They actually finally agreed to open the investigation and I am still trying to process the news because it feels like we were banging on a locked door for forever. I am honestly just so relieved for every single person who dealt with those dismissive doctors and felt like they …
The undersigned citizens of the United States urgently request a U.S.
government oversight hearing to determine why the Centers for Disease
Control (CDC) is taking so long to investigate the cause of Morgellons
Disease. The CDC has admitted that it has been receiving citizen
complaints of symptoms of this disease for over a decade. Letters from
senators from a number of states to the CDC calling for action on this
apparently infectious condition that now affects about 9000 families
have resulted in NO apparent investigation thus far by the CDC.
Recently, a government oversight hearing was called for to investigate
complaints of contaminated pet food and determined that there was system
wide failure by the FDA to protect pets from contaminated foods. We
believe ill and suffering individuals are at least as important as sick
pets. There were a number of pet deaths attributable to tainted pet
food. At least 15 persons have died directly or indirectly after being
affected by Morgellons disease and thousands more are suffering and
becoming disabled.
Most were misdiagnosed as being delusional by dermatologists, largely
untrained in psychiatric conditions, using badly flawed inaccurate and
unsupportable assertions in the literature. Scientists have identified
some of the physical manifestations of this disease using dermatoscopes,
microscopes, DNA analysis and chromatography. The manifestations of
this disease are real, multisystemic and progressive, not delusional.
However the etiologic agent has so far not matched any known human
pathogen. There is no cure. Time is of the essence since one half of
the 9000 people identifying themselves as ill with this disease have
done so within in the past six months. This may represent an emerging
epidemic. In our opinion, the CDC is failing in its obligation of
\"controlling the introduction and spread of infectious diseases,\" and
we, the taxpayers have a right to know why this is happening and to have
the current apparent failure of the CDC addressed immediately.
I was just looking at the count and realized we are creeping up on that huge milestone and it honestly makes my head spin thinking about how many people finally see what is happening. If everyone who is reading this right now could just grab one more person to put their name down we might actually force them to pay attention before the week is out because my patience is wearing paper thin with this silence.
Reached 1,000 supporters
May 28, 2007
May 13, 2007
I was just staring at the screen and realized how much steam this has actually picked up while I was busy trying to find a doctor who would listen. It is honestly overwhelming to see so many people who know this is real even if the agencies keep pretending otherwise because honestly we are tired of being told it is all in our heads when the physical evidence is right there under a microscope.
Reached 100 supporters
April 24, 2007
104 Comments
S
Sarah Herrier
2 years ago
Featured
Please. This is a real condition. We are not all delusional. There may be some but the rest of us are telling the truth and it is RUINING THE ONE LIFE WE HAVE TO LIVE. I have 2 young boys and they need their mother. I need help from a medical standpoint. Not psychiatric. Be part if the brave few who change history and lives.
A
Anonymous
11 years ago
Featured
I have had this disease for over 7 years and it has been devastating. The medical community refuses to do anything at all to try and diagnose and treat the symptoms. The CDC has a moral obligation to the taxpayers to properly research the underlying pathology of what we call Morgellons.
R
Rochelle kabilio
3 months ago
I have morgellons 4 years. I know how I got it and where it is
S
Skyler Ford
5 months ago
Forrealia
A
Anonymous
1 year ago
Medical gaslighting is not ok.
K
Katie Ibbetson
1 year ago
I CANNOT live this way for the rest of my life.
A
Anonymous
1 year ago
I have been dealing with a horrible skin issue amongst other health issues that just appeared one day and after seeing numerous doctors and going through numerous treatments it has only gotten worse. I see so many people going through the same thing online and we are not crazy like doctors have told many of us! Something must be done!
T
Tarra Zeoli
2 years ago
I myself have been suffering from Morgellons for atleast 4 years. It is maddening and lonely to the point that it has effectedy will to live. I was pushed off by a dermatologist told I had delusional parasitosis and to see my psychiatrist. My psychiatrist said he has never in 30years met someone w delusional parasitosis, there was always other underlying factors at play. In the future O believe we will come to realize how many people could have saved, with earlier action. Please help us the suffering is real and torturous!!
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They actually finally agreed to open the investigation and I am still trying to process the news because it feels like we were banging on a locked door for forever. I am honestly just so relieved for every single person who dealt with those dismissive doctors and felt like they …
The undersigned citizens of the United States urgently request a U.S.
government oversight hearing to determine why the Centers for Disease
Control (CDC) is taking so long to investigate the cause of Morgellons
Disease. The CDC has admitted that it has been receiving citizen
complaints of symptoms of this disease for over a decade. Letters from
senators from a number of states to the CDC calling for action on this
apparently infectious condition that now affects about 9000 families
have resulted in NO apparent investigation thus far by the CDC.
Recently, a government oversight hearing was called for to investigate
complaints of contaminated pet food and determined that there was system
wide failure by the FDA to protect pets from contaminated foods. We
believe ill and suffering individuals are at least as important as sick
pets. There were a number of pet deaths attributable to tainted pet
food. At least 15 persons have died directly or indirectly after being
affected by Morgellons disease and thousands more are suffering and
becoming disabled.
Most were misdiagnosed as being delusional by dermatologists, largely
untrained in psychiatric conditions, using badly flawed inaccurate and
unsupportable assertions in the literature. Scientists have identified
some of the physical manifestations of this disease using dermatoscopes,
microscopes, DNA analysis and chromatography. The manifestations of
this disease are real, multisystemic and progressive, not delusional.
However the etiologic agent has so far not matched any known human
pathogen. There is no cure. Time is of the essence since one half of
the 9000 people identifying themselves as ill with this disease have
done so within in the past six months. This may represent an emerging
epidemic. In our opinion, the CDC is failing in its obligation of
\"controlling the introduction and spread of infectious diseases,\" and
we, the taxpayers have a right to know why this is happening and to have
the current apparent failure of the CDC addressed immediately.
I was just looking at the count and realized we are creeping up on that huge milestone and it honestly makes my head spin thinking about how many people finally see what is happening. If everyone who is reading this right now could just grab one more person to put their name down we might actually force them to pay attention before the week is out because my patience is wearing paper thin with this silence.
Reached 1,000 supporters
May 28, 2007
May 13, 2007
I was just staring at the screen and realized how much steam this has actually picked up while I was busy trying to find a doctor who would listen. It is honestly overwhelming to see so many people who know this is real even if the agencies keep pretending otherwise because honestly we are tired of being told it is all in our heads when the physical evidence is right there under a microscope.
Reached 100 supporters
April 24, 2007
104 Comments
S
Sarah Herrier
2 years ago
Featured
Please. This is a real condition. We are not all delusional. There may be some but the rest of us are telling the truth and it is RUINING THE ONE LIFE WE HAVE TO LIVE. I have 2 young boys and they need their mother. I need help from a medical standpoint. Not psychiatric. Be part if the brave few who change history and lives.
A
Anonymous
11 years ago
Featured
I have had this disease for over 7 years and it has been devastating. The medical community refuses to do anything at all to try and diagnose and treat the symptoms. The CDC has a moral obligation to the taxpayers to properly research the underlying pathology of what we call Morgellons.
R
Rochelle kabilio
3 months ago
I have morgellons 4 years. I know how I got it and where it is
S
Skyler Ford
5 months ago
Forrealia
A
Anonymous
1 year ago
Medical gaslighting is not ok.
K
Katie Ibbetson
1 year ago
I CANNOT live this way for the rest of my life.
A
Anonymous
1 year ago
I have been dealing with a horrible skin issue amongst other health issues that just appeared one day and after seeing numerous doctors and going through numerous treatments it has only gotten worse. I see so many people going through the same thing online and we are not crazy like doctors have told many of us! Something must be done!
T
Tarra Zeoli
2 years ago
I myself have been suffering from Morgellons for atleast 4 years. It is maddening and lonely to the point that it has effectedy will to live. I was pushed off by a dermatologist told I had delusional parasitosis and to see my psychiatrist. My psychiatrist said he has never in 30years met someone w delusional parasitosis, there was always other underlying factors at play. In the future O believe we will come to realize how many people could have saved, with earlier action. Please help us the suffering is real and torturous!!
Please. This is a real condition. We are not all delusional. There may be some but the rest of us are telling the truth and it is RUINING THE ONE LIFE WE HAVE TO LIVE. I have 2 young boys and they need their mother. I need help from a medical standpoint. Not psychiatric. Be part if the brave few who change history and lives.