Signatures 4457 total
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101
Name: Lisa Smoot on Oct 10, 2012Comments: I have been living with this for 4 years now. it is horrific and I pray for all of us that have itFlag
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102
Name: Anonymous on Oct 10, 2012Comments: This condition has changed my life. I was a happy outgong helthy girl when i was diagnosed. Any disease that requires brain surgery and this amount of debilitating medication should be discussed. Our society's views of pain is reflected in our doctors's visits. The many are not compassionate towards our suffering, and do not believe us. We are not asking for opiates, we are adking for a cure. Please send this out to all your friends and family, and than some more!!!!!Flag
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103
Name: Mitzie Roman on Oct 10, 2012Comments: I had MVD surgery for Trigeminal Neuralgia, but don't know what causes it and if it will come back.Flag
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104
Name: Miriam Fraser on Oct 10, 2012Comments:Flag
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105
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Lisa Jones Smoot on Oct 10, 2012
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106
Name: June Scott on Oct 10, 2012Comments: 10 years TNFlag
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107
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Elizabeth Sirrell on Oct 10, 2012
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108
Name: Alesia Richmond on Oct 10, 2012Comments: Once I heard a preacher say that Jesus must have felt on the cross the worst pain known to man Trigeminal Neuralgia, and I thought only a few was chosen to have known that pain, and I was one of the ones chosen to have that affliction. God have mercy on us.Flag
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109
Name: Liz Amy Skipper on Oct 10, 2012Comments:Flag
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110
Name: Kathleen Friend on Oct 10, 2012Comments:Flag
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111
Name: James Works on Oct 10, 2012Comments: Far more research into the cause(s) of this disorder are badly needed. And...obviously a cure is needed. The two main treatments of MVD and Gamma Knife are NOT 100% effective for everyone.Flag
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112
Name: Jeffrey L Romans on Oct 10, 2012Comments: I'm signing this petition for a very dear friendFlag
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113
Name: Tom Tringali on Oct 10, 2012Comments:Flag
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114
Name: Kim Chaffee on Oct 10, 2012Comments:Flag
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115
Name: Melissa Pike on Oct 10, 2012Comments: I suffer from TN too! We need more education & more solutions for everyone that suffers from TN.Flag
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116
Name: Avery Amante on Oct 10, 2012Comments: Full support!Flag
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117
Name: Lee on Oct 10, 2012Comments: I think it's very important to declare this important recognition of a terrible disorder that affects millions around the world. Known as the 'suicide disease', it is also the most painful disorder known to medical science as it involves the very nerves that send pain signals to the brain. The disorder causes those nerves to 'short circuit' and send pain signals to the brain when there is no actual cause to associate with the pain. I have lived with this disorder for more than 20 years, having suffered since my early 20s. Suffice it to say... I hate it. Please spread the word. Perhaps awareness will also lead to donations to universities and science labs concentrating on finding a cause and a cure. We all look forward to living pain-free, drug-free days with our families.Flag
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118
Name: Bronwyn Cowell on Oct 10, 2012Comments:Flag
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119
Name: Melissa Thomas on Oct 10, 2012Comments: I've seen the debilitating pain and unforeseen life changes TN can bring in the life of my best friend!Flag
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120
Name: Heidi Kinnear on Oct 10, 2012Comments:Flag
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121
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Heidi Hollett Kinnear on Oct 10, 2012
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122
Name: Teresa Palso on Oct 10, 2012Comments: I hope more research can go into this debilitating disorder!!Flag
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123
Name: Pepper Kanauz on Oct 10, 2012Comments:Flag
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124
Name: Pamela S. Elliott on Oct 10, 2012Comments:Flag
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125
Name: Amy M. Donachy on Oct 10, 2012Comments: i am so excited to hear about this! this awareness day is greatly needed!Flag
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126
Name: Adaku Mensah on Oct 10, 2012Comments:Flag
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127
Name: David MacLeod on Oct 10, 2012Comments: I have been struggling with this for the last five years and think that there needs to be more aware of this horrible condition.Flag
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128
Name: Samantha King on Oct 10, 2012Comments:Flag
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129
Name: Collette Lindal on Oct 10, 2012Comments: I have TN and ATN and other than the excruciating pain, the unawareness of it makes it very difficult for people to understand what you are going thru and how much it affects every moment of your life.Flag
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130
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Nikki Samuel on Oct 10, 2012
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131
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Jacqui Rowe on Oct 10, 2012
Comments: This is a condition that those of us that suffer with it should help make others aware and understand and even help the Drs. Not only that .. there should be support for our partners who don't also don't understand but have to put up with us in agony and on so much medication we get memory loss, sick, shaky and mood swings to name few. This condition is just so awful to the point the morphine doens't touch the pain.. that will give you some sort of glimpse to how it is... Please share and let others know so this condition can be made more aware and treated properly... I know I would be grateful.... if you want first hand knowledge on what an attack is like... message me.Flag -
132
Name: Laurel Thompson on Oct 10, 2012Comments: Less meds, more honest to goodness research on cause/relief. Add this condition to the list of disabilities that can receive disability insurance without having to fight for it in court.Flag
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133
Name: Sheila Leroux on Oct 10, 2012Comments: This is a great idea! So few people understand the pain of TNFlag
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134
Name: Leslie Thornton on Oct 10, 2012Comments:Flag
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135
Name: Laure Lind on Oct 10, 2012Comments:Flag
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136
Name: Elvira Buck on Oct 10, 2012Comments: I have been living with TN for 3 yes after a root canal. more aware of this before thu go of their moee morFlag
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137
Name: Muriel Lanford on Oct 10, 2012Comments: to acquire better recognition, treatment and understanding for this devastating diseaseFlag
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138
Name: Susan Moser on Oct 10, 2012Comments: Please Lord, let there be answers soon for my friend and people who suffer horribly with this.Flag
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139
Name: Mary Perkins on Oct 10, 2012Comments: I finally had MVD due to excruciating and unbearable pain.Flag
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140
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Cathy Brown on Oct 10, 2012
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141
Name: Jennifer Fagan on Oct 10, 2012Comments: we need more resarch done. people need know what it we going thought it sp hard wxplain sometimesFlag
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142
Name:
Marcy Fisher on Oct 10, 2012
Comments: my friend of 20+ years from school has this awfull,painfull Trigeminal Neuralgia she had a brain surgery which hasnt helped her :( .. a cure and research NEED TO BE DONEFlag -
143
Name: Mary Irvin on Oct 10, 2012Comments: I am so glad to get this out.. there are still so many people in the medical fields that have no clue of this.Flag
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144
Name: Amy Franklin on Oct 10, 2012Comments:Flag
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145
Name: Kathy Thompson on Oct 10, 2012Comments: We not only need to find a cure we need to find a way to better educate current doctors and future doctors about facial pain only trigeminal neuralgia but glossopharngeal,geniculate, occipital and vagal/superior laryngeal, neuralgia most doctors either do not know much about facial pain neuralgia or have not kept up with current information about it and do not understand how to treat it propely or diagnose it.Flag
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146
Name: Bil Steffler on Oct 10, 2012Comments:Flag
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147
Name: Emily Du Feu on Oct 10, 2012Comments:Flag
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148
Name: Carolyn Wyllie on Oct 10, 2012Comments: Oh this is just what we need!!! If we knew someone "famous" suffering with this condition, we might have a better chance at getting people to understand what we all go through!!!! Carolyn from London ON, CanadaFlag
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149
Name: Dawn Curphey on Oct 10, 2012Comments: Get the word out!Flag
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150
Name:
Sheila Leroux on Oct 10, 2012
Comments:Flag