Too Rare To Care @ newborn screening for glutaric aciduria type 1

Signatures 627 total

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1. 551
   Name: Sarah -Jane Hurley on Jan 11, 2013

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2. 552
   Name: Barbara Rehfuss on Jan 11, 2013

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3. 553
   Name: Maria O Connor on Jan 11, 2013

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4. 554
   Name: Shelly Roche on Jan 11, 2013

   Comments: make the government add ga1 to newborn screening !!!

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5. 555
   Name: Alice Power on Jan 11, 2013

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6. 556
   Name: Alice Cullen on Jan 11, 2013

   Comments: Make the government add ga1 to newborn screening

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7. 557
   Name: Alice Cullen on Jan 11, 2013

   Comments: Make the government add ga1 to newborn screening

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8. 558
   Name: Dianna Harris on Jan 11, 2013

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9. 559
   Name: Amy on Jan 11, 2013

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10. 560
    Name: Shelly Roche on Jan 11, 2013

    Comments: make the government add ga1 to newborn screening !!!

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11. 561
    Name: Doreen Roche on Jan 11, 2013

    Comments: make the government add ga1 to newborn screening !!!

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12. 562
    Name: Frances Healy on Jan 11, 2013

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13. 563
    Name: Frances Healy on Jan 11, 2013

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14. 564
    Name: Emma Angell on Jan 11, 2013

    Comments: Lets just hope they take notice i have my fingers crosst

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15. 565
    Name: Tara Mc Sherry on Jan 12, 2013

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16. 566
    Name: Betty Busch on Jan 12, 2013

    Comments: my prayers and love to all of the parents and their children - you are all my heroes :)

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17. 567
    Name: Rebecca on Jan 12, 2013

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18. 568
    Name: Amy on Jan 12, 2013

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19. 569
    Name: Michelle Leahy on Jan 12, 2013

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20. 570
    Name: Lillian Russell on Jan 12, 2013

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21. 571
    Name: Ruth Freeman on Jan 12, 2013

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22. 572
    Name: Tara Nagle on Jan 13, 2013

    Comments: Liam is a beautiful small man x x

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23. 573
    Name: Kerry O' Connor on Jan 13, 2013

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24. 574
    Name: Pam Meehan on Jan 13, 2013

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25. 575
    Name: Kathleen Keating on Jan 13, 2013

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26. 576
    Name: Suzanne Askins on Jan 13, 2013

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27. 577
    Name: Allison Marlow on Jan 13, 2013

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28. 578
    Name: Arsene Gangama on Jan 13, 2013

    Comments: ALL RARE DISEASES MUST BE CURE !

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29. 579
    Name: Amy on Jan 13, 2013

    Comments: MAKE THIS HAPPEN, HELP SAVE LIVES!

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30. 580
    Name: Elaine Begley on Jan 13, 2013

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31. 581
    Name: Anonymous on Jan 14, 2013

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32. 582
    Name: Erica Kelliher on Jan 14, 2013

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33. 583
    Name: Jenny Marino on Jan 14, 2013

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34. 584
    Name: Claire Farrell on Jan 14, 2013

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35. 585
    Name: Audrone Vosyliene on Jan 15, 2013

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36. 586
    Name: Amber Johnston on Jan 15, 2013

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37. 587
    Name: Jodie Murphy on Jan 15, 2013

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38. 588
    Name: Jodie Murphy on Jan 15, 2013

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39. 589
    Name: Sarah Gallagher on Jan 15, 2013

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40. 590
    Name: Anonymous on Jan 16, 2013

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41. 591
    Name: Victoria Conner on Jan 16, 2013

    Comments: This is imperative that you include this test in your newborn screening. Do you realize it will cost less to include it for every baby born than it would to care for 1 child who has suffered brain damage due to not knowing early?!!

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42. 592
    Name: HeatherRae Sprague on Jan 18, 2013

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43. 593
    Name: Gina Grant on Jan 18, 2013

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44. 594
    Name: Debbie Brosnan on Jan 18, 2013

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45. 595
    Name: Angela Lynch on Jan 20, 2013

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46. 596
    Name: Beth-ann Arechiga on Jan 21, 2013

    Comments: All countries need to test for metabolic disorders and save countless children from lives that are cut short or filled with daily struggles to live.

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47. 597
    Name: Tara Hornbarger on Jan 25, 2013

    Comments: My daughter was saved by enhanced NBS. She was confirmed with GA-1 4 January 2013 and is doing well so far.

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48. 598
    Name: Geraldine Cataldo on Jan 27, 2013

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49. 599
    Name: Janet Jonas-Oliver on Jan 27, 2013

    Comments: Each child that is screened has a much better outcome to the point where they will have no brain damage. The ones that are not screened will get brain damage and have severe physical disabilities for the rest of their lives. Please start screening for this significant metabolic disorder.

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50. 600
    Name: Josie O Sullivan on Jan 27, 2013

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