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International Trigeminal Neuralgia Awareness Day October 7th!

TNnME Intl TN Awareness Fighters
TNnME Intl TN Awareness Fighters Worldwide
21,834 Signatures Goal: 30,000

Created and Sponsor by TNnME (Trigeminal Neuralgia and Me) and the International TN Awareness Fighters around the world.

We're asking the World Health Organization (WHO): To take action regards to Trigeminal Neuralgia, ALL Neuralgias, and Facial Pain Disorders by adding Trigeminal Neuralgia to their "Health Topics" list.

This year awareness campaign is dedicated Research 4 a CURE: Trigeminal Neuralgia and Facial Pain Disorders. By adding Trigeminal Neuralgia to your health topic list, this will also open doors for all neuralgia and facial pain disorders! It will create awareness, access to resources and create opportunities for funding & research.

TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve. The pain felt is the most excruciating known to man. This condition is so rare that only 1 in 20,000 people have it as some might say, but that number could be higher due to misdiagnosis. Women are more likely than men to be affected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs. old!

People signing this petition are supporting Oct. 7th as the official International Awareness Day for Trigeminal Neuralgia and Facial Pain Disorders and asking (WHO) to add Trigeminal Neuralgia to their “Health Topic List”

We must inform people of what Trigeminal Neuralgia is, it's characteristic, symptoms & treatments. Joining our voices together, we can be heard around the world!

NO $ needed for your signature on this petition just your name, email address, then hit the "Sign Now" button and close out. Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!

http://www.fpa-support.org/for online facial pain support

The International TN Awareness Ribbon is available for your purchase, with funds going to the above Facial Pain Association and the below Facing Facial Pain Research Foundation to do research for a CURE.

Sponsor

Tnnme.com and Trigeminal Neuralgia Awareness Fighters. contact: tnnme and the awareness fighters at: tnawareness@gmail.com

Links


TNNME


3

Highlights

September 3
On October 7th, 2016 over 100 World Monuments, Buildings and Bridges will “Light Up Teal” in support of Trigeminal Neuralgia and all Facial Pain Disorders. For list of participates please follow this link: 2016 Light Up Teal for TN and please join us on all social media and TNnME web-site to spread awareness and fundraising for Trigeminal Neuralgia and Facial Pain Disorders.
May 31
The Facial Pain Research Foundation, TNnME and the International Trigeminal Neuralgia Awareness Fighters give thanks to all those that are participating in the 2015 "Light Up Teal" the 3rd Annual International Trigeminal Neuralgia Awareness Day on October 7th 2015. This year awareness campaign is dedicated to the Children and Teens with Trigeminal Neuralgia and Facial Pain Disorders.
August 6
The International Trigeminal Neuralgia Awareness Fighters give thanks to all those that are participating in the 2014 "Light Up Teal" 2nd Annual International Trigeminal Neuralgia Awareness Day on October 7th 2014! Please see: http://www.tnnme.com/2014-light-up-teal.html

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  • Richard Smith
    Richard Smith United Kingdom, Camberley
    Sep 26, 2016
    Sep 26, 2016
    For our pains sake it is time for some positive moves forward.
  • Sharon
    Sharon United Kingdom, Leicester
    Sep 26, 2016
    Sep 26, 2016
    I also suffer thus desease
  • Debra Keeler
    Debra Keeler United States, Orange
    Sep 26, 2016
    Sep 26, 2016
    I have several friends with this horrible disease!
  • Russell Boles
    Russell Boles United States, Oxford
    Sep 26, 2016
    Sep 26, 2016
    Ive been suffering with this demon called Trigeminal Neuralgia for 9 years. Ive had 2 Microvascualr Decompressions, 2 cyberknife treatments, 2 gamma knife procedures, 5 radiation treatments, dozens of nerve blocks, 2 rhizotomies, over 250 trips to the ER, been on every seizure medication, ( Neuronton, Topamax, Tegretol, Depakote, Carbatrol,, Dilantin, Trileptal, Zonegran). Ive been on Prozac, Indomethacin, Kadien, Endocet, Exalgo, morphine lolipops, fentanyl patches, oxycontin, oxycodone, dilaudid, marinol. And absolutely NOTHING has helped my pain. I'm in pain6 days out of 7 a week. Maybe once every 3 months or so, I can get 2 days without being in pain. Somebody please help us!!!! If you can put a man on the moon, then SURELY you can find a cure for this disease.
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    Rai India
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    Meg Meaher United States
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    Rekha bajpe India
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    Richard Smith United Kingdom
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    Sharon United Kingdom
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