Signatures 401 total
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101
Name: D Flack on Mar 13, 2007State: NCCountry: USComments: Something has got to turn around. More people will die at their own hands. I know what that kind of pain can do. I have conditions that are documented as a chronic pain issue and can't find a doctor that will "HEAR" me.Flag
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102
Name: Tammy Martinez on Mar 14, 2007State: NMCountry: USComments:Flag
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103
Name: Anonymous on Mar 19, 2007State: KYCountry:Comments:Flag
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104
Name: Rhonda P on Mar 20, 2007State: ILCountry: USComments:Flag
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105
Name: Anna Buckner on Mar 21, 2007State:Country:Comments:Flag
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106
Name: Bonnie Mayfield on Mar 29, 2007State: MNCountry: USComments:Flag
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107
Name: Mayfield Bonnie on Mar 29, 2007State: MNCountry: USComments:Flag
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108
Name: Anonymous on Apr 6, 2007State:Country: AUComments: I have suffered for five years with severely incapacitating CRPS/RSD. It remains undermedicated and I see no relief on the horizon. My wife and I have no life together, we live as house-mates, not husband and wife. We live minute to minute not knowing what will inflame the pain. It is, at its worst, at least equivalent to the severely ruptured appendix I have experienced or worse and I live every other minute of my life with a pain score of 7/10. I am 50 years of age and have lost a good income, a job I enjoyed for 20 plus years with tenure and a life that I loved. I do not wish to live the rest of my life in this pain. I was otherwise perfeclty healthy. Tertiary qualifications are worthless as I am considerably less than a whole person. My countries' policies often follow closely the decisions made in the US. Help would be appreciated all around the world.Flag
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109
Name: Dana McCleery on Apr 7, 2007State: TXCountry: USComments:Flag
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110
Name: Valerie Jung on Apr 8, 2007State: TXCountry: USComments:Flag
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111
Name: Anonymous on Apr 8, 2007State: TXCountry: USComments: I AM A 59 YR OLD RETIRED CEO, BUSINESS OWNER/FOUNDER, FATHER OF FOUR, GRANDFATHER OF 8 (SOON TO BE 9-ALL UNDER AGE 5!)AND HAVE SUFFERED WITH CHRONIC PAIN SINCE AGE 14, SOME OF IT NEEDLESSLY. DIAGNOSED WITH YET ANOTHER NEUROLIGICAL DISEAESE FROM INJURIES FROM INJURIES I FIND I HAVE DUE TO MISDIAGNOSIS SUFFERED FAR TOO MUCH FROM THIS FOR THE LAST 3 YRS. 24/7--CONSTANT. THE DR.THAT FINALLY DIAGNOSED IT SEEMED SURPRISED THAT I WAS STILL AROUND AS FEW WOULD BE---AND NUMEROUS TIMES, I THOUGHT THAT WAS ON3Y OUT FROM THIS UNDESCRIBABLE PAIN--IT RANKS ABOVE ANY PAIN, IS TWICE THAT OF CHILDBITH AND AGAIN, NEVER STOPS. NO ONE KNOWS THEIR BODY AND CHEMISTRY BETTER THAN THEMSELVES. ADULTS MUST HAVE THE RGHT TO BE THEIR OWN DOCTORS ALWAYS AS SOMETIME THEY ARE THE ONLY ONES THAT KNOW. I HAD SIMILAR SITUATION THAT WENT ON FOR 19 YRS AND WAS NEVER GIVEN AN ASPR5N FR "PASSING GALLSTONES"--THEN RMVD ON EMERGENCY BASIS AND WAS MOST GANGRENOUS MTL EVER SEEN AT 50-60 YR OLD HOSPITAL. I DID NOT FIT PROFILE , I DID NOT SCREAM, I DID RUIN MANY YRS WITH NEEDLESS SUFFERING AS I WAS MY BEST DOCTOR. THANK YOU.Flag
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112
Name: Leslie C on Apr 9, 2007State: TXCountry: USComments:Flag
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113
Name: Renee McEvilly on Apr 9, 2007State: NYCountry: USComments:Flag
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114
Name: Heather Folsom on Apr 9, 2007State: OKCountry: USComments:Flag
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115
Name: Twinkle Van Fleet on Apr 10, 2007State: CACountry: USComments: It is necessary to implement the Chronic Pain Patient Registry. I urge all officials directly and indirectly involved to consider and establish this CPPR. It is crucial to our continued survival. Sincerely, Twinkle Van Fleet www.RSDAdvisor.comFlag
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Name: Kiernan Pahowka on Apr 10, 2007State:Country:Comments:Flag
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Name: Heidi Jarvis on Apr 11, 2007State: TXCountry: USComments: We need to promte the awareness of RSD.. RSD is a chronic painful disease that needs attention just as much as any other illness out there today!!!!Flag
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118
Name: ANN BEAUREGARD on Apr 12, 2007State: NHCountry: USComments: Living with RSD/CRPS has brought the meaning of pain to my life! And to the lives of my family, friends, and all that care about me..But I suffer the burning physical pain! never ending!Flag
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119
Name: Mary Burr on Apr 15, 2007State: TXCountry: USComments: After years of suffering and being on diability I can honestly say that this is a fantastic idea.Flag
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120
Name: Sylvia Blanco on Apr 23, 2007State: CACountry: USComments:Flag
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121
Name: Tiffany Gonda on Apr 24, 2007State: MACountry: USComments:Flag
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122
Name: LEONA SMITH on Apr 24, 2007State: KYCountry: USComments: LUPUS SUFFERER PAIN IS NOT BEARABLE NO INSURANCE NO HELP ANYWHERE FILED FOR SSI NO REPLYFlag
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123
Name: James Getlein on Apr 25, 2007State: NCCountry: USComments:Flag
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124
Name: Brandy Schoolcraft on Apr 26, 2007State: INCountry: USComments: I have had RSDS/CRPS Since 2001 Due to a work related injuryFlag
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125
Name: Amy Lay on May 1, 2007State: TNCountry: USComments: I can speak from personal experience as someone who has lived with chronic pain from interstitial cystitis and having adequate pain medication. It is the only way I can live a normal life & be able to work. It is a disgrace to made to feel like a criminal because you are surfering every day of your life! I have been a nurse for 35 years.Flag
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126
Name: Anonymous on May 6, 2007State: MACountry: USComments:Flag
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Name: Eliza Balis on May 8, 2007State: NYCountry: USComments:Flag
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128
Name: Shelly Zimbro on May 9, 2007State: WVCountry: USComments: I also have RSD.Flag
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129
Name: Julie Hand on May 9, 2007State: TXCountry: USComments:Flag
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130
Name: Pallavi Chetty on May 9, 2007State: CACountry: USComments:Flag
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131
Name: Glenda Hickox on May 10, 2007State: FLCountry: USComments:Flag
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132
Name: Heather Kroeger on May 10, 2007State: CACountry: USComments: I have a friend that I love dearly that suffers from chronic pain.Flag
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133
Name: Christopher Phillips on May 14, 2007State: MACountry: USComments: Please help the millions who needlessly suffer. I've lived in pain for 5 years now and have been undertreated for only 1 year. I am only getting a fraction of the medication that I really need. My doctor is a wonderful physician but scared of losing his practice. I dont want to get him in trouble, but I need help so badly...suicide is never far from my thoughts. Please start this registery, or help do somthing! over 50 million living in pain in the U.S. is unecceptable!Flag
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Name: JOSLYN WHITE on May 15, 2007State: TXCountry: USComments: I'M IN THE NEVER ENDING FIGHT WITH THIS ISSUE SINCE THE GULF WAR; AT A POINT NOW THAT I CAN'T KEEP A JOBFlag
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Name: Joey Spears on May 18, 2007State: KYCountry: USComments: The govt are like storm troopers when it comes to meds my mom has cancer and cant get adequate relieve I bet if Bush or Ted Kennedy needed meds they would have them. I am a christian and the hatred and unability to forgive dea FDA worries me I don't want to go hell for this I pray the gov't changes its way so they wont they wont be there with me. Peace to all have a pain free dayFlag
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Name: Anonymous on May 22, 2007State:Country:Comments:Flag
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Name: Anonymous on May 27, 2007State: FLCountry: USComments: The medical field needs to make a HUGE change in understanding chronic pain,---and it begins with LISTENING to the patient!! Then if a Dr. doesn't want to help or have the time,or even understand CP, at least refer the patient to a Dr. that will. Our "little co-pays" may mean something to them!!Flag
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Name: Anonymous on May 27, 2007State: FLCountry: USComments: The medical field needs to make a HUGE change in understanding chronic pain,---and it begins with LISTENING to the patient!! Then if a Dr. doesn't want to help or have the time,or even understand CP, at least refer the patient to a Dr. that will. Our "little co-pays" may mean something to them!!Flag
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139
Name: R. McKeithan on May 28, 2007State: NCCountry: USComments: I had the greatest doctor anyone could ever ask for. He understood my pain issues as well as work, social worker, and single mother. Since he is no longer here I have not been able to find an even decent physician who is willing to help me. I need help!Flag
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140
Name: Anonymous on Jun 1, 2007State: NCCountry: USComments:Flag
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141
Name: Kathy(Katy) Koch on Jun 2, 2007State: TXCountry: USComments: WE REALLY NEED THIS!!!!!!!!!!Flag
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142
Name: Susan Stringer on Jun 4, 2007State: NJCountry: USComments: I have been in pain since 1993 when, while performing my duties as an EMT, a speeding vehicle rammed into the side of our ambulance, causing me to become a projectile, and due to the Cervical Spine herniations and damage to tissue and other structures around the injured area, cause me frequent, clustering migraines which nothing seems to cure. Narcotics such as demerol, dilaudid, and vicodin help when nothing else does. What are we supposed to do, those of us in pain, when the doctors of NJ refuse to prescribe a safer alternative method other than surgical procedures to alleviate daily painJUSTICE!!!!Flag
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143
Name: Amy Rinker on Jun 5, 2007State: IACountry: USComments: Ditto!Flag
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144
Name: Leon Sandall on Jun 5, 2007State: WACountry: USComments: As someone who's watched their Aunt and now Father slowly succumb to ALS, I would implore anyone capable of affecting change to do so. Shauna Neumeister, contact me at "leon.sandall@gmail.com"Flag
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145
Name: Anonymous on Jun 7, 2007State: MICountry: USComments:Flag
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146
Name: John Chandler on Jun 10, 2007State: MICountry: USComments: The biggest obstacle for those of us in severe chronic intractable pain is we all can't get together and march (or wheelchair) ourselves to Washington DC and protest. It seems every group with whatever agenda has done it - because they could. It is sadly ridiculous. Like a bunch of shizophrenics trying to organize themselves to push for a cure or better treatment. They are unable to do so, prevented as such by their condition. The worst for all of us is our current state of living this slow suicide is SO easily preventable with just a few doses of WHATEVER is needed to stop to torment and agony in our minds and bodies. And those who stand so righteously in the way have blood on their hands that will never come off. Too bad they will never see it until they become like us. Which is something I pray happens to no one. I sometimes think it is purposely done to get us "sad pathetic people" to end our lives and the drain we seem to put on society. We are the Jews of Hitler's Germany. And there is no escape from the prison of our bodies other then medication or suicide. It is the hardest fact I have ever faced. And I am tired of turning the other cheek. It already hurts too much as it is. I lay the blame squarely on the shoulders of the iDEAts of this world who have so ingenious linked chonic pain patients with the war on drugs. The war on alcohol produced more alcoholic's no less and gave rise to organized crime. Such an unwise and insane act. Now drugs has kept millions in agony and is now giving rising to global organized crime. How long will it be until the religious right and all the anti-drug people get the f*ck out of our faces and let us live in peace and pain-free. I'll tell you when. Never. Because the vast majority of them will never "lay in our beds" (as many of us can't walk and have no need for shoes for them to someday feel. And they day even one of those sanctimonius it idiots so inhumanely point the gleeful fingers at us as problems to their insane and unachieveable goal of a drug-free society I will not say "thank god" but rather pray "Dear god, not another one."Flag
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147
Name: Anonymous on Jun 15, 2007State: HICountry: USComments:Flag
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148
Name: Anonymous on Jun 16, 2007State: TXCountry: USComments: My main conditions are Fibromyalgia and CFIDS, which started with a mumps like illness. My pain even with some NAISD's is so undertreated I can rarely leave home. I can't even find a Doctor who understands CFIDS. The pain is so severe and even living in Dallas a huge Metropolitan area, I can hardly find a doctor who will take a Fibro patient, non the less give them enough medicine.Flag
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149
Name: Travis Cooper on Jun 22, 2007State:Country: AUComments:Flag
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150
Name: Sandy Lewis on Jun 27, 2007State: CTCountry: USComments: I have CRPS and require medication. I am limited in what I can do - I can't drive, walk or stand for more than 1 hour, wear heels, dance, exercise, etc. I need help!!!Flag