Signatures 746 total
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51
Name: Sharon on Jun 20, 2012Comments:Flag
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52
Name: Zack Miller on Jun 20, 2012Comments: please. please. please.Flag
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53
Name: Colin Hindson on Jun 20, 2012Comments: husband of a suffererFlag
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54
Name: Marie J Payne on Jun 21, 2012Comments: My primary physican and all other doctors in Alaska did not know why I could not sit. Took me 11 months to figure out appropriate dx. Neurosurgeon wanted to do back surgery, I flew to mayo clinic then to NY the to NH to see Dr Conway. I had trans-glut surgery in feb 2012, still healing and very painful. Even after I gave info for doctors to learn about PNE in Alaska, many said they did not have "time" to read it. Here they may one day have another patient like me and hopefully they don't decide to do back surgery when really the person has pne. I also spent $80,000 from retirement account, had to quit RN school, unable to work since 2008 and can't get disability because I was a nurse for the state of Alaska, which does not put into s.s; rather has their own retirement account-if I would of known that I would of been an LPN for a company that put into s.security. This has been a financial nightmare, tough on marriage, physical horrible pain, had stool incontinence prior to surgery. Suffered since I woke up in pain June of 2008.Flag
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55
Name: Lindsay Friedman on Jun 21, 2012Comments: As a PNE patient, I know the suffering and the lack of medical help!Flag
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56
Name: Abby on Jun 21, 2012Comments:Flag
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57
Name: Sharon Wright on Jun 21, 2012Comments: For my niece, Nikki!!!Flag
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58
Name: Sharon Wright on Jun 21, 2012Comments:Flag
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Name: Andrea Berloff on Jun 21, 2012Comments:Flag
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60
Name: Anonymous on Jun 21, 2012Comments:Flag
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61
Name: Steve Wilson on Jun 21, 2012Comments: Please consider doing anything possible to increase awareness of this horrible, disabling affliction to the medical community!Flag
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62
Name: Billie Fitzsimons on Jun 21, 2012Comments:Flag
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63
Name: Sally Cozens on Jun 21, 2012Comments:Flag
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64
Name: Jacquie Bean on Jun 21, 2012Comments: I agree, the whole process of getting a diagnosis of P/N is an absolute nightmare! More awareness should come from GP level in order to be directed to the right consultant in the beginning. The outcome, as far as I am concerned is still in question after 8 years as no-one really knows what causes P/N and its symptoms. So we live our life in constant pain with very little relief from pain meds. Disgraceful!Flag
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65
Name: Evelyn Merchant on Jun 21, 2012Comments:Flag
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Name: Steven Udelson on Jun 21, 2012Comments: Until someone very close to be got this disease I never heard of it. Please make everyone aware asap.Flag
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67
Name: Vivienne Howey on Jun 21, 2012Comments:Flag
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68
Name: Susan Ludsin on Jun 21, 2012Comments:Flag
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69
Name: Dale Hindson on Jun 21, 2012Comments:Flag
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70
Name: H V Howey on Jun 21, 2012Comments:Flag
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71
Name: Lillian Crow on Jun 21, 2012Comments: We ave suffered enough, we need help!Flag
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72
Name: Joanne Spires on Jun 21, 2012Comments:Flag
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73
Name: Jessica Tomsic on Jun 21, 2012Comments: I cannot tell you HOW IMPORTANT this petition is. PNE has rocked my world -- the moment that was supposed to be the happiest (birth of my only child) is now equated with the start of Chronic Pelvic Pain. I have been all over the WORLD (literally) with this. I, along with my colleague, Elisabeth Oas, am determined to bring the shame OUT OF PUDENDAL NEURALGIA and Chronic Pelvic Pain and find better ways for patients to live successfully. www.thepelvicmessenger.orgFlag
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74
Name: Myra Berloff on Jun 21, 2012Comments:Flag
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75
Name: C. Lea on Jun 21, 2012Comments:Flag
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76
Name: Karen Dugan on Jun 21, 2012Comments:Flag
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77
Name: Connie Sommer on Jun 21, 2012Comments: Pudendal Neuralgia (PN). and Piriformis syndrome (PS) make up a group of silent sufferers in agony. PLease, Please SOMEBODY take notice and do something about it.Flag
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78
Name: Jeff Evenson on Jun 21, 2012Comments:Flag
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79
Name: Lin Willmott on Jun 21, 2012Comments: I have been suffering from this awful condition for over 5 years.Flag
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80
Name: Lori Bartels on Jun 21, 2012Comments:Flag
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81
Name: Anonymous on Jun 21, 2012Comments:Flag
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82
Name: Lindsay Noyes on Jun 21, 2012Comments: This is so important!! So many are suffering!Flag
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83
Name: Anonymous on Jun 21, 2012Comments:Flag
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84
Name: Susan Young on Jun 22, 2012Comments:Flag
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85
Name: Anonymous on Jun 22, 2012Comments:Flag
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86
Name: Sheila Hirst on Jun 22, 2012Comments:Flag
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87
Name: Nicola Mills on Jun 22, 2012Comments:Flag
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Name: Christopher McMurry on Jun 22, 2012Comments:Flag
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89
Name: Christopher McMurry on Jun 22, 2012Comments:Flag
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Name: Jerry Hesch on Jun 22, 2012Comments:Flag
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91
Name: Mary O'Connor on Jun 22, 2012Comments:Flag
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92
Name: Gail Carter on Jun 22, 2012Comments: I totally agree with all the issues that Helen has raised & felt that it is disgusting that people in debilatating pain have a condition that is so under resourced & under researched.Flag
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93
Name: Danielle Goren on Jun 22, 2012Comments:Flag
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94
Name: Charles Chudakoff on Jun 22, 2012Comments: One of the people I love most in the world suffers from this horrendous affliction. I witness the pain, suffering and the feeling of hopelessness every day I am heartsick and helpless for her and all those suffering from PN. Research for these people, and those to come, is so desperately needed.Flag
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95
Name: Carol Graham on Jun 22, 2012Comments:Flag
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96
Name: Debra Draper on Jun 22, 2012Comments:Flag
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97
Name: Dr Michael Carter on Jun 22, 2012Comments: My wife has suffered from PN for 4 years and recently underwent decompression of the nerve in Istanbul. She was patient 24 in the world to undergo an experimental technique, this and all other treatments she has instigated from her own, informed, research. We have paid + £30k during those 4 years in direct costs alone. My wife is still waiting to see if her treatment is going to work. For those less fortunate of less informed - God help them because no one else will.Flag
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98
Name: Amy Jean Grau on Jun 22, 2012Comments: please help us understand this debilitating condition and return quality of life to so many suffering so much.Flag
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99
Name: Chris Campbell on Jun 22, 2012Comments:Flag
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100
Name: Deborah Grau on Jun 22, 2012Comments:Flag