CHRONIC PAIN PATIENT REGISTRY

To: U.S. Senate Health, Education, Labor and Pensions Committee Chairman Senator Judd Gregg and A Chronic Pain Patient Registry would serve as a qualified listing of only those who have been thoroughly evaluated and who\'s ongoing chronic pain condition has been fully documented. The Food and Drug Administration would recognize the pain medication and dosage being prescribed is that for a verified CCP. This would alleviate the need to investigate Physicians and Pain Management Specialists prescribing pain medication for possible abuse by non-chronic pain sufferers, as well as address the fear by medical professionals of losing their medical license or facing severe disciplinary action. CPP\'s would greatly benefit by receiving adequate pain medication required to help alleviate and control the high levels of pain which they endure on a daily basis. All who have signed this petition implore you to vote for, or assist in the creation of a Chronic Pain Patient Registry. Please help Chronic Pain Patients, who often needlessly and incompassionately endure intolerable levels of pain every moment of every day, obtain the help so desperately needed to improve the quality of their lives. Chronic pain doesn\'t stop with just the sufferer; it infiltrates into the lives of families and loved ones who often endure, but often times cannot endure, the devastating effect a life of pain, hopelessness and despair has on relationships and families. Jobs and income are lost, families are destroyed...lives are ended by suicide. A Chronic Pain Patient Registry will go far in greatly improving the quality of life for pain sufferers and those who surround them alike.

Sponsor

R. Zeke Fread, coordinator of Tampa Bay Coalition, http://www.tampabaycoalition.com/cppr.html , and chronic pain patient, along with other chronic pain patients, CPPs, are organizing a grassroots campaign to urge lawmakers to create a Chronic Pain Patient Registry, CPPR. With widespread abuse of pain medication by non-chronic pain patients. Physicians are reluctant to prescribe doses of medication needed to control the excruciatingly high levels of pain their CPPs endure, due to fear of FDA scrutiny and jeopardizing their license to practice medicine. This FDA scrutiny would be eliminated for registered patients physicians. Patients who suffer the devastating effects of chronic pain syndrome, will no longer be denied access to pain medication that controls their chronic pain to bearable levels. Greatly improving the quality of their and their families lives. President Bush\'s new campaign to curb abuse of pain medication by our youth, will increase restrictions on prescribing such medications. Increasing physicians fears of scrutinizing by the FDA, for prescribing required doses of pain medication for the excruciatingly high levels of pain their chronic pain syndrome patients suffer. Which will lead to an even high number of chronic pain patients, out of sheer desperation, to commit suicide. This registry will not only relieve suffering, but, save lives.

Links

Website related to chronic pain sydrome, Joey Lee, his personal life struggle with RSD Reflex Sympathetic Dystrophy and resources, http://www.joeylee.com/rsd.html. American RSDHope Group, http://www.rsdhope.org/

Discussion

  • Stacy I do not have the time or the money to see my doctor every month or every 3 months to get a refill on my pain medication. I used to go every 6 months to my doctor for refills for my chronic pain. My chronic pain is permanent I have had it for 10 years. There is no other management that works I have tried it all. Seeing my doctor that much is a waste of time and money. I also travel a lot for work and I am not able to fill my prescriptions 2 to 3 days earlier then written. If I have a prescription written out for the 17th. And I get called to travel for work on the 14th. I can't get my prescription filled a day or two early anymore for I don't run out why I'm traveling. I have to worry about finding a pharmacy now in a place I never been to to fill my prescription on the exact date writen. I also have to find the time and transportation to get to the pharmacy on the exact time and date I run out. I have been left in sever pain in a strange area because I couldn't get my prescription filled before I left for work. This Is only going to continue for me as I have no way of knowing when I will leave for a job and when I get back. I might have to leave tomorrow it all depends if I get the job or not. If I turn it down I don't get paid and risk losing my job. I'm usually not gone for more then a week so getting my prescription filled a few days earlier was a huge part in being able to live a normal life and not be a slave to my health. This law is effecting my life in every way. I have suffered so much with my health and pain. This law only adds to my suffering. I am not a criminal. I do not want to be in pain I do not want to take pain medications. I am not a addict this is not a choice for me. I need this medication to try and live a normal life. This law is effecting people that are just trying to live their lives the best they can. People that don't deal with chronic pain do not understand are suffering until they go through it for years on end themselves . Please stop hurting the ones that are already in pain. Stopping drug addicts will never work they will happily move on to another drug to satisfy them. This law only hurts the people that really need the drug for its purpose.

  • Anonymous I can only pray that government officials reconsider their sadistic decision to deny easier access of previously approved pain meds to true chronic pain sufferers. It's sad to know what my future holds in store for me due to their new restrictive rules & regulations. How can they not realize the hopelessness & despair they have created for us?

  • brenda taylor I've been in chronic pain since 2010, been taking pain meds were great because I could go to work not in pain and carrying my daily chores. but without my pain meds I don't know if I can work gain and that's sad. I 've been a court reporter for 22 years and love my job. so it's a shame the DEA is ruining people's lives by not given them their pain meds. So thanks for our wonderful government, and our very dedicated officers, not.

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Recent signatures

  • username

    Davisa

    1 week ago State: Tennessee
    Country: United States
    Comments: -
  • username

    Stacy

    1 week ago State: Indiana
    Country: United States
    Comments: I do not have the time or the money to see my doctor every month or every 3 months to get a refill on my pain medication. I used to go every 6 months to my doctor for refills for my chronic pain. My chronic pain is permanent I have had it for 10 years. There is no other management that works I have tried it all. Seeing my doctor that much is a waste of time and money. I also travel a lot for work and I am not able to fill my prescriptions 2 to 3 days earlier then written. If I have a prescription written out for the 17th. And I get called to travel for work on the 14th. I can't get my prescription filled a day or two early anymore for I don't run out why I'm traveling. I have to worry about finding a pharmacy now in a place I never been to to fill my prescription on the exact date writen. I also have to find the time and transportation to get to the pharmacy on the exact time and date I run out. I have been left in sever pain in a strange area because I couldn't get my prescription filled before I left for work. This Is only going to continue for me as I have no way of knowing when I will leave for a job and when I get back. I might have to leave tomorrow it all depends if I get the job or not. If I turn it down I don't get paid and risk losing my job. I'm usually not gone for more then a week so getting my prescription filled a few days earlier was a huge part in being able to live a normal life and not be a slave to my health. This law is effecting my life in every way. I have suffered so much with my health and pain. This law only adds to my suffering. I am not a criminal. I do not want to be in pain I do not want to take pain medications. I am not a addict this is not a choice for me. I need this medication to try and live a normal life. This law is effecting people that are just trying to live their lives the best they can. People that don't deal with chronic pain do not understand are suffering until they go through it for years on end themselves . Please stop hurting the ones that are already in pain. Stopping drug addicts will never work they will happily move on to another drug to satisfy them. This law only hurts the people that really need the drug for its purpose.
  • username

    Jen Todd

    3 weeks ago State: Texas
    Country: United States
    Comments: -
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