Petition for a New Full-Time Clinical Director of Adult Sickle Cell Services at Duke University
In December 2013, Laura M. DeCastro, M.D. resigned from her position at Duke University as Director of Adult Sickle Cell Services. During this time, the adult Sickle Cell patients were told that the Division of Hematology was actively searching for a new faculty member to assume Dr. DeCastro's leadership and clinical activities, as well expand the opportunities for clinical research in sickle cell disease. As of October 2015 (almost 2 years later), Duke University has yet to hire a new Hematology physician medical doctor to fill this role.
The need for a hematology medical doctor to fill the position vacated by Dr. Laura DeCastro and her historical predecessors, Dr. Wendall Ross, Dr. George Phillips and Dr. Marilyn Telen, is profound. The qualified individual should not only be clinically excellent but also provide leadership to the George Phillips Adult Sickle Cell Center. The qualified individual should also be able to develop programs and effectively collaborate with the different medical entities that provide healthcare to patients with Sickle Cell, i.e. Clinics, ER Department, and Day Hospital (recently changed to Infusion Center.)
The level of required leadership is to be exemplary for the State of North Carolina and a guide nationally as the individuals who served in this role have previously fulfilled. The George Phillips Adult Sickle Cell Center has been led by providers that have been highly competent, caring and compassionate, as well as, clinicians who conducted ground breaking research and made invaluable input to the State of North Carolina and national healthcare delivery system. They have been major contributors to the national advancement of research for a cure and to protocols that defined quality care for all persons living with the challenges of sickle cell disease. We expect the same caliber of practitioner that will be willing to step into this critical role.
Please join us in requesting Duke University provide families with a new full-time, dedicated Clinical Director of Adult Sickle Cell Services by signing this Petition. We feel it is an absolute necessity to provide patients with preventive and comprehensive care that addresses their medical/health needs in order to promote a good quality of life.
On behalf of the Sickle Cell Support Group of Durham County and Bridges Pointe Support Services Organization, Thank You.
Updates
October 28, 2015
I AM CURRENTLY WORKING BEHIND THE SCENES TO ENSURE THE LEADERSHIP AT DUKE HEARS OUR DEMANDS LOUD AND CLEAR!! THE STORIES YOU HAVE SHARED ABOUT THE LACK OF CARE ARE HEARTBREAKING BUT THEY FUEL OUR FIRE TO GET THIS CLINICAL DIRECTOR POSITION FILLED IMMEDIATELY!!
October 28, 2015
THIS MOMENTUM IS ABSOLUTELY ELECTRIFYING!! I AM BEYOND EXCITED TO SEE SO MANY OF YOU STANDING WITH US TO DEMAND THE LEADERSHIP WE DESERVE AT DUKE!!
Reached 100 supporters
October 28, 2015
25 Comments
We need to get someone that has EXTENSIVE knowledge about SC, but they also need to have interest in radical treatment. Too many people are suffering and the solutions are too cookie cutter.
I firmly believe the current head of the Sickle Cell Clinic who makes the decisions regarding the infusion center needs someone who will be a strong supporter and advocate for all patients. I left partly due to difficulties with the Head of the Sickle Cell clinic. I often felt treated unfairly and made to make excessive concessions to receive appropriate treatment which was never a problem before Dr. DrCastro left.
Duke need to get a Dr for the Sickle Cell Patients . It has almost been two years . Enough is Enough of Duke dragging there feet . My husband is one of those patients and the way i feel y'all don't care about them
Duke University Medical Center has long been an international leader in sickle cell disease research and patient care. It is incomprehensible that the position of Clinical Director of Adult Hematology Services has been vacant since Dr. DeCastro left in 2013. The sickle cell provider community has made great strides in the care of pediatric patients and it is imperative that we continue this legacy by devoting the same level of commitment to the care of adults living with sickle cell disease. On behalf of SCDAA-Eastern NC Chapter, I would strongly encourage this position to be filled as soon as possible so that we can take the fight against sickle cell disease to the next level.
Acute care/treatment is critical, but we are well pass the time and need for a hematologist specializing in SCD; providing preventive health care; and dedicated to persons affected with sickle cell disease and obtaining and retaining the resources necessary for the health and well-being of persons affected with SCD.
Hire a physician for sickle cell patients.
1311 Morehead Avenue Durham,NC 27707
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Petition for a New Full-Time Clinical Director of Adult Sickle Cell Services at Duke University
In December 2013, Laura M. DeCastro, M.D. resigned from her position at Duke University as Director of Adult Sickle Cell Services. During this time, the adult Sickle Cell patients were told that the Division of Hematology was actively searching for a new faculty member to assume Dr. DeCastro's leadership and clinical activities, as well expand the opportunities for clinical research in sickle cell disease. As of October 2015 (almost 2 years later), Duke University has yet to hire a new Hematology physician medical doctor to fill this role.
The need for a hematology medical doctor to fill the position vacated by Dr. Laura DeCastro and her historical predecessors, Dr. Wendall Ross, Dr. George Phillips and Dr. Marilyn Telen, is profound. The qualified individual should not only be clinically excellent but also provide leadership to the George Phillips Adult Sickle Cell Center. The qualified individual should also be able to develop programs and effectively collaborate with the different medical entities that provide healthcare to patients with Sickle Cell, i.e. Clinics, ER Department, and Day Hospital (recently changed to Infusion Center.)
The level of required leadership is to be exemplary for the State of North Carolina and a guide nationally as the individuals who served in this role have previously fulfilled. The George Phillips Adult Sickle Cell Center has been led by providers that have been highly competent, caring and compassionate, as well as, clinicians who conducted ground breaking research and made invaluable input to the State of North Carolina and national healthcare delivery system. They have been major contributors to the national advancement of research for a cure and to protocols that defined quality care for all persons living with the challenges of sickle cell disease. We expect the same caliber of practitioner that will be willing to step into this critical role.
Please join us in requesting Duke University provide families with a new full-time, dedicated Clinical Director of Adult Sickle Cell Services by signing this Petition. We feel it is an absolute necessity to provide patients with preventive and comprehensive care that addresses their medical/health needs in order to promote a good quality of life.
On behalf of the Sickle Cell Support Group of Durham County and Bridges Pointe Support Services Organization, Thank You.
Updates
October 28, 2015
I AM CURRENTLY WORKING BEHIND THE SCENES TO ENSURE THE LEADERSHIP AT DUKE HEARS OUR DEMANDS LOUD AND CLEAR!! THE STORIES YOU HAVE SHARED ABOUT THE LACK OF CARE ARE HEARTBREAKING BUT THEY FUEL OUR FIRE TO GET THIS CLINICAL DIRECTOR POSITION FILLED IMMEDIATELY!!
October 28, 2015
THIS MOMENTUM IS ABSOLUTELY ELECTRIFYING!! I AM BEYOND EXCITED TO SEE SO MANY OF YOU STANDING WITH US TO DEMAND THE LEADERSHIP WE DESERVE AT DUKE!!
Reached 100 supporters
October 28, 2015
25 Comments
I'm all in because me having scd (ss) I already go through enough but i went too the hospital (duke ) two-week ago and waited seven hours and my pain level was a 10 I ask too speck too a sickle cell nurse and they told me there none which I known that was a lie I had a sickle cell nurse two-week before and she (the sickle cell nurse) said its about 7 or 8 of us there one on 24 hrs a day so the front desk people needs too be trained as well and stop lien too us thanks u
We need to get someone that has EXTENSIVE knowledge about SC, but they also need to have interest in radical treatment. Too many people are suffering and the solutions are too cookie cutter.
I firmly believe the current head of the Sickle Cell Clinic who makes the decisions regarding the infusion center needs someone who will be a strong supporter and advocate for all patients. I left partly due to difficulties with the Head of the Sickle Cell clinic. I often felt treated unfairly and made to make excessive concessions to receive appropriate treatment which was never a problem before Dr. DrCastro left.
Duke need to get a Dr for the Sickle Cell Patients . It has almost been two years . Enough is Enough of Duke dragging there feet . My husband is one of those patients and the way i feel y'all don't care about them
Duke University Medical Center has long been an international leader in sickle cell disease research and patient care. It is incomprehensible that the position of Clinical Director of Adult Hematology Services has been vacant since Dr. DeCastro left in 2013. The sickle cell provider community has made great strides in the care of pediatric patients and it is imperative that we continue this legacy by devoting the same level of commitment to the care of adults living with sickle cell disease. On behalf of SCDAA-Eastern NC Chapter, I would strongly encourage this position to be filled as soon as possible so that we can take the fight against sickle cell disease to the next level.
Acute care/treatment is critical, but we are well pass the time and need for a hematologist specializing in SCD; providing preventive health care; and dedicated to persons affected with sickle cell disease and obtaining and retaining the resources necessary for the health and well-being of persons affected with SCD.
Hire a physician for sickle cell patients.
1311 Morehead Avenue Durham,NC 27707
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I'm all in because me having scd (ss) I already go through enough but i went too the hospital (duke ) two-week ago and waited seven hours and my pain level was a 10 I ask too speck too a sickle cell nurse and they told me there none which I known that was a lie I had a sickle cell nurse two-week before and she (the sickle cell nurse) said its about 7 or 8 of us there one on 24 hrs a day so the front desk people needs too be trained as well and stop lien too us thanks u