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FDA should give CFS patients access to Ampligen!

5,055 Signatures Goal: 8,000

An estimated 4 million US citizens and 20 million worldwide are suffering from Chronic Fatigue Syndrome or CFS/ME[CDC, CFIDS]. It's a life-threatening illness, as debilitating as MS[CDC]. There is no cure and no FDA-approved drug treatment.

Rintatolimod(Ampligen) has been undergoing FDA trials for over two decades and has benefited a great number of patients to no end and without ill effect.

An FDA Advisory Committee has recently seen fit to block marketing of Ampligen, even though they voted it safe for approval. Instead of encouraging drug companies to pinpoint the subset(s) of people who respond so well, theyexpect sponsors to attract millions of dollars without a return.Ampligen is safe and has been available in places like Canada and Brussels for 17 years.There is no alternative.

We urge the FDA toApprove Ampligen now.

Thanks to the efforts of people like patient/advocate Mr. Robert Miller, the FDA is inviting patients to attend its ME/CFS Stakeholder Workshopon April 25 and 26, 2013.

Find out how you can help herehttps://twitter.com/bobmiller42and show your support bysigning this petition. Share it with your friends and let the FDA know they too should hear us loud and clear: Let ME/CFS patients decide!

Enter your full name and email below and click on the blue "sign now" button. We're not looking for donations. The donation request some will see after signing is unrelated to this petition, but rather for/bythe site hosting it,ipetitions.com.

Sponsor

Fred. Neither patient, doctor, nor investor. I was touched by testimony.

Links

ME/CFS Facts

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  • shawn holt
    shawn holt United States, West Orange
    Apr 23, 2017
    Apr 23, 2017
    This drug is safe. There is efficacy in subgroups. Let doctors and patients make these choices not the government.
  • Anonymous
    Anonymous
    Apr 05, 2017
    Apr 05, 2017
    Considering recent developments in me/cfs, being emphatically proven through biomarkers to be physiological and not psychosomatic, and the refutation of the pace trial, it is of utmost important to make up for lost time that those afflicted by me/CFS have lost.

    One very important method is by passing Ampligen treatment for CFS
  • James Kearns
    James Kearns United States, Santa Monica
    Mar 28, 2017
    Mar 28, 2017
    I have read numerous first person accounts from those suffering with ME\CFS, a devastating, debilitating disease. Short of thousands of patients, families, physicians, patient advocates storming the FDA barricades to speak first hand about their pain and suffering -- it is time for the FDA to do the right thing and approve Ampligen, the only medication proven to be beneficial to the millions of Americans suffering from this horrible, life threatening disease. James Kearns. Santa Monica, CA.
  • Veronika Voss
    Veronika Voss United States, Santa Monica
    Mar 28, 2017
    Mar 28, 2017
    Please allow the four million patients in the USA to be treated by Ampligen, they are debilitated and house bound. It's criminal and cruel not to allow people to be receive proper medical treatment. Yet FDA floods the market with horrific chemicals without a second thought, but not Ampligen whereby clinical trial studies have benefited most CFIDS/ME patients. Disgusting that we pay this agency to work on our behalf and they are just crooks lobbied by those with deep pockets, while selling sickness!!!!
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Signatures

  • 7 days ago
    shawn holt United States
    7 days ago
  • 1 month ago
    James Kearns United States
    1 month ago
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    Veronika Voss United States
    1 month ago
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    Lisa Bjorneby United States
    2 months ago
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    John Shell United States
    3 months ago
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    Anna K United States
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    Susan Sahler United States
    3 months ago
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    Sebastian DiFelice United States
    3 months ago
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    Lindsey Kimble United States
    3 months ago
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    Mollie Morin Givan United States
    5 months ago
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    Sally Maugh United States
    5 months ago
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    Suzie asquith United Kingdom
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    Jeff grey United States
    5 months ago
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    Jayne Wagner Canada
    5 months ago
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