CDC CFS research should not involve the empirical definition (2005)

Signatures 2605 total

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1. 2551
   Name: Eileen Whitfield on Sep 25, 2011

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2. 2552
   Name: Chris Heppner on Sep 25, 2011

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3. 2553
   Name: Scott Griffiths on Sep 25, 2011

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4. 2554
   Name: Anonymous Facebook user on Sep 25, 2011

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5. 2555
   Name: Jeannette Burmeister on Sep 25, 2011

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6. 2556
   Name: Terry Hunt on Sep 27, 2011

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7. 2557
   Name: Jay Spero on Sep 28, 2011

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8. 2558
   Name: Sarah Robinson on Oct 4, 2011

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9. 2559
   Name: Pat K. Mayer on Oct 4, 2011

   Comments: This old and out-dated version of ME formerly known as CFS should be removed from the CDC entirely. It gives someone looking for information the wrong idea about the seriousness of this disease and confuses the issue of research criteria.

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10. 2560
    Name: Daniela Martins on Nov 23, 2011

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11. 2561
    Name: Matthew Fairman on Nov 24, 2011

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12. 2562
    Name: Anonymous on Nov 24, 2011

    Comments: I'd like to see the CDC adopt the International Consensus Criteria.

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13. 2563
    Name: Catherine Broughton on Nov 24, 2011

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14. 2564
    Name: Dr John H Greensmith on Nov 24, 2011

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15. 2565
    Name: Anita De Laguna Haviland on Nov 24, 2011

    Comments: I've had it since 1987.

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16. 2566
    Name: Billie Moore on Nov 24, 2011

    Comments: No definition should be used by any researcher, funded by the CDC or any other entity, except for the International Concensus Criteria of 11/2011. Results will be invalid because the wrong criteria select the wrong subjects. Garbage in, garbage out.

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17. 2567
    Name: Teresa F on Nov 25, 2011

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18. 2568
    Name: Niina Koch on Nov 25, 2011

    Comments: We desperately need a definition of CFS that describes what is going on with us, not just what some researchers want to study. . And get away from the "all in the mind" orientation -- there is a world of difference between clinical depression and the depression that follows having your whole world taken away from you. . Almost twenty-two years and counting -- Nina Koch

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19. 2569
    Name: Otis Quila on Nov 27, 2011

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20. 2570
    Name: Anonymous on Nov 27, 2011

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21. 2571
    Name: Eric Schmalz on Dec 1, 2011

    Comments: I can't think of any reason why it would be better to use the "empirical definition" than one of the established definitions, such as the 1994 Fukuda criteria or the Canadian Consensus Criteria. I agree with the points made in the text of this petition. Studies that use this definition hurt the scientific effort to better understand Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and are wasting scarce resources. Please stop using the 2005 "empirical definition".

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22. 2572
    Name: Cornelia Saxer on Dec 1, 2011

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23. 2573
    Name: Frank Feldmann on Dec 1, 2011

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24. 2574
    Name: Patrizia Giorgi on Dec 1, 2011

    Comments: mi pare che la faccenda si sia protratta bel oltre l'ammissimibile, sarebbe ora di smetterla di prendere per i fondelli i malati

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25. 2575
    Name: Olaf Loch on Dec 1, 2011

    Comments: Use Fukuda!

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26. 2576
    Name: Anonymous on Dec 1, 2011

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27. 2577
    Name: Tony Foran on Dec 2, 2011

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28. 2578
    Name: Anonymous on Dec 5, 2011

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29. 2579
    Name: Marilyn Jespersen on Dec 14, 2011

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30. 2580
    Name: Cornelia Saxer on Jan 3, 2012

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31. 2581
    Name: Anonymous on Jan 5, 2012

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32. 2582
    Name: Blair A. Miller on Jan 18, 2012

    Comments: Please do The right thing!

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33. 2583
    Name: Linda Vansteenwinckel on Jan 18, 2012

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34. 2584
    Name: L. Vansteenwinckel, For ME/CFS-Evolving Science on Jan 18, 2012

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35. 2585
    Name: Anonymous on Jan 18, 2012

    Comments: Better use ICC International Consensus Criteria 2011.

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36. 2586
    Name: Isabelle Schmalz on Jan 23, 2012

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37. 2587
    Name: Fergal O'Meara on Feb 13, 2012

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38. 2588
    Name: Anonymous on Feb 29, 2012

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39. 2589
    Name: Ursula E. Frei on Feb 29, 2012

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40. 2590
    Name: Frzyvkpm on Mar 6, 2012

    Comments: 1F4fgo qhvojtrxrgox, ohfgolpidrhh, ptgayzkylbpq, http://lggbgvrlfffp.com/

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41. 2591
    Name: Buy Cheap OEM Software on Mar 9, 2012

    Comments: WpjMl5 Wow, great article.Really looking forward to read more. Fantastic.

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42. 2592
    Name: Discount OEM Software on Mar 9, 2012

    Comments: cWeKD4 Great post.Much thanks again. Awesome.

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43. 2593
    Name: Mikaelle on Mar 21, 2012

    Comments: Im all for gay marriage. Gay popele are amazing lol and I dont just say that because I swing both ways love is love gender dose not mean shit

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44. 2594
    Name: Juliah on Mar 21, 2012

    Comments: It is obvious that there is great urnsdetanding about the psychology of chronic ilness. Like the short comment re: the role of the immune system, which I believe plays a role. Wondering if you have immunologists, endocrinologists, rheumatologists, cardiologists, neurologists, paiin management specialists, on staff or in a role consistent with the scenario of ME.

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45. 2595
    Name: Balsan on Mar 21, 2012

    Comments: to really rate the ecftfeiveness of the SBC kernels you need to get something that tells you the current being used, like Battery Monitor Widget. Even sbc kernels will sit at 100% but not truly be 100%. The only way to tell is when the current drops to 2mA and the battery is listed at at least 4200mV. This may take 30 minutes or more *after* the meter reads 100%.So if your sbc experience is such that it drops quickly after it is charged, I'd guess it is because it isn't 100%, no different than the stock charging situation.Me personally, I don't really care for sbc because the brainiacs at HTC must have done a bit more engineering than our favorite kernel hackers. And the little bit of extra life I am getting isn't worth it to me to make the point. I want the best life between 90% and 5%. So far the different to me running an sbc kernel is maybe an hour or so over a two day span. Big deal.my 2cents (yes tl;dr)

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46. 2596
    Name: Joel on Mar 21, 2012

    Comments: Kje6re lena. Det er lov e5 ve6re litt syk

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47. 2597
    Name: Tafokht on Mar 23, 2012

    Comments: HiThe 2D standard HD LED Samsung 8000 has a 60hz reesfrh rate so in principle can be used to show 3D using shutter glasses at 30 hz. The principle is that the images for the left eye and right eye are shown in rapid succession, and the shutter glasses block out the other eye alternately. But the screen reesfrh driver on the conventional screen randomly fills in the image, so that rapidly moving objects might not be redrawn at the same time between frames. This is what makes the 2D set unsuitable for 3D. The basic change is a couple of chips and firmware.In a way, it's planned obsolescence. They could adapt your set for very little money. But this is a way for the investors in 3D to get a stake and share in the new market. That's just the way our economy works

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48. 2598
    Name: Lourdes on Mar 23, 2012

    Comments: Most of the time I don't care about that upper 4-6% the various taetbry hack kernels improve on. I'm never far from a charger anyway. But I discovered by accident that if I listen to Pandora while charging, it pretty much does what the hacked kernels do. I'll pull it off the charger and shutdown Pandora, and it will stay at 99% for awhile and stop dropping at a normal rate from there. I would bet any low level activity like what Pandora is doing will trigger the same behavior. However, it does not do the same thing if I am just using the phone while it's charging. Weird.That's not an entirely normal charge pattern for me, but I've used it a few times when I knew I'd need that extra little amount of time.

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49. 2599
    Name: Trigga on Mar 23, 2012

    Comments: Yes, it's definitely the BFS kerenl. Both the CFS w/ autogroup and the BFS kerenls give me 1500+ at stock speed with smartass configured as default. In other words, I don't use SetCPU or anything else to change anything.Most likely what's happening is voltage related, either too much, or not enough. If it's the first, you can change that yourself, since -sqn's VDD sysfs interface is built in. If it's the later, I'm not going to raise the voltage any more than it already is. 1.22GHz works for some but not for all. I'd recommend either trying a lower VDD or a lower clock rate.Z

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50. 2600
    Name: Syarohh on Mar 23, 2012

    Comments: He5per du blir bedre snart, vi tenker alle pe5 deg! Ta den tiden du trgneer, som flere sier se5 skal man blogge ne5r man har lyst og ikke fordi man ff8ler man me5. Klem til deg.SVAR: Takk vennen! Du er god du! Jeg har lyst til e5 blogge, og syns fortsatt det er veldig gf8y. Problemet er vel egentlig at energien ikke er der til e5 fe5 gjort det se5 ofte som jeg helst vil for tiden. Klem tilbake (:

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