RESPITE FOR PARENTS WITH DISABLED CHILDREN

We are prents of 2 disabled sons living in Hampshire, UK. One son, the youngest at 10 years, is very severley autistic and also has ADHD. The other son, aged 12, has high functioning autism and dypraxia. Each year all we are given is 4 nights/5 days respite for our 10 year old and we are expected to use this as our annual holiday, to recharge our batteries and to spend some premium time with our other son. By the time we drop Chris off Monday Morning and then pick him up around Friday lunchtime we really only have 3 days. Where can we go in that time We have not had a two week holiday for over 7 years and in order that we can take a real break and spend some time with our other son we applied to social services to transfer the summer respite into September and take Charlie to Florida for two weeks. All we want is cover for two weekends as Chris will be at school during the week days. Usually respite is granted by a panel called Marps after we apply.However we have found out, by her own admission that a Social worker has made the decision to refuse this respite. She has said that we can have the time in the summer but not in September. We wonder if she is told when to have her holidays. Her decision means that we have to pay for the two week ends respite ourselves meaning we will be paying £3670 on top of our holiday. We want to get this decision overturned and would appreciate your signature below to show yuor support. We desperately need this break but will struggle to pay all of the respite ourselves. Thank you for your help. Charles and Tina Parker

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