Sign Petition

Too Rare To Care @ newborn screening for glutaric aciduria type 1

638 Signatures Goal: 50,000

This is a petition to the Irish Government to add Glutaric Aciduria Type 1 to the list of newborn screening as this is a rare life threatening metabolic disorder. My son Liam has Brain Damage and struggles everyday due to this metabolic disorder that went undiagnosed until he suffered a crisis which changed my 3 month old baby boy from able to disabled overnight !!! This could have been avoided if his disorder Glutaric Aciduria Type 1 was screened for on newborn screening just like most other countries !!! Ireland and Cyprus dont screen for GA1 ... So please please sign this petition so i can hand it to our government and make them hear us !!! The next child diagnosed with this will also be disabled or dead because it wont be caught at birth and treated ... this can really make a difference and even if it only saves the life of just 1 child, 1 family that will make it worth it and that will be a change !!! please sign this in support of Liam and what should have helped him to live without a disability !!! please share and thank you so much @ www.facebook.com/liamtooraretocare

Links

http://www.facebook.com/liamtooraretocare

http://www.youtube.com/user/pam261981

  • Molly Parks
    Feb 27, 2015
    Feb 27, 2015
    My son has GA-1 and was diagnosed through Newborn Screening in the US. Due to his early diagnosis and intervention, he is living crisis free.
  • Anonymous
    Anonymous
    Feb 27, 2015
    Feb 27, 2015
    My son has GA-1 and was diagnosed through Newborn Screening in the US. Due to his early diagnosis and intervention, he is living crisis free.
612

Signatures

  • 4 months ago
    Cathy Johnson
    4 months ago
  • 4 months ago
    Suanne
    4 months ago
  • 4 months ago
    kim
    4 months ago
  • 5 months ago
    Diana Gordon
    5 months ago
  • 11 months ago
    angel hall
    11 months ago
  • 2 years ago
    Kem Baker
    2 years ago
  • 2 years ago
    maggie harrington
    2 years ago
  • 2 years ago
    Jennifer Cockman
    2 years ago
  • 2 years ago
    social bookmarking service
    2 years ago
  • 2 years ago
    Pamela dennehy
    2 years ago
  • 2 years ago
    lorraine leahy
    2 years ago
  • 2 years ago
    kasia
    2 years ago
  • 2 years ago
    Jolanta Laskowski
    2 years ago
  • 2 years ago
    bookmaring service
    2 years ago
  • 2 years ago
    bookmaring service
    2 years ago
See More