Created and Sponsor by TNnME(TrigeminalNeuralgia and Me)
We're asking theWorld Health Organization (WHO): To take action onTrigeminal Neuralgia, ALL Neuralgia (aka "TN" "Suicide Disease") &Facial Pain Disorders!
Please add Trigeminal Neuralgia to the "Health Topics" list.
By adding Trigeminal Neuralgia to your health topic list this will also open doors for all neuralgia and facial pain disorders!
It will create awareness, access to resources and create opportunities for funding & research.
is...characterized by episodes of intense pain in the face originating from the
Trigeminal Nerve. The pain felt is the most excruciating known to man, Hence
why it is called the "Suicide Disease".
This condition is so rare that only 1 in 20,000 people have it. But that number could be higher due to misdiagnosis. Women than man are more likely to be effected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs old!
People signing this petition are supportingOct. 7th as the official International Awareness Dayfor Trigeminal Neuralgia and Facial Pain Disorders.
We must inform people of what TN is, it's characteristic, symptoms & treatments.
Joining our voices together, we can be heard around the world!
NO $$ needed for your signature on this petition just your name, email address, then hit the "Sign Now" button and close out.
Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!
http://www.fpa-support.org/for online facial pain support
The International TN Awareness Ribbon is available for your purchase, with funds going to the above Facial Pain Association and the below Facing Facial Pain Research Foundation to do research for a CURE.
http://www.facingfacialpain.org/the TN & Facial Pain Disorder Research Foundation
I suffer from Atypical Trigeminal Neuralgia. My mother and my great-grandmother suffered from Type I Trigeminal Neuralgia.
There is a serious lack of knowledge in the medical community about this disorder, especially in the dental field, which is the first line of defense. Many sufferers end up in the dental chair and under go many unnecessary and expensive procedures only to be left in more pain and with no answers.
More awareness will hopefully bring more research which may help many of us who could use hope for a cure.
My wife has been suffering with TN for years. It has changed everything in her life, especially family and friends. She is the strongest person I know, she is my hero !!!!!
Bonnie Cohenjust now Comments: I am 44 and have been dealing with Trigeminal Neuralgia for 2 years, always changing medication due to getting extremely I'll or they stop working. It is on the left side of my face & in my left eye. I am not a surgical candidate and this is the worst pain I have ever felt in my entire life! I never know when the pain will start. Chewing & talking seem to bring on episodes now so I have been on a liquid diet! It's depressing and isolating! I am so sedated on my current medication I can't drive or work. I want my life back, driving working and being social. I had a craniotomy 2 1/2 years ago for a brain tumor which left a huge incision, that unfortunately is tender & painfull. This is from my right ear to just past the center of my skull. So there are times that my entire skull hurts especially in these brutal NY winters. I try to smile or laugh through the pain but when the doors are closed I cry or scream from the pain and feel isolated! I am a artist and left handed, but since brain surgery have tremors in my left hand which sometimes makes simple tasks like writing or using utensils difficult. I can get past most of that except this aweful dibitating pain of Trigeminal Neuralgia!! The Pain is so debilitating! Use to be called the "suicide disease " and I can see why. However, it should never come to this ever!!! We need to find a cure. So please come together with all of us on October 7th " National Trigiminal Neurelgia Awareness Day!" The more people that know about this invisible disease, the more research with be done to find a cure! Only 1 in 20,000 of us unlucky people are inflicted by this pain disorder
Christine Cohenjust now Comments: -
Vanessa Bayonetjust now Comments: I suffer from this horrible disease. Not enough knowledge o research is being done to find a cure for this extremely painful disorder. Awareness is needed to stop this horrendously painful disorder.
- The International Trigeminal Neuralgia Awareness Fighters give thanks to all those that are participating in the 2014 "Light Up Teal" 2nd Annual International Trigeminal Neuralgia Awareness Day on October 7th 2014! Please see: http://www.tnnme.com/2014-light-up-teal.html