Join the Simon Ibell Petition for Hunter Syndrome (MPS II) Treatment

Signatures 908 total

Page: 1, 2, 3, 4, ... 19 › »

1. 1
   Name: Sebastian on Aug 4, 2008

   Comments:

   Flag
2. 2
   Name: Simon Ibell on Aug 6, 2008

   Comments:

   Flag
3. 3
   Name: Charles Pitts on Aug 7, 2008

   Comments:

   Flag
4. 4
   Name: Steve Nash on Aug 10, 2008

   Comments:

   Flag
5. 5
   Name: Kelly Huot on Aug 12, 2008

   Comments:

   Flag
6. 6
   Name: Bobbie Gardiner on Aug 12, 2008

   Comments:

   Flag
7. 7
   Name: Philippe Bedard on Aug 12, 2008

   Comments: It's about time that administrators woke up and smelled the coffee for the citizens of Ontario that live with rare diseases. The usual population-based health outcome metrics simply don't apply. If we're serious about upholding the principles of justice and equality that underlie the Canadian health care system, we need to put our money where out mouth is and afford Ontarians with rare diseases the access to quality-of-life enhancing treatments that they deserve.

   Flag
8. 8
   Name: Olivia Ibell on Aug 12, 2008

   Comments:

   Flag
9. 9
   Name: Anthony De Silva on Aug 12, 2008

   Comments:

   Flag
10. 10
    Name: Lee Rixon on Aug 12, 2008

    Comments:

    Flag
11. 11
    Name: Mark Brender on Aug 12, 2008

    Comments:

    Flag
12. 12
    Name: Andrew Scanlan on Aug 12, 2008

    Comments:

    Flag
13. 13
    Name: Shelly on Aug 12, 2008

    Comments:

    Flag
14. 14
    Name: Kirsten on Aug 12, 2008

    Comments:

    Flag
15. 15
    Name: David Robinette on Aug 12, 2008

    Comments:

    Flag
16. 16
    Name: Michael Armstrong on Aug 12, 2008

    Comments:

    Flag
17. 17
    Name: Heather Connor on Aug 12, 2008

    Comments:

    Flag
18. 18
    Name: Carmen on Aug 12, 2008

    Comments:

    Flag
19. 19
    Name: Alex Austin on Aug 12, 2008

    Comments: I am petitioning to you in support of my good friend Simon Ibell who is one of the few extremely unfortunate citizens of this province who are afflicted with MPS II Hunter Syndrome. I have known Simon since early childhood and have seen the debilitating effects of this disease. From his earliest years he has known much pain and suffering, finding extreme difficulty and frustration in the ordinary activities of life. Recently he has seen a remarkable improvement in his health thanks to a weekly enzyme replacement infusion of Elaprase. This treatment stops the progression of MPS II Hunter Syndrome. Unfortunately Canadians with rare diseases, such as MPS II, are fighting a constant battle when it comes to funding of treatments like Elaprase, as well as providing funding for research into new treatments/cures: approval does NOT guarantee funding. Even though Elaprase is approved by Health Canada for availability, it far from guarantees a Canadian MPS II patient access to the drug. The Ontario Ministry of Health refuses to pay for treatment, currently Simon is receiving treatment on a compassionate use basis from Shire, the pharmaceutical company. However the real tragedy is the five other young patients in Ontario are not receiving Elaprase at all so MPS II progresses in their bodies. Please consider their plight and those of other Canadians who are afflicted with rare disorders for which there are treatments, but not the economies of scale or visibility of scale to make them poignant to those who administer policy. Sincerely Alexander Austin

    Flag
20. 20
    Name: Caroline De Silva on Aug 12, 2008

    Comments:

    Flag
21. 21
    Name: Caroline De Silva on Aug 12, 2008

    Comments:

    Flag
22. 22
    Name: Heather Preiss on Aug 12, 2008

    Comments:

    Flag
23. 23
    Name: Navroop Bhandal on Aug 12, 2008

    Comments:

    Flag
24. 24
    Name: Tim Maloney on Aug 12, 2008

    Comments:

    Flag
25. 25
    Name: Sean Kondra on Aug 12, 2008

    Comments:

    Flag
26. 26
    Name: Tania Wybenga on Aug 12, 2008

    Comments:

    Flag
27. 27
    Name: Jeff McCracken on Aug 12, 2008

    Comments:

    Flag
28. 28
    Name: Heather Hamilton on Aug 12, 2008

    Comments:

    Flag
29. 29
    Name: Chandra Gunther on Aug 12, 2008

    Comments:

    Flag
30. 30
    Name: David Wilson on Aug 12, 2008

    Comments: Simon has been a great friend of mine for 15 years and he has never complained regarding his disease or the political conditions surrounding his treatment. However, this is a great push by Simon and Mr. Nash to change the current condition. I give them my full support for Simon and any others in Ontario suffering from the same disease. Good luck.

    Flag
31. 31
    Name: Peter Bonch on Aug 12, 2008

    Comments:

    Flag
32. 32
    Name: Jill Newsome on Aug 12, 2008

    Comments:

    Flag
33. 33
    Name: Andrew Chisholm on Aug 12, 2008

    Comments:

    Flag
34. 34
    Name: Tiffany Pritchett on Aug 12, 2008

    Comments: I fully support this petition. Simon has been a person that will always be dear to my heart. With the high cost of treatment, so many families in the US depend on the gov't and special prorgrams for assistance - and I cannot imagine not even having the option for treatment.

    Flag
35. 35
    Name: Deirdre Snelgrove on Aug 12, 2008

    Comments:

    Flag
36. 36
    Name: Deirdre Snelgrove on Aug 12, 2008

    Comments:

    Flag
37. 37
    Name: Patrick Cooke on Aug 12, 2008

    Comments:

    Flag
38. 38
    Name: Tye Spicer on Aug 12, 2008

    Comments:

    Flag
39. 39
    Name: Deborah Woods on Aug 12, 2008

    Comments:

    Flag
40. 40
    Name: Julian Taylor on Aug 12, 2008

    Comments: Good Luck to ALL!

    Flag
41. 41
    Name: Mark Kennedy on Aug 12, 2008

    Comments:

    Flag
42. 42
    Name: Suresh Kanthasamy on Aug 12, 2008

    Comments:

    Flag
43. 43
    Name: Nekky Jamal on Aug 12, 2008

    Comments:

    Flag
44. 44
    Name: Ben Peterson on Aug 12, 2008

    Comments:

    Flag
45. 45
    Name: Allana Harkin on Aug 12, 2008

    Comments:

    Flag
46. 46
    Name: Umesh on Aug 12, 2008

    Comments:

    Flag
47. 47
    Name: Anonymous on Aug 12, 2008

    Comments:

    Flag
48. 48
    Name: Anonymous on Aug 12, 2008

    Comments:

    Flag
49. 49
    Name: Anonymous on Aug 12, 2008

    Comments:

    Flag
50. 50
    Name: Anonymous on Aug 12, 2008

    Comments:

    Flag

Page: 1, 2, 3, 4, ... 19 › »