Yellow and Blue Proclamation

Whereas colors yellow and blue is a global effort dedicated to promoting Schizencephaly awareness in countries around the world, and

 Whereas Schizencephaly is one of the least common neurological conditions, estimated to affect 1 in 100 000 people worldwide and whereas one in ten persons will have at least one seizure during his or her lifetime, and

Whereas the public is often unable to recognize Schizencephaly or issues caused by common seizure types, or how to respond with appropriate first aid, and

 Whereas YELLOW AND BLUE DAY will be celebrated on May 19th annually to increase understanding, reduce stigma and improve the quality of life for people with Schizencephaly throughout the country and globally.

 Now, therefore, I do hereby proclaim May 19th, SCHIZENCEPHALY AWARENESS DAY, in an effort to raise awareness of this rare disorder in the United States of America or other country.

Links

 

Noahscart is a non profit company raising awareness for a very rare disorder called Schizencephaly

 

Inspirational song written for Schizencephaly Awareness by Chris Morash

 

Schizencephaly Awareness Faces of us video

 

 

The Conductive Learning Center serves children birth to age 26 with motor disorders related to complications of prematurity, Cerebral Palsy, Spina Bifida or brain injury. For these children with motor disorders, even the smallest tasks – eating, buttoning a shirt, sitting in a chair –can be monumental. The Conductive Learning Center (CLC) can change that. 

 

Island Dolphin Care, a 501(c)3 not-for-profit organization is a magical place where children with special needs, wounded soldiers and their families find joy and discover new abilities. Parents and participants reclaim hope, shed stress and find inspiration.

 

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    michelle martinez, United States

    11 months ago Comments: I have a grandson who has schizencephaly.
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    Karen Simpson, United Kingdom

    11 months ago Comments: -
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    Beverly Baker, United States

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