Signatures 746 total
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Name: Judy Clark on Feb 25, 2013Comments:Flag
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Name: S. Stavsky on Mar 1, 2013Comments:Flag
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Name: Evelyn Merchant on Mar 1, 2013Comments: Please help us!Flag
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Name: Tanya on Mar 6, 2013Comments:Flag
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Name: Tina Sofran on Mar 9, 2013Comments: i do not think i have pne, but i do suffer from chronic pelvic pain, neoropathy. my pain is in an upper side area with some of the conditions as with pne. i can find no doctors that are filmillar with my condition having myself to try to find out what it is and what if anything i can do to get some relief from the chronic pain that i suffer with daily. more awareness is needed. thank youFlag
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Name: Dan Clemons on Mar 9, 2013Comments:Flag
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Name: Elizabeth Lewis on Mar 11, 2013Comments:Flag
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Name: Lori McNamara on Mar 11, 2013Comments: Thank you for calling attention to this debilitaing illnessFlag
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Name: Kevin Stacy on Mar 11, 2013Comments:Flag
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Name: Anonymous on Mar 11, 2013Comments:Flag
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Name: Kathy Schoemehl on Mar 11, 2013Comments:Flag
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Name: Violet on Mar 11, 2013Comments: help us get betterFlag
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Name: Kim Brown on Mar 12, 2013Comments:Flag
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Name: Anonymous on Mar 12, 2013Comments:Flag
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Name: Isabella on Mar 12, 2013Comments:Flag
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Sezan Mahmood Shaon on Mar 12, 2013
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Name: Susan Erickson on Mar 13, 2013Comments: Please educate dr's on this problem. I have been complaining of these symptoms for 8 years now. Was considering going to Oregon to end my life because pain is so intense. Husband divorced me due to my inability to have any sexual relations. This condition is so painful I have thought of suicide very often. It is unbearable.Flag
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Name: Tom Bennett on Mar 14, 2013Comments:Flag
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Name: Social Bookmarks on Mar 14, 2013Comments: g3oUz5 I really like and appreciate your blog article.Much thanks again. Fantastic.Flag
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Name: SAIKIAT MAHMUD on Mar 14, 2013Comments:Flag
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Name: Bookmarks on Mar 14, 2013Comments: xjgnDo Great blog post.Thanks Again.Flag
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Name: Bookmarks on Mar 15, 2013Comments: ESTLZN Very neat blog post.Thanks Again. Much obliged.Flag
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Name: Rebecca Curzon on Mar 16, 2013Comments:Flag
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Name: Sheila Massetti on Mar 17, 2013Comments: Have had this condition for 4 years and it also causes Anxiety attacks. I'm so sick of the pain.Flag
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Name: Jill Yerington on Mar 18, 2013Comments: chronic pelvic pain sufferer for 9 yrs now, and still trying to get botox injections into the pelvic floor to help alleviate the muscle spasms, that are so incredibly painful. It has affected every single facet of my general quality of life, and not in just a minimal way, it has been veritably cataclysmic! Extending and spilling over into my daughters lives, my husband's, etc. Please do incorporate and inseminate PN/PNE information into the medical professions/community for more increased awareness, so patient's could begin to experience relief through perhaps a multi-disciplinarian collaboration. Thank You to whomever took/takes the time to read/evaluate this comment!!Flag
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Name: Emily FERRARO on Mar 19, 2013Comments: please help those of us that have PN and PNE!Flag
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Name: Anonymous on Mar 19, 2013Comments: This comment was deleted on 2013-04-14 14:48:43Flag
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Name: ESTHER OBERHAUS on Mar 21, 2013Comments:Flag
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Name: Anonymous on Mar 21, 2013Comments:Flag
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Name: Anonymous on Mar 22, 2013Comments: severe pain!Flag
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Name: Anonymous on Mar 22, 2013Comments:Flag
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Name: Jose on Mar 27, 2013Comments: Keep strong, whish all the bestFlag
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Name: Gregory Begin on Mar 27, 2013Comments:Flag
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Name: Andrea Rowe on Mar 28, 2013Comments: It is likely too late for me. These past six years of searching for help & a name for this excruciating condition have been unimaginable. Because I have been unable to work for 3 yrs, I am in financial ruin. The head "specialist" at my pain clinic blew me off 2.5 yrs ago & told me to go back for more PT, all because the term "sit bones" was not in my vocabulary. The best description I could come up with was, "..like having two golf balls soaked in boric acid on either side of my vagina." I will get my 3rd round of CT guided injections in about another month, courtesy of my mother's retirement account. I hope to get more than a week or two of reduced pain, but all signs so far point to surgery. Since I have already advanced to what the author called, "suicidal pain", & doubt I can raise funds for a surgery that may keep me at this level of pain, I beg the medical community to get educated so they can have a chance to save the next human being with this condition from taking their leave.Flag
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Name: Hailey Welling on Mar 29, 2013Comments: My husband suffers from PNE. No one understands his pain, not even me. I have watched him educate his doctors. I have stood by him as family members; friends and community members have judged, criticized and ostracized him. People feel he is lying about his condition and because he takes medications to ease his pain, he is a worthless drug addict. I know he would have had more support if he had been diagnosed with a more "familiar" disease or disorder; like cancer, Parkinson’s, or MS. There is a need for more education not only for the medical professionals, but for the general public.Flag
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Name: Anonymous on Apr 1, 2013Comments: This blog site is pretty cool! How can I make one like this ! increase height http://www.deelsonheels.com/Shoe_Lifts/cat133748_120743.aspxFlag
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Name: Annmarie Cullen on Apr 3, 2013Comments: PNE needs to be made aware of as well as other pelvic floor nerve injuries that cause life altering conditions.Flag
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Name: Sharon Harvey on Apr 4, 2013Comments: I pray that this petition will reach and speak to those who can take action to bring diagnosis and treatment to those suffering from PNE. Thanks to a knowledgable orthopedic surgeon I was diagnosed within a month or two. I am also blessed with an experienced pt and will be seeing a specialist in pelvic disorders soon. Prayers for a cure for all.Flag
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Name: Anonymous on Apr 7, 2013Comments:Flag
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Name: Kevin Harwood on Apr 10, 2013Comments: I hope U.S. medical doctors soon get onboard with this nerve entrapment, so we aren't still riding in the back of the bus in the future.Flag
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Name: Kevin Harwood on Apr 10, 2013Comments: Hopefully, some MD's will pull their heads out of the sand, become objective and scientific, and some research will begin in this direly needed area. Remember, Pudendal means shameful, so the anatomical area is part of the reason this area of need has not received more interest.Flag
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Name: Jeanette Carr on Apr 11, 2013Comments: Coming up to 4 years and I am still desperately trying to find something/anything to ease this horrendous pain that just will not let up (only when I'm sleeping). I paid my own way to Prof. Vancaillie who diagnosed PN, gave me one Botox treatment and sent me home, some 900 miles away to find a Pain Team. I live in Tasmania, Australia's Island State where I am yet to find one professional who has even heard of PN. One very kind pain man called to see me whilst he was passing through from the south of the Island (our biggest hospital) to the North. He suggested that my only hope would be to go and live on the mainland where all the big hospitals are to receive at least some sort of treatment. As it is, I am left here on Opiods and bed ridden with 3 years of my life gone...never to return. I am doomed and desperate. PLEASE help us!!!!!Flag
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Name: Anonymous on Apr 12, 2013Comments: Help those who are discouraged, disillusioned and without hope find some glimmer of light in this tunnel of confusion and pain.Flag
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Name: Joanna Putman on Apr 12, 2013Comments:Flag
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Name: Anonymous on Apr 13, 2013Comments:Flag
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Name: Dot Joiner on Apr 16, 2013Comments: Thank you for what ever help you can giveFlag
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Name: Joseph Rich on Apr 17, 2013Comments: After one fateful day doing a weightlifting squat, I've been permanently afflicted with pudendal nerve damage. It has ruined my life. This problem is rarely recognized or considered by medical specialists.Flag
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Name: Diane Griffin Lessard on Apr 18, 2013Comments: Thank you all for making doctors and the general public more aware of this debilitating disease. I'm laying here right now with a heating pad unable to move. Help!!!Flag
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Name: Connie Jackson on Apr 21, 2013Comments: A cure can not be found fast enough.Flag
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Name: Anonymous on Apr 21, 2013Comments:Flag