CDC CFS research should not involve the empirical definition (2005)

Sponsor

Tom Kindlon, a patient with Chronic Fatigue Syndrome (CFS) for over 20 years. I have done a lot of voluntary work in the area for over a decade. Recently I had 11 letters on CFS published in peer-reviewed medical journals [Archives of Physical Medicine and Rehabilitation, British Medical Journal (x2), Brain, Bulletin of the IACFS/ME, Journal of Rehabilitation Medicine (with Dr. EM Goudsmit), Pain Medicine, Psychological Medicine, Psychosomatic Medicine, Psychotherapy and Psychosomatics and the Lancet]. (The letter published in June 2010 edition of Psychosomatic Medicine lists many of my concerns - reference: Kindlon T. Criteria Used To Define Chronic Fatigue Syndrome Questioned. Psychosom Med 2010 72: 506-507). I also had a full paper published in the peer-reviewed journal, Bulletin of the IACFS/ME.

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Links

The paper defining the empirical/Reeves definition can be read at: http://www.biomedcentral.com/1741-7015/3/19

Some comments on the paper have been posted at: http://www.biomedcentral.com/1741-7015/3/19/comments  

An article by Leonard Jason PhD on the issue can be read at: http://tinyurl.com/2qdgu4  i.e. http://www.iacfsme.org/IssueswithCDCEmpiricalCaseDefinitionandPrev/tabid/105/Default.aspx

Jason, LA, Najar N, Porter N, Reh C. Evaluating the Centers for Disease Control's empirical chronic fatigue syndrome case definition. Journal of Disability Policy Studies 2008, doi:10.1177/1044207308325995. http://www.mecfswa.org.au/News_and_Media/News_Details/CDCs_Empirical_Definition_Further_Discredited/Default.aspx

Jason LA, Evans M, Brown A, Porter N, Hunnell J, Anderson V, Lerch A. Sensitivity and Specificity of the CDC Empirical Chronic Fatigue Syndrome Case Definition. Psychology, 2010, 1: 9-16, doi:10.4236/psych.2010.11002.

Full free text: 

http://www.scirp.org/Journal/PaperDownload.aspx?FileName=Psych.20100100010_41160698.pdf

"Defining CFS: The Debate Goes On" - article by the CAA explaining Dr Jason's study in layman's terms. It also includes some other comments on the criteria. http://www.cfids.org/cfidslink/2009/090203.asp

"How Science Can Stigmatize: The Case of Chronic Fatigue Syndrome" by Leonard A. Jason, PhD and Judith A. Richman, PhD Empiric criteria (Reeves, 2005) and CFS: what do we know about the percentage of CFS (empirc) patients who would satisfy the Fukuda definition from random number population studies in the US:

http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0810C&L=CO-CURE&P=R4166&I=-3

Recording of CAA webinar (April 14, 2010) by Leonard Jason    , "Defining CFS: Diagnostic Criteria and Case Definitions" (includes discussion of empiric criteria):

http://www.cfids.org/webinar/defining-cfs041410.wmv or http://www.youtube.com/watch?v=JelwLvzW6eI   Program slides:

http://www.cfids.org/webinar/jason-slides041410.pdf

Dr. Mary Schweitzer's piece, "CFS Research on CFS: Open Deception" http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1002b&L=co-cure&T=0&F=&S=&X=5EB41759C9BC1FDE2B&Y=tomkindlon%40gmail.com&P=823 

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