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we did it and the who officially recognized trigeminal neuralgia on their health topics list. i wish we could celebrate with cori but i know this is going to change so much for everyone still fighting this pain. thank you for staying with me through all of this.

October 12, 2017

International Trigeminal Neuralgia Awareness Day October 7th!

International Trigeminal Neuralgia Awareness Day October 7th!

🏆 Won — 24,334 supporters Verified

Final supporters

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Gayla S.
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Jim a.
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Jackie R.
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Mila J.
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Christi M.
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Glynis T.
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Natalie W.
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CHARLES H.
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Harley L.
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Julie C.
+24,324 more
TI
Started by TNnME Intl TN Awareness Fighters 13 years, 9 months ago

Created and sponsored by TNnME (Trigeminal Neuralgia and Me) and the International TN Awareness Fighters, Caregivers, friends, and family from around the world.

This year campaign is dedicated to the memory of Cori Murdoch and all loved ones affected by this heart-breaking nerve pain condition.

People signing this petition are asking the World Health Organization (WHO) to add (TN) Trigeminal Neuralgia to their health topic list. By doing so it will expand awareness, grant access to further resources, and create opportunities for funding and research.

Also, people signing this petition are supporting October 7th as the official International Awareness Day for Trigeminal Neuralgia and Facial Pain Disorders.

TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve. The pain felt is the most excruciating known to man. This condition is so rare that only 1 in 20,000 people have it as some might say, but that number could be higher due to misdiagnosis. Women are more likely than men to be affected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs. old!

We must inform people of what Trigeminal Neuralgia is and its characteristic, symptoms & treatments.

Joining our voices together, we can be heard around the world!

NO $ needed for your signature on this petition just your name, email address, then hit the "Sign Now" button and close out.

The International TN Awareness Ribbon is available for your purchase, with funds going to the Facing Facial Pain Research Foundation to do research for a CURE.

Light Up Teal Hashtags!

#LightUpTeal #trigeminalneuralgia #FacialPainDisorders #TNTeal
#WHO #WHOHealthtopiclist

Updates

May 11, 2017

im honestly blown away by the response so far. seeing so many people rally for this cause shows just how much we all need the who to finally pay attention.

October 1, 2013

we just hit ten thousand signatures which is totally wild. seeing so many people get behind this for cori and everyone else living with this pain makes me so proud of this community. lets keep moving forward.

Reached 10,000 supporters

September 29, 2013

Reached 1,000 supporters

November 8, 2012

November 5, 2012

we are getting so near to 1000 signatures and it is honestly amazing to see this much support for our community. keep pushing this out to people because hitting that milestone will really help us get noticed by the who.

5,071 Comments

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Cindy Hirsch
7 years ago Featured

I am a TN patient and have failed most treatments. Most of my doctors don't even know about this dreadful condition. Please add TRIGEMINAL NEURALGIA to the health topic list so that we can get the funding and research needed to help save our lives.

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Scott Lapworth
10 years ago Featured

Too many people suffer with no other alternatives. My wife has exhausted all her options. I beg you, please recognize and support research for this horrendous affliction. I can't bear watching my wife scream and writhe in agony when it hits. Please

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Emmy Macnicol
10 years ago Featured

This disease is barbaric. But here in Scotland doctors are quite frankly clueless! I have had this condition for ten years. I am 24. And I need treatment in the USA because a rarer form - geniculate neuralgia - affects me also. Doctors must be educated!

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Brenda Meadows
10 years ago Featured

When I took my husband to the emergency room with a flare up of Trigeminal neuralgia they had never heard of this and did not even know how to spell it. This is frustrating for the patient and caregivers as we try to find immediate relief for the pain.

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Gemma Donohoe
11 years ago Featured

My family have been living with me & my TN for over 5 years now. My kids would like their mum back, my husband would like his wife back. I just want to do simple things again without having to ask for help. Please WHO, add TN to your Health Topics list.

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Katherine Duke
11 years ago Featured

I was just diagnosed with TN this week. I've never heard of it before now which illustrate the need for awareness to be brought to the forefront of media and physicians so we can get the care that is desperately needed to go into each day ahead of us.

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Mila Johnston
1 year ago

We all miss you, Cori. I think of you all the time

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Glynis Trevena
1 year ago

I have TN. For 8 years now.

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