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International Trigeminal Neuralgia Awareness Day October 7th!

TNnME Intl TN Awareness Fighters
TNnME Intl TN Awareness Fighters Worldwide
20,970 Signatures Goal: 30,000

Created and Sponsor by TNnME (Trigeminal Neuralgia and Me) and the International TN Awareness Fighters around the world.

We're asking the World Health Organization (WHO): To take action regards to Trigeminal Neuralgia, ALL Neuralgias, and Facial Pain Disorders by adding Trigeminal Neuralgia to their "Health Topics" list.

This year awareness campaign is dedicated Research 4 a CURE: Trigeminal Neuralgia and Facial Pain Disorders. By adding Trigeminal Neuralgia to your health topic list, this will also open doors for all neuralgia and facial pain disorders! It will create awareness, access to resources and create opportunities for funding & research.

TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve. The pain felt is the most excruciating known to man. This condition is so rare that only 1 in 20,000 people have it as some might say, but that number could be higher due to misdiagnosis. Women are more likely than men to be affected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs. old!

People signing this petition are supporting Oct. 7th as the official International Awareness Day for Trigeminal Neuralgia and Facial Pain Disorders and asking (WHO) to add Trigeminal Neuralgia to their “Health Topic List”

We must inform people of what Trigeminal Neuralgia is, it's characteristic, symptoms & treatments. Joining our voices together, we can be heard around the world!

NO $ needed for your signature on this petition just your name, email address, then hit the "Sign Now" button and close out. Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!

http://www.fpa-support.org/for online facial pain support

The International TN Awareness Ribbon is available for your purchase, with funds going to the above Facial Pain Association and the below Facing Facial Pain Research Foundation to do research for a CURE.

Sponsor

Tnnme.com and Trigeminal Neuralgia Awareness Fighters. contact: tnnme and the awareness fighters at: tnawareness@gmail.com

Links


TNNME


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Highlights

May 31
The Facial Pain Research Foundation, TNnME and the International Trigeminal Neuralgia Awareness Fighters give thanks to all those that are participating in the 2015 "Light Up Teal" the 3rd Annual International Trigeminal Neuralgia Awareness Day on October 7th 2015. This year awareness campaign is dedicated to the Children and Teens with Trigeminal Neuralgia and Facial Pain Disorders.
August 6
The International Trigeminal Neuralgia Awareness Fighters give thanks to all those that are participating in the 2014 "Light Up Teal" 2nd Annual International Trigeminal Neuralgia Awareness Day on October 7th 2014! Please see: http://www.tnnme.com/2014-light-up-teal.html
  • Dawnae Brecker
    Dawnae Brecker United States, Warren
    Jul 24, 2016
    Jul 24, 2016
    I was diagnosed 4 months ago
  • William Edward Arthur Hinkle
    William Edward Arthur Hinkle United States, Portland
    Jul 23, 2016
    Jul 23, 2016
    Had TN for almost 32 years, for the first part or until Obama care kicked in it was considered a "pre-existing condition" you couldn't be insured and if potential employers can't insure you you can't get a job, since your condition is not visible social service and other self appointed judges of humanity assume that you are "faking" and should be treated like other social outcasts that fail to prove their failure to be a part of society and due all the things normal people do. My pain and the inability to gain employment caused my wife and I to do a role reversal (having never had brothers the idea of raising three sons also influenced her decision) She worked for
    Oregon State radiation control with all the benefits for 15 years, I started out raising 4 kids, doing the house work, dealing with schools doctors, cooking and making sure the family had clean clothes {laundry detail), lunches and all the things they needed to get through each day at work, in school or when friends came over. (4 kids the last 3 a year apart meant 4 teenagers of my own and half the kids in the neighborhood 3 athletic sons and a good looking daughter my my house the hangout. Parents would call to see if their kids were there and hang up; they didn't want their kids to come home they just wanted to check-in; they figured if the kids were at my house they weren't getting in trouble. The reverse prejudice included a food stamp worker when my wife first started working- I had 3 kids in diapers and a 7 year old son playing pack mule with the bottles and diaper bags; when I explained I was recovering from a motor cycle versus a car wreck and my wife new job wasn't paying much she asked "Don't You work?" I a male had asked a woman in my position that question he would have had his head handed back to him a a sexist pig the didn't appreciate what the job of housewife required. School teachers and social workers assumed I was a dead beat husband and father never taking the time to ask why Chris and I chose our lifestyle and when we tried to explain they assumed my behavior was not 'normal" and I was abusing my wife and my kids by taking advantage of them. They never had to prove anything and their evidence was hidden behind the "Protect the innocent" banner, for 10 years we dealt with them attempting to break us up, grabbing our kids for reasons they never explained, constantly going through the neighborhood and calling employers; asking if anyone had heard any rumors about our family. Those neighbors and friends always started ou saying 'They wouldn't do that for no reason' making us guilty because the government would only say "We aren't allowed to talk to protect the innocent" A psychologist told my wife to divorce me because I didn't have normal goals and when she refused to speak to him unless I was present he filed a report to the courts accusing me of mentally dominating her. We decided since he w working on his fourth wife at the time his marital advice wasn't worth it. We just celebrated our 44th anniversary with 4 kids and 9 grandkids but we still got asked why we were always in trouble with CSD (it's on our records and the web. Their reaction to my behavior because of TN was to accuse me of drug abuse and an aggressive personality. Their excuse is they didn't understand what TN was (they didn't ask) but maybe if there was more information then maybe others won't have to deal with what we went through.
  • Kristi Hunter
    Kristi Hunter United States, Forney
    Jul 21, 2016
    Jul 21, 2016
    Please help find a cure or at least relief. My like has been completely changed forever!!!!
  • Anais Godard
    Anais Godard United States, Los Angeles
    Jul 20, 2016
    Jul 20, 2016
    Please help us find a cure. Nobody should have to live their life in such pain...
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Signatures

  • 1 hour ago
    Wendy Russell United Kingdom
    1 hour ago
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    Dawnae Brecker United States
    7 hours ago
  • 9 hours ago
    Shalee Bridwell United States
    9 hours ago
  • 16 hours ago
    Elizabeth Argentina
    16 hours ago
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    Jesse Anderson United States
    17 hours ago
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    Tammy Tolbert United States
    1 day ago
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    Dina Fenn United States
    1 day ago
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    William Edward Arthur Hinkle United States
    1 day ago
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    Nick gummer United Kingdom
    3 days ago
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    Joan Triplett United States
    3 days ago
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    terrry venicombe United States
    3 days ago
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    Emma Henriques France
    3 days ago
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    Lori Brown United States
    3 days ago
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    Cindy Mathers United States
    4 days ago
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    Kristi Hunter United States
    4 days ago
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