Evaluation of Universal Pulse Oximetry as a means to detect Critical CHDs

Signatures 1727 total

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1. 151
   Name: Kathy Gibbs on Nov 10, 2006

   Comments: As the mom of a child with a heart defect, I feel this is so important. My son has done really well and I truly believe it is because he had immediate treatment. How much money will the insurance companies save by running one little test Possibly several operations, they expected to do several on Josh but he hasn't needed them because he was treated early.

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2. 152
   Name: Patty Holton on Nov 10, 2006

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3. 153
   Name: Nancy Evans on Nov 10, 2006

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4. 154
   Name: Jennifer Knollhoff on Nov 10, 2006

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5. 155
   Name: Valerie Guerin on Nov 10, 2006

   Comments: We have a daughter who was diagnosed with a CHD and are grateful for the technology that allowed us to prepare for her care.

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6. 156
   Name: Mark Guerin on Nov 10, 2006

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7. 157
   Name: Karen Prior on Nov 10, 2006

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8. 158
   Name: Keri Blanton on Nov 10, 2006

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9. 159
   Name: Scott Newport on Nov 10, 2006

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10. 160
    Name: Valerie Brown on Nov 10, 2006

    Comments: My son died from a CHD. The earlier you catch a CHD the better chance that child has. My sons first open heart surgery was at 3 days old! You need to know at birth what the 02 sat are. Is it any wonder why it is the #1 birth defect... 1 in 100 babies born with CHD! Time is extremely important!

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11. 161
    Name: Elizabeth E. Mercier on Nov 10, 2006

    Comments: My beautiful 13 month old son passed away from a severe congenital heart defect in October 2005. His condition would be immediately detectable through the use of pulse-oximetry. Luckily, I knew of my baby's condition before he came into the world, but I know another family whose son died suddenly because they had no idea that their newborn had a severe congenital heart defect. With a simple pulse-oximetry test, the condition could have been discovered. Please help other babies in memory of our beautiful children who have passed away.

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12. 162
    Name: Laine E. Chambers on Nov 10, 2006

    Comments: This petition is very important as it could save the lives of many babies! Thankfully we found out about our daughters complex CHD's while in utero, but not all families are as fortunate. A simple pulse oximetry test is the most non-invasive, easy test somebody could ask for to save lives. This test should be a part of all newborn screenings. We test their blood for many metabolic disorders, etc., why should be not test for something as fatal as congenital heart disease

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13. 163
    Name: Deanna Fahrenkamp on Nov 10, 2006

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14. 164
    Name: Jennifer Pelkey on Nov 10, 2006

    Comments: Pulse Ox testing in newborns is a remarkable idea! We didn't discover our Matthew's heart defect until he was 3 weeks old. When we did get him to surgery/PICU, everyone was shocked that he lived that long without intervention. We were fortunate, but some children are not. This is a wonderful idea!

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15. 165
    Name: Candace Reed on Nov 10, 2006

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16. 166
    Name: Penny Webster on Nov 10, 2006

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17. 167
    Name: Raymona Harris on Nov 10, 2006

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18. 168
    Name: Rick Claiborne on Nov 10, 2006

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19. 169
    Name: Ellie Lea on Nov 10, 2006

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20. 170
    Name: Karen Eustice on Nov 10, 2006

    Comments: Agree with petition for screenings. We were fortunate that an observant doctor detected a problem with my grandson, otherwise, he would have been sent home unknowingly having a very severe heart defect as HypoPlastic Left Heart Syndrome. The cost of this study seems quite small considering the benefits of screening.

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21. 171
    Name: Heather Packard on Nov 10, 2006

    Comments: I am a nurse and specifically have been a nurse in a pediatric cardio thoracic ICU. I have seen many babies born with congenital heart defects. Those babies who were born with unknown defects, most likely never had a pulse ox done after birth and some were sent home without knowing they had the defect until they come back crashing through the doors. I think it is very inexpensive to check a pulse ox and is a standard part of vital signs. PLEASE help get this law passed.

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22. 172
    Name: Jennifer Holloway on Nov 10, 2006

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23. 173
    Name: Vivi Weaver on Nov 10, 2006

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24. 174
    Name: Anonymous on Nov 10, 2006

    Comments: Best of luck in your study.

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25. 175
    Name: Anonymous on Nov 10, 2006

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26. 176
    Name: Lynn Farlee on Nov 10, 2006

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27. 177
    Name: Anonymous on Nov 10, 2006

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28. 178
    Name: Julie Burroughs on Nov 10, 2006

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29. 179
    Name: Georgina Sobiek on Nov 10, 2006

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30. 180
    Name: Anonymous on Nov 10, 2006

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31. 181
    Name: James R. Pouncey on Nov 10, 2006

    Comments: This would have provided my grandaughter to have received treatment prior to the time symptoms appeared months later.

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32. 182
    Name: Anonymous on Nov 10, 2006

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33. 183
    Name: Leann Adkins on Nov 10, 2006

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34. 184
    Name: Kimberly Burns on Nov 10, 2006

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35. 185
    Name: Anonymous on Nov 10, 2006

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36. 186
    Name: Denise Garren on Nov 10, 2006

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37. 187
    Name: Cathy Scott on Nov 10, 2006

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38. 188
    Name: Ledare Finley on Nov 10, 2006

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39. 189
    Name: Karen S Arthur on Nov 10, 2006

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40. 190
    Name: David Stosiak on Nov 10, 2006

    Comments: I'm a resident of Michigan, but I hope I can still participate in the petition.

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41. 191
    Name: Deb McCrary on Nov 10, 2006

    Comments: Why not check O2 Sats, alittle time could save a lot of lives. Detecting CHD before discharge would be way better than letting it go and go undetected for several days, months

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42. 192
    Name: Tara Patton on Nov 10, 2006

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43. 193
    Name: Season Witherspoon on Nov 10, 2006

    Comments: Please PLEASE do this - the sooner a parent knows about their child's heart issue the sooner they can start getting the help they need!!!

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44. 194
    Name: Terah Washburn on Nov 10, 2006

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45. 195
    Name: Anissa Speight on Nov 10, 2006

    Comments: CHDs are the #1 birth defect... We should be screening with these simple, inexpensive tests on ALL newborns. EKGs and PO2s are so simple .... They both can help assure that a critically ill child isn't sent home prematurely.

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46. 196
    Name: Anne Williams on Nov 10, 2006

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47. 197
    Name: Susie DeLoach on Nov 10, 2006

    Comments: Many babies are sent home with undetected heart defects, only to be rushed to the hospital after they get home. If they are fortunate, it is not too late for intervention. Many times though, by the time parents realize there's a problem there is too much damage. Some of these parents have to bury their children and go home to an empty crib. There are simple tests that can lead to early detection and intervention. I hope that this proposal is successful, and that all of the other regions in our country follow suit. -Susie DeLoach, Founder of Our Hearts, Indiana support group for families affected by congenital heart defects.

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48. 198
    Name: Tiffany on Nov 10, 2006

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49. 199
    Name: Cindy Briggs on Nov 10, 2006

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50. 200
    Name: Jennifer Tench on Nov 10, 2006

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