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International Trigeminal Neuralgia Awareness Day October 7th!

TNnME Intl TN Awareness Fighters
TNnME Intl TN Awareness Fighters Worldwide
21,410 Signatures Goal: 30,000

Created and Sponsor by TNnME (Trigeminal Neuralgia and Me) and the International TN Awareness Fighters around the world.

We're asking the World Health Organization (WHO): To take action regards to Trigeminal Neuralgia, ALL Neuralgias, and Facial Pain Disorders by adding Trigeminal Neuralgia to their "Health Topics" list.

This year awareness campaign is dedicated Research 4 a CURE: Trigeminal Neuralgia and Facial Pain Disorders. By adding Trigeminal Neuralgia to your health topic list, this will also open doors for all neuralgia and facial pain disorders! It will create awareness, access to resources and create opportunities for funding & research.

TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve. The pain felt is the most excruciating known to man. This condition is so rare that only 1 in 20,000 people have it as some might say, but that number could be higher due to misdiagnosis. Women are more likely than men to be affected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs. old!

People signing this petition are supporting Oct. 7th as the official International Awareness Day for Trigeminal Neuralgia and Facial Pain Disorders and asking (WHO) to add Trigeminal Neuralgia to their “Health Topic List”

We must inform people of what Trigeminal Neuralgia is, it's characteristic, symptoms & treatments. Joining our voices together, we can be heard around the world!

NO $ needed for your signature on this petition just your name, email address, then hit the "Sign Now" button and close out. Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!

http://www.fpa-support.org/for online facial pain support

The International TN Awareness Ribbon is available for your purchase, with funds going to the above Facial Pain Association and the below Facing Facial Pain Research Foundation to do research for a CURE.

Sponsor

Tnnme.com and Trigeminal Neuralgia Awareness Fighters. contact: tnnme and the awareness fighters at: tnawareness@gmail.com

Links


TNNME


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Highlights

May 31
The Facial Pain Research Foundation, TNnME and the International Trigeminal Neuralgia Awareness Fighters give thanks to all those that are participating in the 2015 "Light Up Teal" the 3rd Annual International Trigeminal Neuralgia Awareness Day on October 7th 2015. This year awareness campaign is dedicated to the Children and Teens with Trigeminal Neuralgia and Facial Pain Disorders.
August 6
The International Trigeminal Neuralgia Awareness Fighters give thanks to all those that are participating in the 2014 "Light Up Teal" 2nd Annual International Trigeminal Neuralgia Awareness Day on October 7th 2014! Please see: http://www.tnnme.com/2014-light-up-teal.html
  • Sharon mcdermott
    Sharon mcdermott United States, Bronx
    Aug 25, 2016
    Aug 25, 2016
    Newly diagnosed
  • Beth Cochran
    Beth Cochran United States, Mattapan
    Aug 24, 2016
    Aug 24, 2016
    It took me close to three years, many doctors, and traveling out of state to finally be diagnosed with Trigeminal Neuralgia. Most doctors where I lived previously had no idea about the infliction. This has to changed! TN needs more recognition, and funding for research.
    I am a survivor, and I intend to stay that way!
    For all who have TN and are reading this, I have found an off-label medication that has helped me significantly (it may help you too) it's called Namenda. Please research it and talk to your doctor. I really think it could help a lot of people, which is why I'm posting it here. Too all those fighting TN I send you my love, keep up the hope that one day we will find a cure.
  • marilyn evans
    marilyn evans Australia, Bankstown
    Aug 24, 2016
    Aug 24, 2016
    i really would like to know why Australia is not listed
  • Kristin Tilley
    Kristin Tilley United States, Beaufort
    Aug 24, 2016
    Aug 24, 2016
    Diagnosed with TN 3 month ago. Worst pain I have ever imagined, and I have given birth.
    More need to be done to help us with pain and medical financial support. Research is essential to our lives!
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Signatures

  • 30 minutes ago
    Chris Tamayo United States
    30 minutes ago
  • 3 hours ago
    Maricruz Mendez United States
    3 hours ago
  • 5 hours ago
    Sharon mcdermott United States
    5 hours ago
  • 5 hours ago
    David jukes Canada
    5 hours ago
  • 17 hours ago
    CRYSTAL REMALY United States
    17 hours ago
  • 20 hours ago
    Tim Cosover United States
    20 hours ago
  • 1 day ago
    Katie Perry LOUBIER United States
    1 day ago
  • 1 day ago
    Beth Cochran United States
    1 day ago
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    marilyn evans Australia
    2 days ago
  • 2 days ago
    Sue-Ann Dunlop United States
    2 days ago
  • 2 days ago
    Kristin Tilley United States
    2 days ago
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    Kristen VanderSande United States
    2 days ago
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    Angela Chang United States
    2 days ago
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    Tiffany Tyler United States
    2 days ago
  • 2 days ago
    Jacqueline benson Australia
    2 days ago
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