Signatures CHRONIC PAIN PATIENT REGISTRY Petition : [ powered by iPetitions.com ]

#	First Name	Last Name	State	Country	Comments
101	D	Flack	NC	US	Something has got to turn around. More people will die at their own hands. I know what that kind of pain can do. I have conditions that are documented as a chronic pain issue and can't find a doctor that will "HEAR" me.
102	Tammy	Martinez	NM	US
103	Anonymous	Anonymous	KY
104	Rhonda	P	IL	US	I am a person who has been in constant chronic pain for 8 yrs total now. I have Fibromyalgia among a small list of other things wrong that cause my chronic pain. I have started a support group in my area to offer help and support to those with Fibromyalgia, Chronic pain and related invisible illnesses and i am planning on doing whatever it takes to inform as many people as possible about Chronic pain and the impact it has on millions of Americans everyday. I will take it all the way to the White house if i have to to get the help that is possible for people who suffer in pain. No one should ever have to suffer when there is medicines out there to help us. I have finally found a doctor that listens to me for the most part and does give me some medicine to help ease the pain but it took seeing him over 6 months to get something that does help take the edge off so that i can at least get out of bed everyday. I am in no way bragging about getting some pain control, anyone who has contacted me about needing a good doctor i have given the name of the doctor to them so that they may take the steps to get better pain control. Anyone who wants to contact me for more information may go to my website at http://www.myspace.com/il_fibro_support_group. I hope that every person in pain will find help for their chronic pain.. It has pained me to read about all the people in the world who suffer in constant chronic pain when they should NEVER have to suffer. I am going to do whatever i have to do to help inform everyone that i can about chronic pain and the impact it has on people who suffer and their families.
105	Anna	Buckner
106	Bonnie	Mayfield	MN	US
107	Mayfield	Bonnie	MN	US
108	Anonymous	Anonymous		AU	I have suffered for five years with severely incapacitating CRPS/RSD. It remains undermedicated and I see no relief on the horizon. My wife and I have no life together, we live as house-mates, not husband and wife. We live minute to minute not knowing what will inflame the pain. It is, at its worst, at least equivalent to the severely ruptured appendix I have experienced or worse and I live every other minute of my life with a pain score of 7/10. I am 50 years of age and have lost a good income, a job I enjoyed for 20 plus years with tenure and a life that I loved. I do not wish to live the rest of my life in this pain. I was otherwise perfeclty healthy. Tertiary qualifications are worthless as I am considerably less than a whole person. My countries' policies often follow closely the decisions made in the US. Help would be appreciated all around the world.
109	Dana	McCleery	TX	US
110	Valerie	Jung	TX	US
111	Anonymous	Anonymous	TX	US	I AM A 59 YR OLD RETIRED CEO, BUSINESS OWNER/FOUNDER, FATHER OF FOUR, GRANDFATHER OF 8 (SOON TO BE 9-ALL UNDER AGE 5!)AND HAVE SUFFERED WITH CHRONIC PAIN SINCE AGE 14, SOME OF IT NEEDLESSLY. DIAGNOSED WITH YET ANOTHER NEUROLIGICAL DISEAESE FROM INJURIES FROM INJURIES I FIND I HAVE DUE TO MISDIAGNOSIS SUFFERED FAR TOO MUCH FROM THIS FOR THE LAST 3 YRS. 24/7--CONSTANT. THE DR.THAT FINALLY DIAGNOSED IT SEEMED SURPRISED THAT I WAS STILL AROUND AS FEW WOULD BE---AND NUMEROUS TIMES, I THOUGHT THAT WAS ON3Y OUT FROM THIS UNDESCRIBABLE PAIN--IT RANKS ABOVE ANY PAIN, IS TWICE THAT OF CHILDBITH AND AGAIN, NEVER STOPS. NO ONE KNOWS THEIR BODY AND CHEMISTRY BETTER THAN THEMSELVES. ADULTS MUST HAVE THE RGHT TO BE THEIR OWN DOCTORS ALWAYS AS SOMETIME THEY ARE THE ONLY ONES THAT KNOW. I HAD SIMILAR SITUATION THAT WENT ON FOR 19 YRS AND WAS NEVER GIVEN AN ASPR5N FR "PASSING GALLSTONES"--THEN RMVD ON EMERGENCY BASIS AND WAS MOST GANGRENOUS MTL EVER SEEN AT 50-60 YR OLD HOSPITAL. I DID NOT FIT PROFILE , I DID NOT SCREAM, I DID RUIN MANY YRS WITH NEEDLESS SUFFERING AS I WAS MY BEST DOCTOR. THANK YOU.
112	Leslie	C	TX	US
113	Renee	McEvilly	NY	US
114	Heather	Folsom	OK	US
115	Twinkle	Van Fleet	CA	US	It is necessary to implement the Chronic Pain Patient Registry. I urge all officials directly and indirectly involved to consider and establish this CPPR. It is crucial to our continued survival. Sincerely, Twinkle Van Fleet www.RSDAdvisor.com
116	Kiernan	Pahowka
117	Heidi	Jarvis	TX	US	We need to promte the awareness of RSD.. RSD is a chronic painful disease that needs attention just as much as any other illness out there today!!!!
118	ANN	BEAUREGARD	NH	US	Living with RSD/CRPS has brought the meaning of pain to my life! And to the lives of my family, friends, and all that care about me..But I suffer the burning physical pain! never ending!
119	Mary	Burr	TX	US	After years of suffering and being on diability I can honestly say that this is a fantastic idea.
120	Sylvia	Blanco	CA	US
121	Tiffany	Gonda	MA	US
122	LEONA	SMITH	KY	US	LUPUS SUFFERER PAIN IS NOT BEARABLE NO INSURANCE NO HELP ANYWHERE FILED FOR SSI NO REPLY
123	james	getlein	NC	US
124	Brandy	Schoolcraft	IN	US	I have had RSDS/CRPS Since 2001 Due to a work related injury
125	Amy	Lay	TN	US	I can speak from personal experience as someone who has lived with chronic pain from interstitial cystitis and having adequate pain medication. It is the only way I can live a normal life & be able to work. It is a disgrace to made to feel like a criminal because you are surfering every day of your life! I have been a nurse for 35 years.
126	Anonymous	Anonymous	MA	US
127	eliza	balis	NY	US
128	Shelly	Zimbro	WV	US	I also have RSD.
129	Julie	Hand	TX	US
130	Pallavi	Chetty	CA	US
131	Glenda	Hickox	FL	US
132	Heather	Kroeger	CA	US	I have a friend that I love dearly that suffers from chronic pain.
133	christopher	phillips	MA	US	Please help the millions who needlessly suffer. I've lived in pain for 5 years now and have been undertreated for only 1 year. I am only getting a fraction of the medication that I really need. My doctor is a wonderful physician but scared of losing his practice. I dont want to get him in trouble, but I need help so badly...suicide is never far from my thoughts. Please start this registery, or help do somthing! over 50 million living in pain in the U.S. is unecceptable!
134	JOSLYN	WHITE	TX	US	I'M IN THE NEVER ENDING FIGHT WITH THIS ISSUE SINCE THE GULF WAR; AT A POINT NOW THAT I CAN'T KEEP A JOB
135	Joey	Spears	KY	US	The govt are like storm troopers when it comes to meds my mom has cancer and cant get adequate relieve I bet if Bush or Ted Kennedy needed meds they would have them. I am a christian and the hatred and unability to forgive dea FDA worries me I don't want to go hell for this I pray the gov't changes its way so they wont they wont be there with me. Peace to all have a pain free day
136	Anonymous	Anonymous
137	Anonymous	Anonymous	FL	US	The medical field needs to make a HUGE change in understanding chronic pain,---and it begins with LISTENING to the patient!! Then if a Dr. doesn't want to help or have the time,or even understand CP, at least refer the patient to a Dr. that will. Our "little co-pays" may mean something to them!!
138	Anonymous	Anonymous	FL	US	The medical field needs to make a HUGE change in understanding chronic pain,---and it begins with LISTENING to the patient!! Then if a Dr. doesn't want to help or have the time,or even understand CP, at least refer the patient to a Dr. that will. Our "little co-pays" may mean something to them!!
139	R.	McKeithan	NC	US	I had the greatest doctor anyone could ever ask for. He understood my pain issues as well as work, social worker, and single mother. Since he is no longer here I have not been able to find an even decent physician who is willing to help me. I need help!
140	Anonymous	Anonymous	NC	US	Chronic back pain with failed back syndrome, stenosis, herniated disks, DDD, Deg Arthritis, radicular nerve pain both legs, severe muscle spasms, facet syndrome and depression...in other words my fall apart spinal disease - and the DEA is shutting down pharmacies, telemedicine, regular doctors, specialists, they scare them all over giving us the narcotics that we need to get thru the day. Yep, I require strong meds, but i've been at it for yrs. I think all doctors and dea fda personnel should have to take a chronic pain injection that would put them in horrendous pain for a week so they could walk in our shoes. Although they can create all these other drugs, they havent created the one injection that would make the professional world understand.
141	Kathy(Katy)	Koch	TX	US	WE REALLY NEED THIS!!!!!!!!!!
142	Susan	Stringer	NJ	US	I have been in pain since 1993 when, while performing my duties as an EMT, a speeding vehicle rammed into the side of our ambulance, causing me to become a projectile, and due to the Cervical Spine herniations and damage to tissue and other structures around the injured area, cause me frequent, clustering migraines which nothing seems to cure. Narcotics such as demerol, dilaudid, and vicodin help when nothing else does. What are we supposed to do, those of us in pain, when the doctors of NJ refuse to prescribe a safer alternative method other than surgical procedures to alleviate daily pain?????JUSTICE!!!!
143	Amy	Rinker	IA	US	Ditto!
144	leon	sandall	WA	US	As someone who's watched their Aunt and now Father slowly succumb to ALS, I would implore anyone capable of affecting change to do so. Shauna Neumeister, contact me at "leon.sandall@gmail.com"
145	Anonymous	Anonymous	MI	US
146	John	Chandler	MI	US	The biggest obstacle for those of us in severe chronic intractable pain is we all can't get together and march (or wheelchair) ourselves to Washington DC and protest. It seems every group with whatever agenda has done it - because they could. It is sadly ridiculous. Like a bunch of shizophrenics trying to organize themselves to push for a cure or better treatment. They are unable to do so, prevented as such by their condition. The worst for all of us is our current state of living this slow suicide is SO easily preventable with just a few doses of WHATEVER is needed to stop to torment and agony in our minds and bodies. And those who stand so righteously in the way have blood on their hands that will never come off. Too bad they will never see it until they become like us. Which is something I pray happens to no one. I sometimes think it is purposely done to get us "sad pathetic people" to end our lives and the drain we seem to put on society. We are the Jews of Hitler's Germany. And there is no escape from the prison of our bodies other then medication or suicide. It is the hardest fact I have ever faced. And I am tired of turning the other cheek. It already hurts too much as it is. I lay the blame squarely on the shoulders of the iDEAts of this world who have so ingenious linked chonic pain patients with the war on drugs. The war on alcohol produced more alcoholic's no less and gave rise to organized crime. Such an unwise and insane act. Now drugs has kept millions in agony and is now giving rising to global organized crime. How long will it be until the religious right and all the anti-drug people get the f*ck out of our faces and let us live in peace and pain-free. I'll tell you when. Never. Because the vast majority of them will never "lay in our beds" (as many of us can't walk and have no need for shoes for them to someday feel. And they day even one of those sanctimonius it idiots so inhumanely point the gleeful fingers at us as problems to their insane and unachieveable goal of a drug-free society I will not say "thank god" but rather pray "Dear god, not another one."
147	Anonymous	Anonymous	HI	US
148	Anonymous	Anonymous	TX	US	My main conditions are Fibromyalgia and CFIDS, which started with a mumps like illness. My pain even with some NAISD's is so undertreated I can rarely leave home. I can't even find a Doctor who understands CFIDS. The pain is so severe and even living in Dallas a huge Metropolitan area, I can hardly find a doctor who will take a Fibro patient, non the less give them enough medicine.
149	Travis	Cooper		AU
150	Sandy	Lewis	CT	US	I have CRPS and require medication. I am limited in what I can do - I can't drive, walk or stand for more than 1 hour, wear heels, dance, exercise, etc. I need help!!!