Petition For More Research, Awareness, Training For Med School Students & Doctors For Chronic Pelvic Pain Frequently Caused By Pudendal Neuralgia/PNE

Signatures 749 total

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1. 151
   Name: Syuutarou on Jul 3, 2012

   Comments: I was going to ask Daisy if she ever uses the Library to do research BUT, in all my years as a liraaribn, I can honestly say that I haven't had any author research queries along these lines! Thank goodness for the Internet where we can read and research more privately!

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2. 152
   Name: Anonymous on Jul 3, 2012

   Comments: There must be national awarenes of pudendal problems. National guidelines should be devised to help health professionals manage PNE/ pudendal neuropathy.

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3. 153
   Name: Anonymous on Jul 3, 2012

   Comments: More expertise, research and guidance is needed.

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4. 154
   Name: Jessica Idun on Jul 3, 2012

   Comments:

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5. 155
   Name: Richard Gatica on Jul 3, 2012

   Comments: i hope i can help

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6. 156
   Name: Sharon Wright on Jul 4, 2012

   Comments: Please help in any way possible. For my niece, Nikki and everyone else that is suffering from this disease!!!

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7. 157
   Name: Dorothy Penyak on Jul 4, 2012

   Comments:

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8. 158
   Name: Ali Elahi on Jul 4, 2012

   Comments: I am a 37 year old PN sufferer from the last 7 years.I had one failed Pudendal Nerve decompression surgery with Dr. Eric bautrant in Aix En Provence and another failed dorsal nerve decompression surgery with Professor oskar Aszmann in Vienna.I am unable to sit,have painful urinary frequency,urgency and have ED issues.I am currently unemployed,,disabled and live SSD.I like the rest of others need help to live my life again.Please help.

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9. 159
   Name: Emily Ferraro on Jul 4, 2012

   Comments: very severe on left side anal incontinence pricks and. ironing cannot sit for

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10. 160
    Name: Wendy Morad on Jul 4, 2012

    Comments:

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11. 161
    Name: David Morad on Jul 4, 2012

    Comments:

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12. 162
    Name: Bebhinn NicLiam on Jul 4, 2012

    Comments:

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13. 163
    Name: Jeanne Rogers on Jul 4, 2012

    Comments: Please help

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14. 164
    Name: Anonymous on Jul 4, 2012

    Comments:

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15. 165
    Name: June A. Ford on Jul 5, 2012

    Comments:

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16. 166
    Name: Kathleen Keyes on Jul 5, 2012

    Comments:

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17. 167
    Name: Maraya French on Jul 5, 2012

    Comments: I suffer from PN/PNE as well as endometriosis, IC, pelvic floor dysfunction, vestibuleitis, vaginismus and several other chronic pain issues.  I've been suffering from pelvic pain since age 14, I'm 29 now and my pain has gotten progressively worse in the last 5-6 years and I just learned less than 1 year ago that I have PN or PNE. I'm in excruciating pain every day all day. My pelvis, genitals, urination, defecation, perineum, sit bones, etc., feel like they are on fire with shards of glass stabbing at them all the time.  I have been married for 9 years to a wonderful, caring man and we have been deprived a sex life for 3-4 years. Life with this pain is beyond difficult, please take this seriously and give it the attention it so desperately deserves.

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18. 168
    Name: Maraya French on Jul 5, 2012

    Comments: I suffer from PN/PNE as well as endometriosis, IC, pelvic floor dysfunction, vestibuleitis, vaginismus and several other chronic pain issues.  I've been suffering from pelvic pain since age 14, I'm 29 now and my pain has gotten progressively worse in the last 5-6 years and I just learned less than 1 year ago that I have PN or PNE. I'm in excruciating pain, every day, all day. My pelvis, genitals, urination, defecation, perineum, sit bones, etc., feel like they are on fire with shards of glass stabbing at them all the time.  Life with this pain is beyond difficult, please take this seriously and give it the attention it so desperately deserves.  Please take a minute to sign the petition and help bring awareness to this agonizing condition.

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19. 169
    Name: Maraya French on Jul 5, 2012

    Comments: I suffer from PN/PNE as well as endometriosis, IC, pelvic floor dysfunction, vestibuleitis, vaginismus and several other chronic pain issues.  I've been suffering from pelvic pain since age 14, I'm 29 now and my pain has gotten progressively worse in the last 5-6 years and I just learned less than 1 year ago that I have PN or PNE. I'm in excruciating pain, every day, all day. My pelvis, genitals, urination, defecation, perineum, sit bones, etc., feel like they are on fire with shards of glass stabbing at them all the time.  Life with this pain is beyond difficult, please take this seriously and give it the attention it so desperately deserves.  Please take a minute to sign the petition and help bring awareness to this agonizing condition.

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20. 170
    Name: Whitney on Jul 5, 2012

    Comments:

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21. 171
    Name: Zacharie Kyle Miller on Jul 5, 2012

    Comments: PLEASE help my mom and everyone with pne!!!

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22. 172
    Name: Tj Woodall on Jul 5, 2012

    Comments: please help nicole miller and everyone else with pne

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23. 173
    Name: Tyler Woodall on Jul 5, 2012

    Comments: please help everyone else with pne

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24. 174
    Name: Steve Wilson on Jul 5, 2012

    Comments: I suffered with this disabling condition, and was wrongly diagnosed with IC, among other conditions, for over 7 years.

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25. 175
    Name: Nancy Coplin on Jul 5, 2012

    Comments:

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26. 176
    Name: Ava Mitchell on Jul 5, 2012

    Comments:

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27. 177
    Name: Bonnie Rich on Jul 5, 2012

    Comments:

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28. 178
    Name: Anonymous on Jul 5, 2012

    Comments: Fantastic representation of Pudendal Neuralgia

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29. 179
    Name: Kathy Schoemehl on Jul 5, 2012

    Comments: Please help us that suffer chronic, debilitating pain.

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30. 180
    Name: Alison Obrien on Jul 5, 2012

    Comments: Thanks to Shawn and Helen for this invaluable work.Something has to change for all sufferers, this has got to help.

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31. 181
    Name: Ben Howey on Jul 5, 2012

    Comments: glad to help especially when help is so desperately needed.

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32. 182
    Name: Dan Howey on Jul 5, 2012

    Comments:

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33. 183
    Name: Jean Tweddell on Jul 5, 2012

    Comments: helping my daughter try to get the PN misery addressed

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34. 184
    Name: Kathy Schoemehl on Jul 5, 2012

    Comments:

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35. 185
    Name: Anonymous on Jul 6, 2012

    Comments:

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36. 186
    Name: Carolyn OGrady on Jul 6, 2012

    Comments:

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37. 187
    Name: Anonymous Facebook user on Jul 6, 2012

    Comments: I'd like to add that many families are being broken by this horrific and misunderstood condition. Many family members refuse to learn about or accept the reality of pudendal neuralgia and therefore, are unwilling to offer the emotional, physical, or financial support the sufferer needs so very much.

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38. 188
    Name: Bobbi Meeham on Jul 6, 2012

    Comments: I have had 6 years of intractable burning pain. I had to leave Boston and go to John Hopkins to get diagnosed. It took three years to find a surgeon who had gone to France to learn the surgery from the surgeons that developed the surgeon. Prior to this patients had to go to France to get help because there was no surgeon in the US who knew what to do. This is unbelievable !!

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39. 189
    Name: Tom Clarington on Jul 6, 2012

    Comments:

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40. 190
    Name: Sunil on Jul 6, 2012

    Comments: I have suffered for 37 painful years and have lost the best years of my life. Many medical professionals have disregarded my plight and dismissed me. But at last 3 years ago I was diagnosed. Please help prevent this from occurring again so others do not suffer as I have and that they get the correct treatment for this horrible condition.

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41. 191
    Name: Kelleen Simons on Jul 6, 2012

    Comments:

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42. 192
    Name: Alexandra Routledge on Jul 6, 2012

    Comments:

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43. 193
    Name: William Wagner on Jul 6, 2012

    Comments:

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44. 194
    Name: William Wagner on Jul 6, 2012

    Comments: More research please

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45. 195
    Name: Susan Blacker on Jul 6, 2012

    Comments:

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46. 196
    Name: Anonymous on Jul 6, 2012

    Comments:

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47. 197
    Name: Louise Fisher on Jul 6, 2012

    Comments:

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48. 198
    Name: Andrew J. Schwartz on Jul 6, 2012

    Comments:

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49. 199
    Name: Judy Ruttley on Jul 6, 2012

    Comments: Took three years and a self diagnosis, confirmed by a Dr to get treatment.

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50. 200
    Name: E Tweddell on Jul 6, 2012

    Comments:

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