Created and Sponsor by TNnME(TrigeminalNeuralgia and Me)
We're asking theWorld Health Organization (WHO): To take action onTrigeminal Neuralgia, ALL Neuralgia (aka "TN" "Suicide Disease") &Facial Pain Disorders!
Please add Trigeminal Neuralgia to the "Health Topics" list.
By adding Trigeminal Neuralgia to your health topic list this will also open doors for all neuralgia and facial pain disorders!
It will create awareness, access to resources and create opportunities for funding & research.
is...characterized by episodes of intense pain in the face originating from the
Trigeminal Nerve. The pain felt is the most excruciating known to man, Hence
why it is called the "Suicide Disease".
This condition is so rare that only 1 in 20,000 people have it. But that number could be higher due to misdiagnosis. Women than man are more likely to be effected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs old!
People signing this petition are supportingOct. 7th as the official International Awareness Dayfor Trigeminal Neuralgia and Facial Pain Disorders.
We must inform people of what TN is, it's characteristic, symptoms & treatments.
Joining our voices together, we can be heard around the world!
NO $$ needed for your signature on this petition just your name, email address, then hit the "Sign Now" button and close out.
Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!
http://www.fpa-support.org/for online facial pain support
The International TN Awareness Ribbon is available for your purchase, with funds going to the above Facial Pain Association and the below Facing Facial Pain Research Foundation to do research for a CURE.
http://www.facingfacialpain.org/the TN & Facial Pain Disorder Research Foundation
I suffer from Atypical Trigeminal Neuralgia. My mother and my great-grandmother suffered from Type I Trigeminal Neuralgia.
There is a serious lack of knowledge in the medical community about this disorder, especially in the dental field, which is the first line of defense. Many sufferers end up in the dental chair and under go many unnecessary and expensive procedures only to be left in more pain and with no answers.
More awareness will hopefully bring more research which may help many of us who could use hope for a cure.
My wife has been suffering with TN for years. It has changed everything in her life, especially family and friends. She is the strongest person I know, she is my hero !!!!!
Sean Danowskijust now Comments: My mother has been suffering from TN for over two years now, been through countless appointments, diagnoses, etc. She keeps fighting!
Mariellen Eslerjust now Comments: -
Stephen Figueroajust now Comments: Thank you to all those that signed the petition. I'm happy to help with anything that helps build awareness for this terrible condition.
- The International Trigeminal Neuralgia Awareness Fighters give thanks to all those that are participating in the 2014 "Light Up Teal" 2nd Annual International Trigeminal Neuralgia Awareness Day on October 7th 2014! Please see: http://www.tnnme.com/2014-light-up-teal.html