Demand Federal Government Involvement in the Fight Against Lyme Disease and Co-Infections
280 Comments
L
Laurie Parker
1 year ago
We have got to get some help. Please
P
Peggy Baker
1 year ago
I am a Lyme disease sufferer for 15 years lost my job had to go on disability and I'm only 62 years old I am basically not human anymore and never will be again I'm married to a very very supportive husband thank God We had to do our own research We had to figure out everything we possibly could to no avail please Help people
C
Cathy Haney
1 year ago
My daughter has Lyme Disease
N
Nicole Sarenpa
1 year ago
My story began with seven years of unexplainable migraines, and trigeminal neuralgia. It was only when I paid out-of-pocket for a functional neurologist who did adequate testing that I was diagnosed with an alternative CDC diagnosis of Lyme disease. It took another few years to realize that mold was complicating the picture, and then another $200,000 later and I had remediated mold my house out of my own pocket. I had mast cell activation syndrome, which was complicating things even more, and it wasn’t until I figured out that changing my diet cut my migraines in half along with the other therapies from the functional neurologist that were 100% not covered under Insurance. This entire time I effectively acted as my own doctor, because it was so hard to find doctors that understood all the aspects of what I was going through. I realized when I tested my home for mold and my body for mycotoxins, that the mycotoxins I had in my body were oncogenic, meaning cancer causing. Not much time later I found a lump in my breast and was diagnosed with stage one a breast cancer. I am now in better health than I have been in the last decade, after spending a small fortune on metabolic therapies that are not covered under traditional insurance. Things like Hyperbaric Oxygen exercise with oxygen therapy infrared sauna, high dose, vitamin C, IV ozone, binders for mold, various supplements, pulse electromagnetic therapy, among other things I do feel very blessed to be able to have the resources for these things, however, I know that most people don’t it breaks my heart and has become my life’s purpose to spread awareness and connect people with the resources that actually help heal. I am very aware of the history of Lyme disease, and although I own all of the books and I’ve listened to so many podcasts, it’s hard for me to sit down and read the background history that has been documented and written about about how Lyme disease came to be so virulent. Unfortunately, the writing is
K
Kay Kremer
1 year ago
I have lyme disease and need help.
P
Peggy Still
1 year ago
Diagnosed 3 1/2 years ago
A
Anonymous
1 year ago
I have had Lyme symptoms since age 15. I went to many doctors and none diagnosed me. In my 50s I found a doctor who was willing to test me for Lyme and found out I was positive. All this time, any of the doctors could have diagnosed me, but I had to diagnose myself. Very typical Lyme disease story.
Action on this will save many lives.
R
Renee Poepperling
1 year ago
Please help us all who suffer everyday with Lyme.
K
Katina Hockney
1 year ago
Signing as there are too many of us suffering without proper help, treatment, our pain not taken seriously
B
Brandon Nagel
1 year ago
Been infected for about 8 years.
H
Hillarie Gilliland
1 year ago
My husband and daughter both suffer from Lyme and Lyme associated diseases and have been barreling it for years now.
A
Andrea mednick
1 year ago
My child and my life has been devastated by this disease. We are counting on you for help.
T
Teya Friesen
1 year ago
Please fight this!
A
Anonymous
1 year ago
I have Lyme and it is nit covered by insurance. Please support us.
A
Anonymous
1 year ago
My daughter and 3 children all have Lyme. Please get this recognized by CDC and insurance companies.
M
Mary Ann Johnston
1 year ago
Time for transparency and making sick care a priority. Without our health we have no wealth.
K
Kalner Roman
1 year ago
Fight Against Lyme Disease and Co-Infections
K
Kristin Kristin
1 year ago
I have had Lyme since e2015. I’m disabled now and it ruined my life
T
Tammi Bartlett
1 year ago
Please support those who are affected by Lyme by bringing this to the attention of those who can help sufferers.
L
Lori Lynn
1 year ago
And please investigate the Arkansas Department of Health, as they still deny the existence of Lyme Disease and discourage Doctors to diagnose and treat the thousands of CDC positive cases reported to them every year!
We have got to get some help. Please
I am a Lyme disease sufferer for 15 years lost my job had to go on disability and I'm only 62 years old I am basically not human anymore and never will be again I'm married to a very very supportive husband thank God We had to do our own research We had to figure out everything we possibly could to no avail please Help people
My daughter has Lyme Disease
My story began with seven years of unexplainable migraines, and trigeminal neuralgia. It was only when I paid out-of-pocket for a functional neurologist who did adequate testing that I was diagnosed with an alternative CDC diagnosis of Lyme disease. It took another few years to realize that mold was complicating the picture, and then another $200,000 later and I had remediated mold my house out of my own pocket. I had mast cell activation syndrome, which was complicating things even more, and it wasn’t until I figured out that changing my diet cut my migraines in half along with the other therapies from the functional neurologist that were 100% not covered under Insurance. This entire time I effectively acted as my own doctor, because it was so hard to find doctors that understood all the aspects of what I was going through. I realized when I tested my home for mold and my body for mycotoxins, that the mycotoxins I had in my body were oncogenic, meaning cancer causing. Not much time later I found a lump in my breast and was diagnosed with stage one a breast cancer. I am now in better health than I have been in the last decade, after spending a small fortune on metabolic therapies that are not covered under traditional insurance. Things like Hyperbaric Oxygen exercise with oxygen therapy infrared sauna, high dose, vitamin C, IV ozone, binders for mold, various supplements, pulse electromagnetic therapy, among other things I do feel very blessed to be able to have the resources for these things, however, I know that most people don’t it breaks my heart and has become my life’s purpose to spread awareness and connect people with the resources that actually help heal. I am very aware of the history of Lyme disease, and although I own all of the books and I’ve listened to so many podcasts, it’s hard for me to sit down and read the background history that has been documented and written about about how Lyme disease came to be so virulent. Unfortunately, the writing is
I have lyme disease and need help.
Diagnosed 3 1/2 years ago
I have had Lyme symptoms since age 15. I went to many doctors and none diagnosed me. In my 50s I found a doctor who was willing to test me for Lyme and found out I was positive. All this time, any of the doctors could have diagnosed me, but I had to diagnose myself. Very typical Lyme disease story. Action on this will save many lives.
Please help us all who suffer everyday with Lyme.
Signing as there are too many of us suffering without proper help, treatment, our pain not taken seriously
Been infected for about 8 years.
My husband and daughter both suffer from Lyme and Lyme associated diseases and have been barreling it for years now.
My child and my life has been devastated by this disease. We are counting on you for help.
Please fight this!
I have Lyme and it is nit covered by insurance. Please support us.
My daughter and 3 children all have Lyme. Please get this recognized by CDC and insurance companies.
Time for transparency and making sick care a priority. Without our health we have no wealth.
Fight Against Lyme Disease and Co-Infections
I have had Lyme since e2015. I’m disabled now and it ruined my life
Please support those who are affected by Lyme by bringing this to the attention of those who can help sufferers.
And please investigate the Arkansas Department of Health, as they still deny the existence of Lyme Disease and discourage Doctors to diagnose and treat the thousands of CDC positive cases reported to them every year!