MINIMISING THE INCIDENCE OF PLAGIOCEPHALY IN BABIES

This petition is being created by parents of babies suffering from plagiocephaly, and is aimed primarily at the NHS Scotland and Scottish Executive. We are planning on submitting this petition to the Scottish Parliament towards the end of May 2006. We are asking that the following 4 points are considered. 1. The NHS modify their current legislation to include mandatory evaluation of babies (at birth and 6 week check up) for plagiocephaly and torticollis. Should torticollis be present, the baby should then be treated by a physiotherapist urgently. Should signs of plagiocephaly be present then parents should be advised of repositioning techniques. These techniques should include:- Supervised tummy time when baby is awake Ensuring that the baby does not spend prolonged time with his/her head resting against hard surfaces (eg. car seat, buggy, play gymn on floor). When baby is placed to sleep on his/her back (as advised by SIDS \"Back to Sleep\" leaflet). Parents should be advised to ensure that baby\'s head is placed to the left one night, right the next then centre. This is to avoid prolonged pressure on one part of the skull. 2. The Scottish Executive/NHS update their current leaflet on Cot Death \"Back to Sleep\" to include information on Plagiocephaly and preventative measures (repositioning). 3. Funds should be made available for a medical trial to take place with unresolved cases of Plagiocephaly (babies around 6 months of age) using cranial remoulding treatment (helmet). The helmet is individually moulded to the baby

Sponsor

My name is Claire McCready and I am the mother of Robbie (10 months) who suffers from Plagiocephaly and is currently undergoing helmet treatment. At present the treatment is not available on the NHS and no private clinics are located in Scotland. Robbie\'s treatment cost

Links

http://www.headstart4babies.co.uk (the only U.K. charity who can arranges for babies with plagiocephaly to be treated for the condition by cranial remoulding (helmet) treatment. They also give out free advise to worried parents and can if required put parents in touch with other families in their area). http://torticolliskids.org (information on torticollis)

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