PETITION TO SUPPORT AN NIH DOWN SYNDROME RESEARCH DATABASE & BIOBANK REGISTRY

I strongly support the creation of a formal Down syndrome contact registry, research database and biobank/tissue repository.   I am pleased that there have been a number of substantive meetings between leading Down syndrome organizations and the NIH to assist with the preliminary planning of such registries. I encourage you to consider the recommendations that have been proposed by these organizations.


I appreciate the NIH's renewed interest in Down syndrome research and urge you fund these essential components to improve the lives of people with Down syndrome.





Sponsor

Down Syndrome Research and Treatment Foundation

Links

Down Syndrome Research and Treatment Foundation


NIH Request for Information

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