Petition to Increase TSC Research Funding

Signatures 4726 total

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1. 151
   Name: Marybeth And Frank Mcgovern on Aug 8, 2008

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2. 152
   Name: Amy Dublinske on Aug 8, 2008

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3. 153
   Name: Cristy Valdez on Aug 8, 2008

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4. 154
   Name: Cherie Helms on Aug 8, 2008

   Comments: My daughter just turned one year old and was diagnosed at 1 month old. She has very severe, uncontolable epilesy and developmental set delays. PLEASE increase funding to find a cure. God bless all involved.

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5. 155
   Name: Anonymous on Aug 8, 2008

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6. 156
   Name: Jim Lellman on Aug 8, 2008

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7. 157
   Name: Florence Kinnally on Aug 8, 2008

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8. 158
   Name: Ashley Welborn on Aug 8, 2008

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9. 159
   Name: Dawn Stockton on Aug 8, 2008

   Comments: I know a child personally who has this disease. Please do what you can to allow this disease to be researched more and allowing necessary funding. Thank you, Dawn Stockton

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10. 160
    Name: Laurie Strand on Aug 8, 2008

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11. 161
    Name: Lena Smith on Aug 8, 2008

    Comments: I have an 8 yr old daughter with tsc and people in general dont have a clue what it is and some educators in public schools define some tsc kids as adhd or mr and they dont bother to look at the big picture and jst put them in a classification so that their state and federal tests arent altered by these students.THERE HAS GOT TO BE A BETTER SOLUTION FOR OUR CHILDREN AND THEIR HEALTH AND EDUCATION. IF WE CAN STOP CANCERS AND FIND MEDICAIONS THAT WORK FOR ALL THESE OTHER DISEASES THEN WE NEED TO PUT AND EFFORT INTO CURING TSC.

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12. 162
    Name: Jill Wilke on Aug 8, 2008

    Comments: Please display my name. My now 17 year old son was diagnosed with TSC at 7 weeks of age. His life and the lives of my family have been altered forever. He has been back in the hospital four times since April due to severe grande mal seizures. Please help with research to find a cure.

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13. 163
    Name: Anonymous on Aug 8, 2008

    Comments: Please help because my nephew Tyler Martin would benefit from new discoveries effecting TSC research.

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14. 164
    Name: Gloria Fixell on Aug 8, 2008

    Comments: Please, please appropriate funds for TS research. This disease devastates individuals and families. Only those who live it can really know.

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15. 165
    Name: Wayland And Carol Bennett on Aug 8, 2008

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16. 166
    Name: Leonard H. Schott on Aug 8, 2008

    Comments: Our daughter, age 49 , was diagnosed with Tuberous Sclerosis at age 6 months. At that time little was known of this handicapping disease, but through the efforts of many it is finally getting the attention it needs to find a cure and to assist those afflicted with this disease. In order to move ahead more effectively though, we need more political involvement(funding), and more medical research. In addition, the public must be made more aware of this condition.

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17. 167
    Name: Leonard H. Schott on Aug 8, 2008

    Comments: Our daughter, age 49 , was diagnosed with Tuberous Sclerosis at age 6 months. At that time little was known of this handicapping disease, but through the efforts of many it is finally getting the attention it needs to find a cure and to assist those afflicted with this disease. In order to move ahead more effectively though, we need more political involvement(funding), and more medical research. In addition, the public must be made more aware of this condition.

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18. 168
    Name: Rebecca Andronowitz on Aug 8, 2008

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19. 169
    Name: Stefanie Siracki on Aug 8, 2008

    Comments: I have a 3 yr old daughter with TSC,Epilepsy, and Autism. I was diagnosed with Multiple Sclerosis in November 2007... I was also found to be a carrier of TSC in April 2008! My other 2 children will also have the blood tests done to see if they have it as well.... More Research has to be done for TSC!

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20. 170
    Name: Paula Hart on Aug 8, 2008

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21. 171
    Name: Maurita Birkland on Aug 8, 2008

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22. 172
    Name: Kimberly Klein on Aug 8, 2008

    Comments: Please support research to find a cure:)

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23. 173
    Name: Suzanne Lapin on Aug 8, 2008

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24. 174
    Name: Ray Novotny on Aug 8, 2008

    Comments: My twin nieces are affected by TSC, it's very important for continued research to hopefully TSC for the future and treatment(s) for the already affected

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25. 175
    Name: Heidi Fails on Aug 8, 2008

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26. 176
    Name: Yimage Yousuf on Aug 8, 2008

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27. 177
    Name: Ashley on Aug 8, 2008

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28. 178
    Name: Susan Hunt on Aug 8, 2008

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29. 179
    Name: Cindy Randolph on Aug 8, 2008

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30. 180
    Name: Ginger Crisp on Aug 8, 2008

    Comments: My daughter, Bobbie is affected with TSC.

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31. 181
    Name: Cindy Schalich on Aug 8, 2008

    Comments: We urgently need funding to stop this disease. My 12 year old son is living with TSC as well as seizures, brain tumors, facial angiofibromas, kidney lesions and developmental delays. I urge Congress to fund research in all areas and to provide funding for better diagnostics.

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32. 182
    Name: Marjorie Meredith on Aug 8, 2008

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33. 183
    Name: Melissa Mittelbach on Aug 8, 2008

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34. 184
    Name: Mila Griggs on Aug 8, 2008

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35. 185
    Name: Anonymous on Aug 8, 2008

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36. 186
    Name: Lucy Brown on Aug 8, 2008

    Comments: As a parent with a 23 year old son who has seizures daily - I can't stress enough how much research means to those affected with tuberous sclerosis. We've come a long way in learning about this disease but there is still a long ways to go.

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37. 187
    Name: Mrs Judy R Swartz on Aug 8, 2008

    Comments: I have a beautiful granddaughter, Abby, 6yrs old affected with TSC. She has severe seizures and has max'd out on her meds. She had a crainiotomy in Feb.'08 to remove the tuber causing the seizures. Her head was open for 10days-surgery was aborted because of the location of her tuber.Her head was closed. She spent her 6th birthday and lost her first tooth at Children's Hospital, Atlanta..She came home with 40 staples-and "the monsters still in her head". A new MRI is scheduled-she is losing her speech. Please help find a cure. Judy Swartz, her "nana"

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38. 188
    Name: Tanya Scifres on Aug 8, 2008

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39. 189
    Name: Celia Mastbaum on Aug 8, 2008

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40. 190
    Name: Joel And Pam Johnson on Aug 8, 2008

    Comments: Any support you can give to better understand and eventually cure TSC would be a blessing. My son, NIcholas, thanks you. Our family thanks you. All families affected by this debilating condition thank you. God Bless, Joel and Pam Johnson

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41. 191
    Name: Cosntance Elder on Aug 8, 2008

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42. 192
    Name: Libby Wood on Aug 8, 2008

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43. 193
    Name: Kayla Priddy on Aug 8, 2008

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44. 194
    Name: Beth Marletti on Aug 8, 2008

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45. 195
    Name: Dina Richard on Aug 8, 2008

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46. 196
    Name: Mike J. Burwell on Aug 8, 2008

    Comments: My brother has TSC. We think my grandfather on my mother's side had it. And there is some evidebce that one or two of my cousins have it. I belive more research needs to be done, not just on curing, but on ways of detecting it both at birth and if someone carries the gene for it.

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47. 197
    Name: Melissa Joyce on Aug 8, 2008

    Comments: Our son Hayden, age 11 has Tuberous Sclerosis and it has had and continues to have a profound impact on his life. We ask that you please increase funding so we can find more effective treatments and eventually a cure for Tuberous Sclerosis. Sincerely, Melissa Joyce (parent)

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48. 198
    Name: Tammy Paetz on Aug 8, 2008

    Comments: i have a daughter with ts this is a very serious diesese it effect alot of familys in alot of diffrent ways we have all lived with it in alot of diffrent ways

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49. 199
    Name: Anonymous on Aug 8, 2008

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50. 200
    Name: Judy Bifulco on Aug 8, 2008

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