Signatures 827 total
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Name: Denise Manley on Apr 28, 2010Comments: We need a class action lawsuit against any entity or entities causing a doctor to not perform their job in their field of expertise concerning this issue. As a person with venous disease and an American citizen I deserve a full and complete diagnosis and options of treatments that are available. It is my choice to not take drugs that have killed hundreds to not take drugs that have harmed hundreds more as well as myself. Regardless of any connection that CCSVI may or may not have with MS it is a fact that I have this venous disease and a fact that doctors can treat that condition with a very high success rate and zero morbidity.Flag
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Name: Andrea Casti on Apr 28, 2010Comments: MS should be taken out of the equation and CCSVI should be looked at as a different problem. There are theroies that this is a birth defect and that should be explored. We should not have to have a trial or study for this, if we have stenosis we should be able to have it repaired.Flag
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Name: Maria Dekleer on Apr 28, 2010Comments:Flag
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Name: Yvonne Andersen on Apr 28, 2010Comments: This is not a neurological problem and neurologists need to allow Doctors of Interventinal Radiology and venous disease do their job in helping us.Flag
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Name: Jeff Stevens on Apr 28, 2010Comments: my prayers go out to all.Flag
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Name: Joseph Roy on Apr 28, 2010Comments:Flag
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Name: MICHELLE SINNAMON on Apr 28, 2010Comments:Flag
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Name: Robert Meskill on Apr 28, 2010Comments:Flag
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Name: Nora Beltrano on Apr 28, 2010Comments:Flag
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Name: Katherine Ross on Apr 28, 2010Comments: Treating our vascular issues makes sense not only in a humanitarian way to ease suffering, but is the fiscally prudent thing to do for any health system or insurance company! Don't allow us to become a further drain - fix our veins!Flag
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Name: Melissa J. Bish on Apr 28, 2010Comments: This is a righteous cause and will be won.Flag
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Name: Michael Damizia on Apr 28, 2010Comments: As a sufferer of MS, I don't have the luxury of waiting years for studies of CCSVI, while I deteriorate daily. If this procedure could improve my & other sufferers quality of life, what is the harm?Flag
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Name: Shara Grice on Apr 28, 2010Comments: I believe that I am not being given access to medical care based on my pre-existing disease. I understand that there has not been a link fully established between my MS and CCSVI. However I would still like the right to be tested and treated should I have the venous condition on top of my MS.Flag
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Name: Ginger MacQueen on Apr 28, 2010Comments:Flag
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Name: Kevin Berend on Apr 28, 2010Comments: Please pass this outFlag
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Name: Nancy B. Church on Apr 28, 2010Comments:Flag
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Name: Filip Jager on Apr 28, 2010Comments:Flag
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Name: Mary Thibodeaux on Apr 28, 2010Comments: I have MS & feel I have the right as a person, as a human being to have other health needs met, such as CCSVI. If it relates to MS, GREAT, if not and I need the procedure anyway...what gives YOU the right to tell me no!?Flag
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Name: Tessa Rushton on Apr 28, 2010Comments: We need this treatment NOW! People with chronic cerebrospinal venous insufficiency (who also happen to have MS) have been tested and treated in Poland, India, Australia, Kuwait and other countries and are seeing dramatic improvements in symptoms once thought to be attributable to MS)! To hold back health care (certainly in Canada) goes against the Health Act. Not sure what the new American health act states, but we need this testing/procedure NOW!Flag
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Name: Jeffery Haas on Apr 28, 2010Comments:Flag
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Name: Kristin Hayden on Apr 28, 2010Comments:Flag
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Name: Wanda Baum on Apr 28, 2010Comments:Flag
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Name: Julie Way on Apr 28, 2010Comments:Flag
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Name: Diana Gordon on Apr 28, 2010Comments: CCSVI is vascular and needs to be fixed, when it is confirmed. MS is nothing more than a symptom of CCSVI.Flag
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Name: Elizabeth Haga on Apr 28, 2010Comments:Flag
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Name: Annette Matisz on Apr 28, 2010Comments:Flag
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Name: Patricia I McCallum on Apr 28, 2010Comments:Flag
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Name: Karen Trotter on Apr 28, 2010Comments:Flag
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Name: Jan Wexler on Apr 28, 2010Comments:Flag
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Name: Michael Dearing on Apr 28, 2010Comments: God is not the author of confusionFlag
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Name: CAROLYN STULL on Apr 28, 2010Comments:Flag
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Name: Janet Riley on Apr 28, 2010Comments:Flag
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Name: Dale Melnechuk on Apr 28, 2010Comments: Why does there have to be much research? So the drug co's can keep making the 12.5 billion dollars until 2015? Screw them I want to walk now!!Flag
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Name: Crystal Bruce on Apr 28, 2010Comments:Flag
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Name: Monica Scalia on Apr 28, 2010Comments: My mother was diagnosed with jugular vein malformations and she needs this procedure and even knows a dr. that can do it, but there is someone stopping the dr. WhY?Flag
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Name: Judy Keagan on Apr 28, 2010Comments: Please help my husband & other MS patients like him to get this much needed treatment and regain their quality of life back.Flag
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Name: Sandra Macneil on Apr 28, 2010Comments: This is a simple procedure ..it is a vascular problem. Leave MS out of this and get on with doing LiberationFlag
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Name: Brenda Deblois on Apr 28, 2010Comments: please help us .. s'Il vous plait aider nous !!!Flag
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Name: Anonymous on Apr 28, 2010Comments: I'm not expecting miracles but there is too much evidence that this minimally invasive procedure is having very good results. The time wasted is cruel as the damage progresses and after a while it's too late. Please help us to get tested and treated for this venous insufficiency, by doctors in the field of venous disease and interventional radiology. I understand the need for further research and to ultimately determine how this back flow of blood to the brain starts the MS attacks, . Venography is a procedure that has been in place and used world wide for well over the last 15 years and has been proven to be a safe and effective procedure to open blockages in veins and ultimately reduce and in some instances eliminate symptoms of severe fatigue, strength and balance, blurred or double vision, sleep disturbances and parenthesis to name a few. Doctors of Interventional Radiology and venous disease must be allowed to practice their skill on this disease. Please don't wait until the damage done by venous insufficiency has gone to the point that our quality of life is non existent. Time is off the essence. KarenFlag
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Name: Lindsay Harding on Apr 28, 2010Comments:Flag
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Name: Cecil Keagan on Apr 28, 2010Comments: Please help us NOW!!!!!!!!!!!!!!!!!!Flag
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Name: JANE VITELLI on Apr 28, 2010Comments:Flag
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Name: Steven Garvie on Apr 28, 2010Comments: I am liberated but agree 100%Flag
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Name: Rose Caldwell on Apr 28, 2010Comments:Flag
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Name: Danielle Garvie on Apr 28, 2010Comments:Flag
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Name: Debbie Moser on Apr 28, 2010Comments: Lets go for cureFlag
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Name: Angela Kelly on Apr 28, 2010Comments:Flag
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Name: Pamala Spracklin on Apr 28, 2010Comments: Let's Rock!!!!!!Flag
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Name: Judith Price on Apr 28, 2010Comments:Flag
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Name: Denise Axworthy on Apr 28, 2010Comments:Flag