Petition For More Research, Awareness, Training For Med School Students & Doctors For Chronic Pelvic Pain Frequently Caused By Pudendal Neuralgia/PNE

Signatures 746 total

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1. 551
   Name: Alan on Jan 10, 2013

   Comments: I self diagnosed and then found WHRIA ... helped a lot

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2. 552
   Name: Pam Williams on Jan 10, 2013

   Comments: Prayers that all Insurance companies recognize this condition and deem ALL Procedures "Medically Necessary" God Bless to All who suffer from PN and PNE

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3. 553
   Name: David Jones on Jan 11, 2013

   Comments: Please understand that PNE exists and these people are not head cases. They are living in hell and doctors do not know what is wrong so they just right them off as drug addicts or head cases. Meantime, these people are suffering. Famlies are destroyed, marriages ruined. Suicde is common. Your attention is badly needed.

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4. 554
   Name: Kat Schoemehl on Jan 11, 2013

   Comments:

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5. 555
   Name: Meg Whyte on Jan 12, 2013

   Comments:

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6. 556
   Name: Debra Normand on Jan 14, 2013

   Comments: PNE has ruled my entire adult life due to and accident sustained at age 11 in the perineal area. It was not diagnosed until 30 years later at age of 41. This is unexceptable considering Americans expect better from their advanced medical system. For future sufferers I hope that the medical community will become more aware and compassionate to these patients and find some way to help them live a normal life, which was not extended to me. Doctors have treated me mostly with distain and disbelief since I appear to look normal. PNE is a hidden disability and because doctors cannot see it they have a difficult time believing a patient is in pain and suffering miserably. In 2005 there only were 8 doctors in America with the proper training and experience to effectively treat PNE patients. That must change, immediately. It's time that the medical community recognizes this condition as a valid nerve disorder which horrendously effects every aspect of a patient's life from the time they wake up until they close their eyes to sleep.

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7. 557
   Name: Loretta Holscher on Jan 15, 2013

   Comments: The suffering and pain of this disorder has turned my life upside down. We need more effective study and treatment!

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8. 558
   Name: Sally Goldberg on Jan 15, 2013

   Comments:

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9. 559
   Name: Gil Weinstein on Jan 18, 2013

   Comments: Have been dealing with chronic penile, pelvic and abdominal pain/discomfort for many years. More research need to be done, this affects significantly the daily life of many people.

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10. 560
    Name: Alessandro Italia on Jan 19, 2013

    Comments: it is an humiliating condition.

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11. 561
    Name: Carol Mitchell on Jan 22, 2013

    Comments:

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12. 562
    Name: Donna Chan on Jan 22, 2013

    Comments:

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13. 563
    Name: Sezan Shaon Mahmood on Jan 23, 2013

    Comments:

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14. 564
    Name: Lisa Teasdale on Jan 23, 2013

    Comments:

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15. 565
    Name: BRADLEY WARD on Jan 23, 2013

    Comments: I have suffered with PNE for years and it has ruined every aspect of my life. Doctors need to learn about this before many more lives are also ruined.

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16. 566
    Name: Christie Swentko on Jan 24, 2013

    Comments:

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17. 567
    Name: David Jones on Jan 25, 2013

    Comments: Praying for these poor people that the above petition becomes reality.

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18. 568
    Name: Lorene McIntosh on Jan 25, 2013

    Comments: Do something!

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19. 569
    Name: Christie Swentko on Jan 28, 2013

    Comments:

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20. 570
    Name: Cherie Byra on Jan 28, 2013

    Comments: I have been suffering from this horrible condition for two years. It is no way to live. There should be more and better research and treatment for this condition!

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21. 571
    Name: Lindsay Miller on Jan 29, 2013

    Comments:

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22. 572
    Name: Becki Dano on Jan 29, 2013

    Comments:

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23. 573
    Name: Kylie on Jan 31, 2013

    Comments: I have been suffering with this condition for almost four years and have spent thousands of dollars and hit several dead ends trying to find relief. I'm currently on waitlists to see two new Specialists but each have a wait time of around 6 months for my first consultation.

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24. 574
    Name: Jeanette Duffy on Feb 5, 2013

    Comments:

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25. 575
    Name: Caroline Fuzi on Feb 6, 2013

    Comments: I have had Pudendal Neuralgia for six years. I was misdiagnosed for the first two years with Vulvar Vestibulitis. I have had four ct injections that only took my pain away for 24 hours. I have also tried myofascial release. Nothing has worked so far. My specialist just said that there is nothing further she can do for me which is frustrating. We need more education and research in the medical field. Most doctor's have no idea that this exists.

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26. 576
    Name: Virginia Kamil on Feb 6, 2013

    Comments:

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27. 577
    Name: Barbara Malley on Feb 6, 2013

    Comments: It will be 15 years next month that I have been in intractable pain. My life hasn't been the same. In this day and age it's hard to believe that so little is known about PNE and that people continue to suffer day in and day out.

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28. 578
    Name: Kristy Thitshao on Feb 6, 2013

    Comments: noone should have to go thru this painful challenge without knowledge and the best research available

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29. 579
    Name: Richelle Stosich on Feb 6, 2013

    Comments:

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30. 580
    Name: Marianne DeWitt on Feb 6, 2013

    Comments:

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31. 581
    Name: Scott on Feb 6, 2013

    Comments:

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32. 582
    Name: Doris Mendisana on Feb 7, 2013

    Comments: I saw a doctor had PT and still for 6yrs the pain has not gone away. Some days are worse than others and I need financial help to have the surgery and see a docotor in New Hampshire. Good luck to all of you who are suffering with PN

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33. 583
    Name: Robinmolis on Feb 7, 2013

    Comments:

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34. 584
    Name: Emily Ferraro on Feb 10, 2013

    Comments: please help us!!! I am a suffering PNE patient and had to leave the country for help, the US needs to do more research and more options for PN!

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35. 585
    Name: Deborah Thompson on Feb 10, 2013

    Comments: i thank God for finding this site. my neuro dr. and pain dr. they didn't know why my pain was in the pelvic area. they blamed it on my sacrum joint brake.

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36. 586
    Name: Anonymous on Feb 10, 2013

    Comments:

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37. 587
    Name: Angelica on Feb 10, 2013

    Comments:

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38. 588
    Name: Tony Gold on Feb 10, 2013

    Comments:

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39. 589
    Name: Angela Williams on Feb 10, 2013

    Comments:

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40. 590
    Name: Arlene Jones on Feb 10, 2013

    Comments: We are sufering in multitudes, and have a handful of doctors trying to help us. They are still learning and the success rate is low. Please help us. No more suicides from this pain!

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41. 591
    Name: Matt Schmidt on Feb 11, 2013

    Comments: I have been recently diagnosed with PN.

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42. 592
    Name: Julie Shelton on Feb 11, 2013

    Comments:

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43. 593
    Name: Nicole Barnett on Feb 11, 2013

    Comments: I've seen my neighbor and friend's suffering from this condition after complications due to a hysterectomy. She is a mother of five children and cannot sit with them to read them books, sit through church, have a normal relationship with her husband. She does the best she can, and with a smile. But I would love to see her as she was before.

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44. 594
    Name: Kari Rugg on Feb 11, 2013

    Comments:

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45. 595
    Name: Leeanne on Feb 11, 2013

    Comments:

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46. 596
    Name: Vicki Soha on Feb 11, 2013

    Comments: This must be done!

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47. 597
    Name: Marianne Halm on Feb 12, 2013

    Comments:

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48. 598
    Name: Anonymous on Feb 12, 2013

    Comments:

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49. 599
    Name: Kelly M Sperber on Feb 12, 2013

    Comments: I have seen PNE practically destroy the life of a beloved friend. Please help her and thousands like her by researching this debilitating condition.

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50. 600
    Name: Leslie Edens on Feb 13, 2013

    Comments: We need more research done please

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