Without trials of this cure/treatment in the UK, those diagnosed are having to fund raise huge sums of money to try and gain access to HSCT abroad. We recently have gained access to a new medical journal which highlights the benefits these trials are having and as such are petitioning for HSCT trials to be made available for SPS sufferers in the UK.Without treatment those with SPS have very limited options and their futures are bleak.

Treatment abroad is expensive and adds extra pressure for those needing to travel with weakened immune systems, recovery time and risk of infection all needing monitoring.It would be safer all round to get this treatment in the UK so please show your support by signing this petition.