as a result of Covid in America, he should have access to Ampligen as it’s been proven effective.
Please allow us to use this medication
Stop needless suffering
My aunt in Argentina was given Ampligen after series CFS from covid-19, thank god she is recovering well.
its cruel to hold back such a wonderful safe drug.