Created and Sponsor byTNNME Trigeminal Neuralgia andMe www.tnnme.com/
We're asking the World Health Organization (WHO): To take action on Trigeminal Neuralgia(aka "TN" "Suicide Disease") & Facial Pain Disorders! Please add Trigeminal Neuralgia to the "Health Topics" list.
TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve. The pain felt is the most excruciating known to man, Hence why it is called the "Suicide Disease".
This condition is so rare that only 1 in 20,000 people have it. But that number could be higher due to misdiagnosis. Women than man are more likely to be effected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs old!
By WHO adding TN to their list of illnesses which can expand awareness, access to resources and create opportunities for funding & research.
People signing this petition are supporting Oct. 7th 2014 as the 2nd Official International Awareness Day for Trigeminal Neuralgia.
We must inform people of what TN is, it'scharacteristic,symptoms & treatments.
Joining our voices together, we can be heard around the world!
NO $$ needed for your signature on this petition just your name, personal email then hit the "Sign Now" button and close out.
Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!
http://www.fpa-support.org/for online facial pain support
The International TN Awareness Ribbon is now available for your purchase, with funds going to the above Facial Pain Association and the below Facing Facial Pain Research Foundation to do research for a CURE.
http://www.facingfacialpain.org/the TN & Facial Pain Disorder Research Foundation
I am close to the end of my fight I had ghamma radiation no help MVD made it worse spinal stimulstor no help moto cortex stimulstor on my brain worked perfect 4 months then it gave me seizures I have been on meds so long I have a high tolerance winter very bad for me but with FDA crack down no doc will help me now to severe a case the pain clinics tell me I may have a deep brain stimulator put in if I can last long enough to get it since I cant get pain releif anymore I am in hospital now admitted maybe 5 days most for pain rekeif but I cant live here and every night I am screaming in tears I have a 23 and 26 yr old who adore me I want to see her get her masters I want to see my grandkids I dont want to die but I font want to live like this animals who suffer we put down arent I better than an animal? I need help I cant find in chicago NW burbs rju212@yahoo
I have had this 11 years caused from an assualt have had many surgeries fail I am at top of what can b rx for me I am in hospt now 4 pain control cant live in hospt I have little hope I can live much longer I have kids who love me but the pain is getting to great w/ no help
I was diagnosed this year in September after seeing specialist after specialist for months and the usual MRI's. I have a very supportive husband who is continuously researching and seeking alternative medications etc and has just recently ordered a concoction of herbal medications from America in hope to give me some relief. People who don't understand or who haven't experienced the pain of TN don't realise how much it changes your life and that the simple things in life like brushing your teeth or eating/drinking become an event to be dreaded. We can only hope for research, funding and ultimately a cure.
James Twigg, Palm Bay, FL, United Statesjust now
Andrea , London, United Kingdom7 hours ago
Rene Urbanek, Winfield, IL, United States7 hours ago
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