 |
| # | First Name | Last Name | State | Country | Comments |
|---|
| 201 | Samantha | Kuhn | IL | US | |
| 202 | Cathy | Petheram | WA | US | I am in chronic pain, surgery has not helped l2-l4 fusion. There isn't a dr. around that will help. This is sad and should be criminal |
| 203 | richard | laing | FL | US | teminal ill last stages of chirrosis/gallstones/enlarged spleen/plattlets 30 and amonia levels high.dea hadarrested all pain manage clinics and can't recive metodone --only thua drug clnic all i wanted was a little quality of life before my days come to a halt |
| 204 | Benjamin | Vaughn | WI | US | I feel terribly for all of you who are suffering, and I can empathize. 4 years ago my central and periphrial nervous systems began to degenerate in a fatal if untreated Vitamin b12 deficiency causing Subacute Combined Degeneration of the Spinal Cord. I was unable to walk/stand or speak and within a month or two of death when i was finally diagnosed and injected with cobalamin. Severe nerve damage, most permanent, is extremely painful and four years later still very present. One thing I can say is that chronic pain sufferers can only go so long untreated before suicide and for many including myself this seemed the best possible solution to what eventually can only be described as unbearable quality of life, getting worse with time. At the point of when the suffering truely becomes unbearable believe me you will have rationalized through all the guilt of hurting/leaving your loved ones behind and can only hope that if there is a next time around you will get a healthy body and keep it safe until old age. I was an extremely athletic person and loved all things sports and healthwise until at 22 years old i became what people call a cripple. Lol, I guess it's true that you can have somewhat of a life in this condition, but those of you who are in this condition know why I "Lol". But when I was on my pain meds I was able to push on for the last four years. Now that I am no longer on pain medication I have regressed quite alot. And its just an equation of when the pain overwhelms the guilt, and the pain always wins with time. But for me I have accepted and am content with the way things have turned out. But for all those others people who are searching for help and have a desire to live and still have some joy in life, I only wish I had a magic wand to fix this country of its ridiculus practice o under treating pain sufferers. Because non of you guys deserve it and there are treatments availible. Getting rid of pain sufferers and resulting suicides first requires caring, then requires getting rid of the ignorance and myth that plagues these generations of legislators and medical community. I guess you can attempt to educate, but you can't teach caring....respectfully, A Victim of a Programmed Society |
| 205 | Anonymous | Anonymous | UT | US | |
| 206 | Anonymous | Anonymous | NJ | US | |
| 207 | Donald | Cunningham | AL | US | I suffer from chronic pain due to cervical spine problems. My physician said, "most all people in the 70's and beyond have much better cervical spine structure than I do", and I'm only 41 years old. Yet, I'm unable to get pain treatment in a "free" country. |
| 208 | carlon | blanford | AR | US | I live with chronic pain in the left side of my back. fell down a flight of stairs. If it wasn't for my faith in God and my dear sweet husband. I'd be dead,because this pain consumes me. I'm going to pain management, to receive pain medication. no matter how many pain medications we take, there's always some kind of pain. All us broken people want is a quality of life. I appreciate all who has signed this registry. I'm not alone. I'm learning to except this new broken me. I'm surprise I don't have mold in my house from all the tears I've shed.I couldn't live without my medication. Even with medication I lay 50% of my life on the couch, with a pillow between my legs.I hope and pray that people who are suffering like me, get the help they need for a quality of life. |
| 209 | Anonymous | Anonymous | MN | US | I have been dealing with RSD since I shattered my heel in eight pieces in July 2003. In the begining it was so bad I almost lost my leg. Was told the RSD could move up my leg and to my heart and kill me if I did not get massage therapy three days a week. I did all of that and it made it so it was not life threatening. I still have a ton of pain!!! I get treated like garbage when I call my perscription pain meds in if god for bid it is 1-2 days early. The reason I do that is because I start to panic when I am low because I just don't want to feel the burning and stabbing I feel. I have explained this to my doc and she is wonderful, until recently she left to care for children. I was routed to a colleauge of hers in the same clinic to keep my care the same. The eve of my visit with him he calls to say he is changing my meds to make it easier for him to track because "he has been worked before by patients". What was I supposed to do...I cried and straight out told him I am not one of those people. He is continuing my pain management, but I feel I need to look else where in case something changes. What is a person to do? I have had thoughts I do not want to think!! If it was not for my beautiful 31/2 yr old daughter I don't know where I would be. I to suffer with daily activities. The motivation to get out of bed to go to work and then after work trying to keep up with the house. Thank god for my BFF who comes over to help me clean out of the kindness of her heart and love for me. I don't even have to ask. She comes over to hang out and just gets up and does things. I want to be able to play at the park with my child and not hurt or say to her mama hurts honey I can't right now. Pain meds help me live! live! live! Someone needs to realize this.....Thanks for listening. All of the stories I have read are so honest and tru and so close to how I feel and what I deal with everyday...!!!! |
| 210 | Benjamin | Vaughn | WI | US | It is true, there will usually always be pain even with medication. Then there are those who are resistant to opiates, meaning usually they metabolize them rapidly which is why there are often immunity to morphine, Oxycodone etc. This immunity is a pretty bad curse because opiates are the main and often last resort in pain management. And as you all know they are a pain with the stringent laws and DEA pressure on doctors. Although things seem to be improving slowly in comparison to 20 years ago. But there are still people who smoked weed as a kid or got a dui at some time in their life and most likely can't get narcotic pain meds. Well, ironically marijuana has fairly good pain killing ability with the downside of taking away your energy and being mind altering which many of us don't like. Alcohol also has very good pain killing properties. Again downside of becoming intoxicated and makies having a normal life difficult being unable to work or drive. I guess the lucky ones are the ones who's pain is treated successfully by some form of non narcotic that doesn't hurt your liver and can be taken longterm without annoying side effects, almost giving your life back as it was before whatever pathology happened. But for the ones who suffer, if you aren't dying in the next 6 months good luck finding a pair of caring ears. To those who haven't been in this black underworld of chronic pain, not sleeping, no memory of the last time you felt happy, and entered the land of acceptance after passing through the lands of anger, unbelief, and hope...It is impossible for them to understand what you are going through or how bad it really is, after awhile you just smile and say I'm doing fine to all inquiries rare as they may be. Those who know what I'm saying exactly are the ones who have it really bad, you know what I mean. For you guys the best advice I can give is to not place your hopes in others to help you, if you do find a caring doctor that is awesome and heaven sent, the majority of us don't. And as long as you have yourself to lean on you know when you will and won't be let down. And a faint contentment settles in, its almost a happiness but not quite, it is a freedom though. The chronic pain sufferer is a slave of the worst kind. Either a slave to med's, doctors who must be kept happy, and a slave to hope which keeps flickering yet rarely delivering. My heart goes out to all you and always remember when you have noone else, remember that person who has been there through thick and thin never leaving your side. For that person is yourself and so much stronger than you can possibly realize. Love and Respect, Ben... |
| 211 | Travis | Bushey | MN | US | |
| 212 | Kelly | Tate | AZ | US | |
| 213 | Anonymous | Anonymous | AL | US | Yes, I have lived in chronic pain for the past 10 years. I have had over 25 surgerys on nunerious joints, the last two total knee replacments at the age of 46. I have severe arthitis in my neck, back, shoulders, hips. I have been diagnosed with Fibromyalgi. Dr told me I have had it for many years. I am now 52 and I see a chronic pain management Dr. I use duragesic 100 mg patch change it every 48 hours , i take one mepergan per day for break through pain, i also take one elavil before bed time. This brings my pain levels down from 10+ to 7-8 daily . I have not been giving any meds for my Fibromyalgi yet, I go back to my Rhum Dr at the end of the month. Can someone tell me of any meds that help Fibromyalgi ?. I hurt non stop all day and some days it hurts if someone touches me, I feel like I have the flu alot of days. Please let Drs treat us and help us. I dont abuse my meds, I dont drink I work every day and it is hard I could go on disability but I think I would not like sitting at home , I have a sit down job. Please let these pain Dr treat us. |
| 214 | Anonymous | Anonymous | | | |
| 215 | brian | hurley | MN | US | |
| 216 | Deborah | Garston | MA | US | I had a wonderful, caring doctor until his clinic was closed down. He waged a battle on behalf of his patients and his practice, until it finally killed him. He died of a heart attack in 2005. I will never forgive the people who are responsible for his death, and for so much pain and agony suffered by the patients of this great man. |
| 217 | Anonymous | Anonymous | NJ | US | I see a pain Dr Been on the same meds for6 years doc will not do a thing PM doctors scared to give meds War On Drugs is a war on The Drs and pain Suffers |
| 218 | Banik | Banik | VA | CY | Nice site chevrolet [URL=http://wtyryt.1gb.in/index.html]chevrolet[/URL] |
| 219 | Renee | Steiger | NJ | US | I suffer day in day out.I live in bed I need a good PM Doctor. And was told pain meds. were the only thing left for me. I can't find a doctor due to the WAR ON PAIN DOC"S AND PAIN SUFFERS. Been in pain along time Doctor to doctor losing hope. In pain a good 16 years.I find a Dr. put me on meds. give me my life back now the Doc is not going to give meds. due to many being jailed. DEA comes in pulls their hard drives, Thank You,
Doc giving up NO PAIN MEDS.
In Pain NJ
Renee |
| 220 | sam | galm | | CA | 150 patients in my town are losing their pain specialist who will be unable to prescribe a huge list of controlled substances in his practice for 3 years. In the last 2.5 years he has opened up a multidisplinary pain clinic. Many physicians refer there patients to this physician for he has an abundance of knowledge in chronic pain. This physician has done nothing to deserve this kind of discipline. The medical organization that has revoked his triplicate prescription priviledges are making an example out of him. So 150 of his patients will have to find another doctor to treat them. This is extremely difficult to do, as there is a shortage of physicians as it is, as well as no other doctors want to take pain patients, for fear of presecution themselves. We have had 1 suicide so far, that has been directly related to this. We need patients to stand up for there human rights. Nothing will get done unless people take a stand against these organizations that do not take chronic pain serious. Start small with a group of interested people who are capable of working together to bring attention to this very debilitating disease called pain. Then u will see people come out of the woodwork to offer their assistance. Don't take no for an answer. Policies have to change, Officials have to understand that chronic pain is real, and that people can die from it. Please don't just read this & do nothing. We are working step by step to have this physicians priviledges reinstated as well as policies changed & upgraded. Please do this for yourself or a loved one. It may be the most important issue you take on. Someday u may suffer with debilitating pain. Good Luck & God Bless! |
| 221 | Anonymous | Anonymous | CA | US | Why in the hell won't the USA goverment make the AMA or who ever make the Ketamine Coma treatment legal for people like myself who suffer with CRPS/RSD able to get it? If you have other medical problems they can put you in coma but not for RSD/CRPS. If you get RSD and not treated in time your life or what life you had is more or less over in many case's.
I hate to say it but hope my 84 y/o father drops over soon so I can go to Mexico for the COMA treatment, if I cant have it I just assume just shoot myself and just get it over with, life with RSD is not worth living, well its more like just existing and thats not good enough. I would rather have lost my right arm or been unable to ever have sex again then to have this horrible monster. I never thought I would want to commit suicide until I got RSD.
Gov people blocking RSD should be voted out off office.
God help us all! |
| 222 | Anonymous | Anonymous | MD | US | |
| 223 | Anonymous | Anonymous | KY | US | It is cruel to withhold any medication that allows one to live a productive life with such a debilitating disease. |
| 224 | Anonymous | Anonymous | ID | US | |
| 225 | j | houle | RI | US | |
| 226 | Anonymous | Anonymous | CA | US | My precious husband who was only 48 years old committed suicide on Aug. 10,2008 due to having his pump turned off with Prial which caused him to be severely undermedicated. He had CRPS/RSD and Cervical Myolopathy(severe neck disease). He was kind, loving, spiritual, showed humility and he is a most noble soul. Joyce Fishman |
| 227 | Anonymous | Anonymous | OK | US | For fear of putting my real name I am in extreme pain from head trauma, suffer from lupus, fibromyalgia, sjorens disease, lung diesease all of my life and severe migraines since five years. It is extremely hard to keep going on a daily basis. If it gets to the point I just get so tired of the constant pain I will take matters into my own hands because of your stupid strict laws that dont afford me much relief but make me suffer greatly and stay in this world of constant suffering to very minimal avail. Please let the people who are really in need get care and maintain their dignity instead of being treated as some one seeking some stupid high. Please change the laws as Hawaii has and give us the medicines we need until we die. |
| 228 | Lisa | Delmont | NY | US |
| 229 | Missy | Chandler | ID | US |
| 230 | Anonymous | Anonymous | FL | US | |
| 231 | Sandra | King | CO | US | Totally disabled from chronic pain, chronic fatigue sydrome and reflex sympathetic dystrophy--sufferer for 21 years. Now I have severe arthritis, degenerative disk disease, immune disorders, and dysfunction of entire body organs and systems. Can only receive three Darvocet daily--like taking aspirin for cancer, but the acetaminophen is killing me slowly. I cannot describe the severity of my pain; it feels like a torch is burning my skin and joints, my muscles and bones are being stretched in a torturing device, and railroad spikes are being driven into my bones. I feel like I was beaten in the head with a pipe and cannot turn from stiffness. Now I cannot use my hands at all and wonder how much longer I can walk (I crawl often). I found one doctor 21 years ago that really cared and worked until the right combination of meds, herbs, exercise,and beneficial therapies were found. What a kind man and uncomparable physician. I have seen hundreds of doctors since; they took away all helpful meds even after reviewing tests and records, and helped insurance companies deny all helpful modalities. I am convinced doctors take a perverse pleasure in watching patients suffer. I am not looking for drugs or for a high because I like neither. I am begging for relief of this unrelenting pain so that I might feel human again. Or I pray to let me go. |
| 232 | Sandra | King | CO | US | Totally disabled from chronic pain, chronic fatigue sydrome and reflex sympathetic dystrophy--sufferer for 21 years. Now I have severe arthritis, degenerative disk disease, immune disorders, and dysfunction of entire body organs and systems. Can only receive three Darvocet daily--like taking aspirin for cancer, but the acetaminophen is killing me slowly. I cannot describe the severity of my pain; it feels like a torch is burning my skin and joints, my muscles and bones are being stretched in a torturing device, and railroad spikes are being driven into my bones. I feel like I was beaten in the head with a pipe and cannot turn from stiffness. Now I cannot use my hands at all and wonder how much longer I can walk (I crawl often). I found one doctor 21 years ago that really cared and worked until the right combination of meds, herbs, exercise,and beneficial therapies were found. What a kind man and uncomparable physician. I have seen hundreds of doctors since; they took away all helpful meds even after reviewing tests and records, and helped insurance companies deny all helpful modalities. I am convinced doctors take a perverse pleasure in watching patients suffer. I am not looking for drugs or for a high because I like neither. I am begging for relief of this unrelenting pain so that I might feel human again. Or I pray to let me go.
I cannot donate at this time, but I will in the future so hopefully you can help others in pain |
| 233 | Tracy | Graham | TX | US |
| 234 | Deborah | McCurley | MD | US |
| 235 | Jason | Cu | PA | US | I have dealt wit low back pain for years now. I get up and go to work everyday making this country stronger. I am a pipefitter and my job is demanding physically. I will typically lift a 385lb pipe with a helper all day everyday. When I go to my (pcp) I am treated like a criminal for asking for relief. I will not break the law by going to an overseas pharmacie nor will I buy street drugs. I love my Country but hate the hoops I have to jump through just to prove I am in pain. HELP. I have become a miserable curmudgeon because I cannot find a provider who will prescribe something without taking the minimalist approach. MFNLS |
| 236 | Jeff | Ferrell | IN | US | I ave suffered with chronic pain since 1998 and over the last 6-10 months I have been unab le to find a dr. that will prescribe what I need, I dont have insurance and cant afford neck surgery, I am now contemplating suicide, or rather the thought briefly crossed my mind when it was at its worst |
| 237 | Nevajac | Moore | MA | US | |
| 238 | Juli | Jameson | VT | US |
| 239 | Anonymous | Anonymous | PA | US |
| 240 | Anonymous | Anonymous | PA | US |
| 241 | Donna | Ratliff | AL | US |
| 242 | Anonymous | Anonymous | KY | US | |
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