Sign Petition

PETITION TO SUPPORT AN NIH DOWN SYNDROME RESEARCH DATABASE & BIOBANK REGISTRY

580 Signatures Goal: 1,000

I strongly support the creation of a formal Down syndrome contact registry, research database and biobank/tissue repository.   I am pleased that there have been a number of substantive meetings between leading Down syndrome organizations and the NIH to assist with the preliminary planning of such registries. I encourage you to consider the recommendations that have been proposed by these organizations.


I appreciate the NIH's renewed interest in Down syndrome research and urge you fund these essential components to improve the lives of people with Down syndrome.





Sponsor

Down Syndrome Research and Treatment Foundation

Links

Down Syndrome Research and Treatment Foundation


NIH Request for Information

Comment

536

Signatures

  • 4 years ago
    uujrtjc Poland
    4 years ago
  • 4 years ago
    uujrtjc France
    4 years ago
  • 4 years ago
    Robyn Barberi United States
    4 years ago
  • 4 years ago
    Mallory Schuh United States
    4 years ago
  • 4 years ago
    Michelle Hamilton United States
    4 years ago
  • 4 years ago
    Sue Johnson United States
    4 years ago
  • 4 years ago
    Linn Mitchell United States
    4 years ago
  • 4 years ago
    Lois Mitchell United States
    4 years ago
  • 4 years ago
    Denise Rodriguez United States
    4 years ago
  • 4 years ago
    Greg Mitchell United States
    4 years ago
  • 4 years ago
    Margaret Boshart United States
    4 years ago
  • 4 years ago
    Beverly Lobecker United States
    4 years ago
  • 4 years ago
    louisa nunan United States
    4 years ago
  • 4 years ago
    jessica scarlet United States
    4 years ago
  • 4 years ago
    Nancy Kletzing United States
    4 years ago
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