Created and Sponsor byTNNME Trigeminal Neuralgia andMe www.tnnme.com/
We're asking the World Health Organization (WHO): To take action on Trigeminal Neuralgia(aka "TN" "Suicide Disease") & Facial Pain Disorders! Please add Trigeminal Neuralgia to the "Health Topics" list.
TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve. The pain felt is the most excruciating known to man, Hence why it is called the "Suicide Disease".
This condition is so rare that only 1 in 20,000 people have it. But that number could be higher due to misdiagnosis. Women than man are more likely to be effected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs old!
By WHO adding TN to their list of illnesses which can expand awareness, access to resources and create opportunities for funding & research.
People signing this petition are supporting Oct. 7th 2014 as the 2nd Official International Awareness Day for Trigeminal Neuralgia.
We must inform people of what TN is, it'scharacteristic,symptoms & treatments.
Joining our voices together, we can be heard around the world!
NO $$ needed for your signature on this petition just your name, personal email then hit the "Sign Now" button and close out.
Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!
http://www.fpa-support.org/for online facial pain support
The International TN Awareness Ribbon is now available for your purchase, with funds going to the above Facial Pain Association and the below Facing Facial Pain Research Foundation to do research for a CURE.
http://www.facingfacialpain.org/the TN & Facial Pain Disorder Research Foundation
JEUNON Marie Jeanne
Avec tous mes souhaits de réussite à cette pétition qui pourra peut faire bouger le monde médical
I have had Trigeminal Neuralgia since 2008. I had an Acoustic Neuroma removed in 2008 and they could not save my 7th cranial nerve. I have been dealing with it since and no relief. My neurologist tried a shot in the neck but it did not help. I did the research on this and presented it to my neurologist. He thought it could be possible, but he is now sure I have it. Doctors need to be more educated and more studies need to be done to reconnect these nerves and reduce the pain!!
More people need to know about trigeminal neuralgia and more $$ need to be raised to help find a cure or a reasonable treatment.
Michael Lehr, Berlin, Germany8 hours ago
Richard Brown, Ocoee, FL, United States9 hours ago
Susan Brown, Ocoee, FL, United States9 hours ago
There are no highlights yet.