Created and Sponsor byTNNME Trigeminal Neuralgia andMe www.tnnme.com/
We're asking the World Health Organization (WHO): To take action on Trigeminal Neuralgia(aka "TN" "Suicide Disease") & Facial Pain Disorders! Please add Trigeminal Neuralgia to the "Health Topics" list.
TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve. The pain felt is the most excruciating known to man, Hence why it is called the "Suicide Disease".
This condition is so rare that only 1 in 20,000 people have it. But that number could be higher due to misdiagnosis. Women than man are more likely to be effected. Usually those older than 50 are diagnosed, but you can have it as young as 3 yrs old!
By WHO adding TN to their list of illnesses which can expand awareness, access to resources and create opportunities for funding & research.
People signing this petition are supporting Oct. 7th 2014 as the 2nd Official International Awareness Day for Trigeminal Neuralgia.
We must inform people of what TN is, it'scharacteristic,symptoms & treatments.
Joining our voices together, we can be heard around the world!
NO $$ needed for your signature on this petition just your name, personal email then hit the "Sign Now" button and close out.
Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!
http://www.fpa-support.org/for online facial pain support
The International TN Awareness Ribbon is now available for your purchase, with funds going to the above Facial Pain Association and the below Facing Facial Pain Research Foundation to do research for a CURE.
http://www.facingfacialpain.org/the TN & Facial Pain Disorder Research Foundation
I suffer from TN myself, it is livening hell.
Should be easier to get help for SSD- I still can't get approved but yet my friend did for irritable bowel??? My brain is suffering everyday! I can't function most hours, my life is hell
I had this and eventually after going private I found an extremely good neurologist. He wasn't sure what exactly was wrong with me at the time as I was in so much pain.
My symptoms escalated over a month from a random pain every 3-4 hours until I was in constant pain. I was misdiagnosed everytime, in A&E constantly, not sleeping, not eating and had a hopeless feeling of never getting rid of this pain. I had seen over 20 doctors, an optician and 2 dentists. I had almost given up hope and got down on my knees one night in the middle of the hospital begging to be put in acoma. I asked my own dad to hit me with a spade. If I hadn't of found a temp cure I would have taken my own life. This is a real disease, and should be taken seriously. This affects real lives, and people do not believe you really have this invisable pain. The doctors made me feel like I was lying.
Thankfully I only have pain every now and then from permanent scaring in the back of my left eye. I live in fear that this disease will return and destroy my life again.
Please take action! This is real. This destroys lives. It hurts families and people live in fear of not knowing why.
larry fiasco, Irwin, PA, United Statesjust now
Judy Scott, Asheboro, NC, United Statesjust now
catherine koester, Lake Geneva, WI, United Statesjust now
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