Petition For More Research, Awareness, Training For Med School Students & Doctors For Chronic Pelvic Pain Frequently Caused By Pudendal Neuralgia/PNE

Signatures 744 total

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1. 601
   Name: Anonymous on Feb 13, 2013

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2. 602
   Name: Clinton Radenbaugh on Feb 13, 2013

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3. 603
   Name: Chris Bean on Feb 13, 2013

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4. 604
   Name: Cindt Hartman on Feb 13, 2013

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5. 605
   Name: Elijah Jones on Feb 13, 2013

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6. 606
   Name: Jacie Jones on Feb 13, 2013

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7. 607
   Name: Karen on Feb 13, 2013

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8. 608
   Name: Jeremyy Massicotte on Feb 13, 2013

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9. 609
   Name: Kristin Parsons on Feb 13, 2013

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10. 610
    Name: Anonymous on Feb 13, 2013

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11. 611
    Name: Darlene Rubin on Feb 13, 2013

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12. 612
    Name: Susan Baker on Feb 13, 2013

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13. 613
    Name: Rody Collett on Feb 13, 2013

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14. 614
    Name: Rachel Demunbrun on Feb 13, 2013

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15. 615
    Name: Christine Balyeat on Feb 13, 2013

    Comments: what you are doing is greatly needed.

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16. 616
    Name: Karen Noble on Feb 13, 2013

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17. 617
    Name: Katie Wilkins on Feb 13, 2013

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18. 618
    Name: Rachel Anne on Feb 13, 2013

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19. 619
    Name: Anonymous on Feb 13, 2013

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20. 620
    Name: Ladye Grace on Feb 13, 2013

    Comments: I have pudendal nueralgia going on third year. Still no real improvement. Stay on ice 24-7. Feels like frostbite but is the only way I can survive. HORRIBLE pain if ice thaws it throws it into a hot red flare status. I'm up for anything or to tell anybody about PNE in hopes to bring more awareness to the medical field.

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21. 621
    Name: Emily Olson on Feb 13, 2013

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22. 622
    Name: Theresa Sharrar Hummer on Feb 13, 2013

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23. 623
    Name: Theresa Sweeney on Feb 13, 2013

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24. 624
    Name: Jayne Holmes on Feb 13, 2013

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25. 625
    Name: Faith SCHMIDT on Feb 13, 2013

    Comments: After watching my son live with this awful disease, I pray that the medical community will see how debilitating and mentally depressing it can be. There needs to be an urgency to help victims of this disease.

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26. 626
    Name: Anonymous on Feb 13, 2013

    Comments: I suffer from this HORRIBLE condition. I cannot find help...I cannot find pain management...my quality of life is such that I don't WANT to live anymore. PLEASE, help us. I'm begging...

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27. 627
    Name: Karen on Feb 13, 2013

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28. 628
    Name: Bobbi Meehan on Feb 13, 2013

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29. 629
    Name: Tim Michalik on Feb 13, 2013

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30. 630
    Name: Karen Mccall on Feb 13, 2013

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31. 631
    Name: Norman Cordova on Feb 13, 2013

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32. 632
    Name: Ann Rumney on Feb 13, 2013

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33. 633
    Name: Shannon Bethel on Feb 13, 2013

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34. 634
    Name: Kathy on Feb 14, 2013

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35. 635
    Name: Donna C. White on Feb 14, 2013

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36. 636
    Name: Dianna Archuleta on Feb 14, 2013

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37. 637
    Name: Carol Grubbs on Feb 14, 2013

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38. 638
    Name: David K Ranney on Feb 14, 2013

    Comments: I hope this will help people with PN

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39. 639
    Name: Yvette Rodriguez on Feb 14, 2013

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40. 640
    Name: Iva Sklempe Kokic on Feb 14, 2013

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41. 641
    Name: Lauri Calder on Feb 14, 2013

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42. 642
    Name: Ingrid Marton on Feb 16, 2013

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43. 643
    Name: Charles Solomon Jr on Feb 16, 2013

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44. 644
    Name: Emma Dennis on Feb 17, 2013

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45. 645
    Name: Anonymous on Feb 17, 2013

    Comments: I am PNE sufferer for past 4 years with extreme pain.

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46. 646
    Name: Lindsay Miller on Feb 19, 2013

    Comments: Hello from my "cage" as I continue to recovery from pudendal bilateral decompression surgery nearly 8 months ago. It took over 15yrs for this diagnosis and treatment. I have trouble using a computer because I must be laying flat for best pain relief and sitting is not an option. Standing/bending is very difficult for more than a few mins if that. Coping with disabling chronic pain since early college years where I was told for over a decade by many specialized physcians who claimed my pain wouldn't get worse. Pain consumes me to the degree I require a cargegivier and don't know what a pain level below severe feels like. Both sides of pudendal nerve were entrapped; my right side nerve severely damaged and recovery is expected to take yrs. "Recovery" for me refers to healng nerves with significantly reduced pain and other yucky symptoms. I want to help bring awareness to pudendal neuropathy, volunteer more in the Skeptic/atheist community, and begin a science-based local medical support group. Placebos/scams like homeopathy, accupuncture, chiropractic, reiki, etc distracted me from proper diagnoses. I wasted money and time on treatments that have been proven not to work. Permanent damage to my body and low quality of life are examples of harm from some alternative medical treatments. Passion to connect and help others seeking out medical care with good evidence behind it is now a goal as I recover. I view success as the positive differences we make in our own lives and others. Once your health is taken from you, creative ways to enjoy life become apparent.

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47. 647
    Name: Charles Véronique on Feb 20, 2013

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48. 648
    Name: Josephine Sofia on Feb 21, 2013

    Comments: We need help!

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49. 649
    Name: Ginger Checketts on Feb 21, 2013

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50. 650
    Name: Lori Andresen on Feb 23, 2013

    Comments: My pne started shortly after bladder suspension surgery in 2002. After many, many visits to various doctors, my neurosurgeon diagnosed my problem but knew of no one who could help me. Found Dr . Renney in Houston, and after many trips there and consulting many doctors, I had surgery performed by Dr. Ansell. This alleviated my systems, which are spasms in vaginal/rectal area 24/7, for about a month; but spasms have returned in full force. Am now seeing a pain specialist in Tyler, Texas. He has started injections, and I'll have my second round this coming Wednesday. At this point, I just want some relief. This horrible experience has been ongoing since 2002. I firmly believe that if more women who have had bladder suspensions were questioned about pne, we would be doing them a great favor.

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