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The medical establishment finally blinked and agreed to recognize venous insufficiency testing for MS patients. We forced them to stop ignoring the research and acknowledge our right to proper diagnostics. Keep watching them because we will not let them walk this back.

June 29, 2010

Treat Venous Insufficiency

Treat Venous Insufficiency

🏆 Won — 760 supporters Verified

Final supporters

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Tamanika Z.
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Martha H.
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Cynthia L.
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Monique C.
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Kimberly M.
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Caroline W.
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Vicki P.
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Jennifer C.
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Keith C.
+750 more
DM
Started by Denise Manley 16 years, 3 months ago
We, the people demand our rights to a 'The Differential Diagnosis of Multiple Sclerosis' as outlined in 'The Neurologist Volume 13, Number 2, March 2007 pgs. 57-72'. Research into the cause(s) of Multiple Sclerosis have been ongoing for years and have pointed to venous disease as a culprit for many of those years. While doctors and politicians of all fields argue, for and against the research and what it means, while insurance companies and pharmaceutical companies, and MS Societies wage war against each other, we the people are not being cared for by the guide lines to rule out other dissmented diseases that fall into the category of time and space. Cerebrovascular disease is on the top of the list. We now have the technology to accurately and without dangerous invasive procedures to diagnosis. We the people do not want to be treated for any of our MS symptoms at this time with this procedure, but we do want to be tested and treated for this venous insufficiency, by doctors in the field of venous disease and interventional radiology. We understand the need to research further and ultimately determine how this back flow of blood to the brain starts the MS attacks, "Georgetown University looked at the nature and origin of the venous malformations responsible for CCSVI. The vascular researchers found that the venous malformations are of congenital origin and are not the product of post-birth, environmental insults or the MS disease process itself." Reported by Dr.Ashton Embry, PhD of Direct-MS. Venography is a procedure that has been in place and used world wide for well over the last 15 years and it has already been proven to be a safe and effective procedure to open blockages in veins and ultimately reduce and in some instances eliminate symptoms of severe fatigue, strength and balance, blurred or double vision, sleep disturbances and parenthesis to name a few. We demand that Doctors of Interventional Radiology and venous disease be allowed to practice their skill and medical degrees for this disease, while medical research proceeds to answer other questions about this disease relationship to other disease. There is now genetic information that links venous disease and MS on chromosome 6p21.32 from BMC Medical Genetics 1 August 2009, released for publicaton 28, April 2010 biomedcentral.com/1471-2350/11/64

Updates

Reached 500 supporters

May 1, 2010

April 30, 2010

The MS societies and the insurance giants are ignoring the research because it threatens their status quo. We are nearly at 500 signatures and I need you to hit every contact you have to force them to stop burying the truth about venous insufficiency.

Reached 100 supporters

April 28, 2010

6 Comments

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Karen Perez
16 years ago Featured

Give us the option to be tested. Its our bodies and our health. Why are they so afraid of this research?

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Tom Chavez
16 years ago Featured

Too many people getting ignored. Listen to the patients for once.

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Sarah Hughes
16 years ago Featured

My brother has been suffering for years and nobody will listen. Its time to stop ignoring the vascular side of this disease. Doctors need to open their eyes.

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Linda Barnes
16 years ago Featured

Ridiculous that we have to fight for basic testing. So many patients are out there struggling while the medical boards sit on their hands. FIX THIS.

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David Becker
16 years ago Featured

Finally someone is talking some sense. My symptoms match this perfectly and yet my neurologist acts like I am crazy for asking about it.

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Mike Collins
16 years ago Featured

Just test us! Stop the politics and let us get the scan. We just want answers.

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