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Minimising the incidence of plagiocephaly in UK babies

 
Signatures | Total: 2,160

 

# First NameLast NameStateCountryComments
2001 raymondvealUK
2002 JanetBellUK
2003 BerylWagstaffUK
2004 IanHutchinsonUK
2005 DorothyHutchinsonUK
2006 KellyHalsallUK
2007 AnonymousAnonymousUK
2008 HannahBriggsUK
2009 SamanthaCraggUKMy daughter has plagiocophaly. Med ical 'experts' need to be more aware of this condition. Starband has helped our little girl - but cost so much money. Surely there should be some funding available for this helmet that DOES help?
2010 juliedixonUKmy son wore a helmet for 6mths, what a fight I had eventually I put a complaint in to my doctors and since we have worked together to organise a leaflet. Also in April we will be meeting with the helmet group I have set up to take a stand re funding, get press coverage etc hopefully.
2011 MarcNelsonUK
2012 sarahtaylorUK
2013 AnonymousAnonymousUKHi, This site is very helpful. Hope this petition will be recognised, and attitudes from GPs, HVs etc regarding plagiocephaly will change for the better. All the best.
2014 KyraHumphreysUKWould also like to suggest that parents are advised to have their babies sleep with a fleece under the sheet in the cot. This reduces the hardness of the surface and makes it less likely for plagiocephaly to occur.
2015 AnonymousAnonymousUK
2016 HelenGreenUK
2017 SHELLEYBOWYERUKI'm really annoyed that I have had to discover about this condition via the tamba website. My Health visitor made a comment at my youngest son's 8 week check, but has done nothing, and now I am going to have to battle with the NHS to get his condition rectified. He is now nearly 5 months old, and if I had been advised of positioning him from day one, we would have done it. More must be done to make health care officials aware of this condition.
2018 AnonymousAnonymousUK
2019 GillianMatherUS
2020 ElaineBridleUK
2021 AnonymousAnonymousUK
2022 darranchristieUK
2023 SandraMorganUK
2024 AnonymousAnonymousUK
2025 NICHOLAHOOPERUKIf it wasn't for this site I would still be taking the wrong advice from my GP & HV - that it will sort itself out and is nothing to worry about.
2026 VictoriaMcKellarUK
2027 LesleySimmUK
2028 MARINABOWYERUK
2029 clairecallananUK
2030 LouiseTaylorAL
2031 AnonymousAnonymousUK
2032 AnonymousAnonymousUK
2033 AnonymousAnonymousUK
2034 MeganLaneUK
2035 AsyaVerzhbinskyUK
2036 AnonymousAnonymousUK
2037 JulieAveryCOUSMy child has plagiocephaly from sleeping on his back. Originally I was sleeping my child side to side alternate in the rolls and was told off by my pedetrician and told to place my child on his back - i since went in several times concerned about the back of the head flattening told not to worry continue to sleep child on back. Child now 4 1/2 months with severe flat spot entire back of head flat. comments are that it will round out continue to sleep child on back - this is not acceptable advise. I want the helmet am prepared to pay for it out of pocket but finding it difficult to get a prescription off a doctor.
2038 AnonymousAnonymousUK
2039 AngelaTaylorUK
2040 JustinTaylorUK
2041 SineMcCanUK
2042 HeatherSimpsonUKmy son not gettin treated on the nhs for this condition is rediculous and the way in which so called specialists laugh it off and told me just to let my childs hair grow long to hide his deformity is a disgrace. i recieved no warning of this condition ,even after several trips to my g.p.'s in which i raised concerns over my childs abnormal headshape and only found out about plagiocephaly after doing my own research via the internet.when i confronted my g.p. with this information and my own self diagnosis,she seemed lost and embaressed and knew next to nothing about the condition.this i find totally unaccectable from someone in her position of trust.
2043 FionaCameronUK
2044 AnonymousAnonymousUK
2045 rhianwynneUK
2046 AnonymousAnonymousUK
2047 AnonymousAnonymousUK
2048 AnonymousAnonymousDE
2049 AnonymousAnonymousUK
2050 SarahJenkinsUK

 

Signatures | Total: 2,160

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