| # | First Name | Last Name | State | Country | Comments |
|---|
| 1951 | chris | evans | GA | US | none |
| 1952 | Suzanne | Jackson | | UK | |
| 1953 | Susan | Tate | | UK | |
| 1954 | Tristan | Marshall | | UK | |
| 1955 | Anonymous | Anonymous | | UK | |
| 1956 | Anonymous | Anonymous | | UK | |
| 1957 | Anonymous | Anonymous | | UK | |
| 1958 | Brett | McGee | | UK | |
| 1959 | Gillian | Finnigan | | UK | |
| 1960 | Narelle | Cunningham | | UK | |
| 1961 | deborah | pottage | | UK | |
| 1962 | Deborah | Barrow | | UK | My nephew has plagiocephaly. |
| 1963 | Anonymous | Anonymous | | UK | This condition has not been picked up by my Health Visitor or GP. I have had to do my own research and insist on a referral to a Paediatrician so that I can get some prompt medical attention for my child. I have been very dissatisfied and disappointed at the lack of advice or support so far and hope that I can get the necessary attention soon so that any treatment can commence. |
| 1964 | Anonymous | Anonymous | | NL | |
| 1965 | Asim | Ali | | UK | |
| 1966 | Nina | Griffiths | | UK | |
| 1967 | Anonymous | Anonymous | | UK | |
| 1968 | Sue | Larcombe | | UK | |
| 1969 | Deirdre | O'Brien | | UK | |
| 1970 | nancy | hargreaves | | UK | Both my twin boys have plagiocephaly- if due in part to our ignorance and a lack of information. They are nearly four months old now, and the treatment will be much longer and more arduous than it would have been if we'd have been better informed. |
| 1971 | Shirley | Fisher | | UK | |
| 1972 | annette | fairclough | | UK | |
| 1973 | Paul | Lear | | UK | The treatment needed for our son should be available on the NHS, we (my wife and i) feel completely let down by the NHS, through advise that we were given we also feel that it is the NHS responsibility for this condition occuring in my son. |
| 1974 | janice | hodgson | | UK | |
| 1975 | humsha | rice | | UK | |
| 1976 | Finlay | Wood | | UK | |
| 1977 | Emma | Arter | | UK | |
| 1978 | Anonymous | Anonymous | | UK | |
| 1979 | Michael | Shevlin | | UK | |
| 1980 | Laura | Shevlin | | UK | |
| 1981 | Jim | Stott | | UK | My grandson of 8 months has plagiocephaly and we are currently trying to get NHS funding. Our children are our future please help to reduce the risk of deformaty |
| 1982 | mark | monksfield | | UK | |
| 1983 | Glyn | Webster | | UK | treatment should be available on the NHS! |
| 1984 | Rhona | Inglis | | UK | My son has torticollis and severe plagiocephaly. He was referred to NHS hospital at 7 1/2 mnths and I've heard nothing 4 mnths later. We went private at the beginning of the year. |
| 1985 | Sofia | Tayton | | UK | My son has been successfully treated for plagiocephaly, and I was disappointed with the advice and information available from my GP and health visitors. |
| 1986 | Anonymous | Anonymous | | UK | |
| 1987 | Anonymous | Anonymous | | UK | |
| 1988 | Anonymous | Anonymous | | UK | I AM A SINGLE PARENT AND HAVE HAD TO PAY £1850,00 FOR MY CHILDS HEAD. WE ARE TOLD BABIES MUST LIE ON THEIR BACK BUT WE ARE NOT ADVISED TO LET THEM PLAY ON THIER TUMMY OR SIDES WHICH NOW HAS LEFT MY 4 MONTH GIRL WITH A DEFORMED HEAD. |
| 1989 | Hayley | Keaveney | | UK | |
| 1990 | Peter | Gore | | UK | |
| 1991 | Anonymous | Anonymous | | UK | |
| 1992 | MR | ARTER | | UK | |
| 1993 | Kirstin | Robinson | | UK | |
| 1994 | Pamela | King | | UK | |
| 1995 | Anonymous | Anonymous | | UK | |
| 1996 | mark | fairclough | | UK | this needs to be recognised now. how long before nobody listens and the skull fuses or dameges the brain. my baby has had the condition since birth and we were advised to reposition the baby,s head and it would reshape its self but its actualy got worse its a blaten condition and after all a baby can not say im in pain or uncomfortable with my head lets wake up to this now and treat it at an early stage. yes it saves lives sleeping on your back but their are other problems to adress im not being funny but it dosnt take a rocket sicentist to see that repotioning to a serious baby,s plagiocephaly condition is going to work. it isnt going to. proof being in my four year old son colby who has a very flat head at the back we were told by medical staff and health visitors it would round off in time his skull is still very soft and not to wory. but in actual fact it is flat this alone for me and my family and many other familys who work very hard and pay all our tax money and lots of it. is proof that repositioning doesnt always work. i am personaly going to fight till my death if i have to to get this recognised in this contry.lets wake up now because it might be your child next. to the experts who wont recognise this condition.their are people who just cant afford for private treatment and just get fobbed off on the nhs because we havent recognised this condition.these are baby,s who depend on us for everything so why are we neglecting them its cruel |
| 1997 | Anonymous | Anonymous | | UK | this condition really needs to be recognised and all gps to be aware. |
| 1998 | tara | wiffen | | UK | i think its disgusting that the nhs wont pay for the treatment but at the same time they make no effort to prevent it. i took my son to the doctor who said he was fine.however the specialist i asked to be referred to told me the truth and i was told i should get him the treatment and am now faces with raising £2000. |
| 1999 | Anonymous | Anonymous | | UK | |
| 2000 | JULIE | GLOSSOP | | UK | My daughter has just completed her treatment. She wore her helmet for eight months. The NHS did not care about my initial concerns and bilttled me when I made the decision for my daughter to go ahead with treatment. I paid the best part of £3000 for treatment. Why do we have the NHS in this country? |
