Too Rare To Care @ newborn screening for glutaric aciduria type 1

Signatures 627 total

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1. 451
   Name: Stephanie McCarthy on Jan 8, 2013

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2. 452
   Name: Mary Terenzio on Jan 8, 2013

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3. 453
   Name: Lisa Lathan on Jan 8, 2013

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4. 454
   Name: Mary Bell on Jan 8, 2013

   Comments: Please listen to the voice of the people.add Glutaric Aciduria Type 1 to the list of newborn screening. this is a matter of life and death.

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5. 455
   Name: Agnes Matthews on Jan 8, 2013

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6. 456
   Name: Mags Harty on Jan 9, 2013

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7. 457
   Name: Kathleen on Jan 9, 2013

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8. 458
   Name: Sandra Sheehan on Jan 9, 2013

   Comments: Let's give each newborn a chance by screening

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9. 459
   Name: Sarah Reen on Jan 9, 2013

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10. 460
    Name: Kathy Key on Jan 9, 2013

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11. 461
    Name: Daniel Clarke on Jan 9, 2013

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12. 462
    Name: Rob Hudson on Jan 9, 2013

    Comments: My daughter has GA-1 and was saved by newborn screening in the US!

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13. 463
    Name: Jane on Jan 9, 2013

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14. 464
    Name: Ellen Ganek on Jan 9, 2013

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15. 465
    Name: Maree on Jan 9, 2013

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16. 466
    Name: Alvin Miller on Jan 9, 2013

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17. 467
    Name: Joan Kennedy McGorrian on Jan 9, 2013

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18. 468
    Name: Martina Giquinto on Jan 9, 2013

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19. 469
    Name: Eithne Murphy on Jan 9, 2013

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20. 470
    Name: Mary O Callaghan on Jan 9, 2013

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21. 471
    Name: Micheal Lenihan on Jan 9, 2013

    Comments: if anything is worth signing this is

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22. 472
    Name: Oliver Foley on Jan 9, 2013

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23. 473
    Name: Niamh O Neill on Jan 9, 2013

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24. 474
    Name: Ralph Pate on Jan 9, 2013

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25. 475
    Name: Courtney Cochran on Jan 9, 2013

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26. 476
    Name: Lucy Shell on Jan 9, 2013

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27. 477
    Name: Joanne Maher on Jan 9, 2013

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28. 478
    Name: Celine Lehane on Jan 9, 2013

    Comments: best of luck hope this helps x

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29. 479
    Name: Denise Madden on Jan 9, 2013

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30. 480
    Name: Fiona Whelton on Jan 9, 2013

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31. 481
    Name: Raylene Bryans on Jan 9, 2013

    Comments: a little test goes a long way...my son too had a crisis before being diagnosed with GA1 now the Australian government screen newborns

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32. 482
    Name: Meabh Cournane on Jan 9, 2013

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33. 483
    Name: Melanie Costi on Jan 9, 2013

    Comments: My brother and sister suffer from GA1. This would have been prevented from screening.

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34. 484
    Name: Nicola Murphy on Jan 9, 2013

    Comments: This should be a mandatory test for a new born as in my opinion if caught early the child could start out life as it means to go on and not suffer due to an unknown condition

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35. 485
    Name: Sheena O Sullivan on Jan 9, 2013

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36. 486
    Name: Irene Tuite on Jan 9, 2013

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37. 487
    Name: Elaine HOrgan on Jan 9, 2013

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38. 488
    Name: Claire Maher on Jan 10, 2013

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39. 489
    Name: Cliona Duggan on Jan 10, 2013

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40. 490
    Name: Krystal Johnson on Jan 10, 2013

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41. 491
    Name: Vanessa Palamanos on Jan 10, 2013

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42. 492
    Name: Gene Miller on Jan 10, 2013

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43. 493
    Name: Carmel Russell on Jan 10, 2013

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44. 494
    Name: Dominique Prather on Jan 10, 2013

    Comments: my daughter laila also has ga-1 that could have been detected with NBS

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45. 495
    Name: Sandi Smith on Jan 10, 2013

    Comments: very very very importnat test that needs to be included on all new born screenings! would save many lives

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46. 496
    Name: BEtty Williams on Jan 10, 2013

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47. 497
    Name: Katrina Starling on Jan 10, 2013

    Comments: I think every coumtry should dcreen for it.

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48. 498
    Name: Margaret Hendrick on Jan 10, 2013

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49. 499
    Name: Yairet Pelaez-Milla on Jan 10, 2013

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50. 500
    Name: Nicole Lowry on Jan 10, 2013

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