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More EDNF funding towards research

132 Signatures Goal: 250

Support for EDS Research Funding by EDNF. Please let us know if research for a cure for EDS is important to you. According to the EDNF site, they have not funded grant money towards scientific research since 2005. The following is from the EDNF website: "2006 to present EDNF has sought and published current research on its website and through its quarterly on-line newsletter, the PAN Hinge, The PAN Hinge provides up-to-date research regarding Ehlers-Danlos syndrome by body systems to medical professionals across the country. Through this publication, EDNF also shares the availability of each of its developed materials which offer researched based information directed for ophthalmology, dentistry, pediatric care, pain management and most recently, vascular Ehlers-Danlos syndrome." Despite several research fundraising drives, EDNF claims they have not had significant scientific research funding. It is very important to our cause that scientific research be made. We have family and friends who are needlessly suffering and dying from different types of EDS due to lack of scientific research. Do you think EDNF should cut overhead costs to allow for more spending towards outside scientific research to fight EDS?

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125

Signatures

  • 3 years ago
    Monica Cartwright United States
    3 years ago
  • 4 years ago
    Tracy Brown United States
    4 years ago
  • 4 years ago
    Rosemary Kane Carlough United States
    4 years ago
  • 4 years ago
    Margaret Lawrence United States
    4 years ago
  • 5 years ago
    Cathy Shehan United States
    5 years ago
  • 6 years ago
    Kim Reed United States
    6 years ago
  • 6 years ago
    vanessa Balter United States
    6 years ago
  • 6 years ago
    Dorothy Broderson United States
    6 years ago
  • 6 years ago
    Darlene Shafer Canada
    6 years ago
  • 6 years ago
    Traci Decker United States
    6 years ago
  • 6 years ago
    Jane Broderson United States
    6 years ago
  • 6 years ago
    Andra Smith Canada
    6 years ago
  • 6 years ago
    kelly burgis United Kingdom
    6 years ago
  • 6 years ago
    Suzanne Malhenzie United States
    6 years ago
  • 6 years ago
    zoe ashcraft United States
    6 years ago
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