| # | First Name | Last Name | State | Country | Comments |
|---|
| 7601 | Denise | Wasmer | PA | US | |
| 7602 | Anonymous | Anonymous | PA | US | |
| 7603 | Anonymous | Anonymous | PA | US | |
| 7604 | Tiffany | Brower | PA | US | |
| 7605 | Andrew | Smith | PA | US | |
| 7606 | Matthew | Golaski | PA | | |
| 7607 | William | Sampson | NJ | US | |
| 7608 | Linda | Zandier | PA | US | |
| 7609 | Chloe | Prior | IL | US | I would like this day to take place in memory of my brother, Dylan. People should be more aware of this and the families of those suffering with this deserve a day to honor them. |
| 7610 | Christine | Banney | ME | US | My daughter was diagnosed at less then one week old with A-V Canal. We are now awaiting her surgery. |
| 7611 | Karen | Johnson | MD | US | |
| 7612 | Joanne | Ferrarese | NY | US | Let's try this again for 2007, lets do it every year until heart birth defects are a thing of the past! |
| 7613 | Joanne | Ferrarese | NY | US | Let's try this again for 2007, lets do it every year until heart birth defects are a thing of the past! |
| 7614 | kimberly | gumiran | IL | US | mother of Daniel Thomas D-TGA |
| 7615 | Lisa | Ahart | MO | US | My 3 yr old daughter Lenora (10/2/03) was born with AS (Aortic Stenosis) she has had 2 surgereis and 4 cath's as of the day i'm signing this. We do know she is waiting for a 3rd one. |
| 7616 | SANDY | DILIBERTO | NJ | US | My daughter Samantha was born 7 weeks premature and at 3 months we found out she had ASD. She had heart surgery when she was 11 months at NYU. She is now 6 years old and is doing great -we even signed her up for T ball this year. I want to thank all the great doctors and surgeons she's had the first yr of life, without them and our caring friends we would have never made it through this hard time. |
| 7617 | Jenn | Castleton | IN | US | |
| 7618 | Linda | Sparks | TX | US | One of my twin daughters, at the age of 19 months, under went open heart surgery due to a congenital heart defect. Now we're told she may have to have another surgery before she's six years old. She will turn four on July 1, 2007. Our lives continue as normal because she shows no signs or symptoms of her condition. |
| 7619 | Rebecca | Cash | KY | US | |
| 7620 | Jade | Bramstedt | MN | US | My Son Parker was born with a CHD in 2000. It has changed our lives FOREVER! Parker had his 2nd open heart this year (2007) during the week we are trying to make Nationally known! Feb. 7-Feb.14. Today Feb. 20, I heard on the News that it is National Pancake Day! I think it would honor all families if you would make Feb.7-14th NATIONAL CHD Awareness Week! |
| 7621 | Anonymous | Anonymous | OH | US | |
| 7622 | eizabeth | palmer | WI | US | My little boy dustin was born with several heart defects,dxocardia,situs inversus,now kartageners disease |
| 7623 | Salie | Howell | OK | US | |
| 7624 | Travis | Cooper | | AU | |
| 7625 | craig | flesher | TX | US | My daughter was the best thing that came to my life. I miss her and love her very much rest in peace Makayla Rae |
| 7626 | Ravettra | Ford | TN | US | Mom of Sylvester Ford, III. (Tres), Born with TOF |
| 7627 | Lindzy | Foster | IA | US | My daughter Kaydence passed away at 9 days old after open heart surgery for many CHD's including TGA and HLHS variant...in memory of Kaydence Hope we miss you sweetie... |
| 7628 | Amber | Hendricks | WI | US | My youngest son, Aiden, was born with a very rare and severe CHD called Hypoplastic Right Heart, Tricuspid Atesia, Pulmonary Atresia/Intactact Ventricular Septum. He is 3 years old and has had 3 open heart surgeries so far.
Before my son was born, I did not know about CHDs and how many children died because of having one. You do not see commercial, you do not hear stories, you do not hear of any research... This is absolutly rediculous. More children die of CHDs than ALL childhood cancers combined!
I live with the hope that SOMEONE will come up with SOMETHING so my son will have a future. There is very little funding for CHD research. My sons life and many other childrens lives depend on this. I think with more public knowledge, there will be more research done and the funds for it will be there. PLEASE make February 14th a national CHD awareness day. This is my life now and I will not stop until there is as much funding and awareness for CHDs as there is for childhood cancer.
There are over 40,000 children born each year with a CHD in the US. What if one of those was your child? What would YOU do?
Amber Hendricks
mom to Aiden HRHS, TA, PA/IVS BT Shunt at 3 days old, Glenn 5/19/04, Fontan 3/27/07 |
| 7629 | Rachel | Linstead | PA | US | |
| 7630 | Anonymous | Anonymous | MA | US | |
| 7631 | Anonymous | Anonymous | MA | US | |
| 7632 | stacy | weinholtz | NY | US | |
| 7633 | Kimberly | Ralph | AL | US | THIS IS VERY IMPORTANT FOR THESE KIDS. IT IS THE #1 BIRTH DEFECT AND ALSO THE #1 KILLER FROM A BIRTH DEFECT YET IT IS NOT ANYWHERE IN THE MEDIA. 1 IN EVERY 85 CHILDREN WILL BE BORN WITH A CONGENITAL HEART DEFECT, THAT'S WAY TOO MANY, BUT THERE IS SOMETHING THAT BE DONE TO HELP THESE KIDS GET HELP QUICKER AND HAVE A BETTER CHANCE OF LIVINGAND THAT IS TO HAVE A ROUTINE ECHOCARDIOGRAM AT BIRTH. I WOULD LOVE IT IF WE CAN GET A BILLED PASSED TO MAKE IT A REQUIREMENT TO DO SO. WHATEVER YOU CAN DO TO HELP IN THIS FIGHT WOULD BE GREATLY APPRECIATED. YOU MAY ASK WHY THIS IS IMPORTANT TO ME PERSONALLY AND THE ANSWER TO THAT IS THAT MY NEPHEW WAS BORN WITH A CHD AND THEY DIDNT CATCH IT TILL HE WENT FOR HIS KINDERGARTEN EXAM AT THE AGE OF 5, IT WAS A SEVERE CASE OF COARCTATION OF THE AORTA. HAD HIS DOCTOR NOT HAVE INVESTIGATED THE HIGH BLOOD PRESSURE IN THE EXAM WE MAY NOT HAVE HIM WITH US TODAY. THEY DID THE SURGERY LESS THAN A MONTH LATER, HE HAD TO HAVE A SERIES OF OTHER TESTS DONE BEFORE SURGERY OR IT WOULD HAVE BEEN SOONER. THANK YOU VERY MUCH FOR YOUR TIME AND I HOPE YOU CAN HELP US SAVE MORE CHILDREN BT GETTING THE WORD OUT AND HOPEFULLY PASSING A BILL FOR ROUTINE TESTING AT BIRTH.
SINCERLY, KIMBERLY RALPH AND FAMILY |
| 7634 | Emanuel | Belgrad | IN | | |
| 7635 | Ashley | Vogel | HI | US | In loving memory of my brother Kevin Justin Kawainui Liaga-Vogel who died at age 3 from a congenital heart defect in 2003. (HLHS- Hypoplastic Left Heart Syndrome) |
| 7636 | Kevin Justin | Liaga | HI | US | In loving memory on my son Kevin who was born and died with a Congenital Heart Defect at age 3 years. |
| 7637 | Kyle | Paniucki | MI | US | |
| 7638 | Kyle | Paniucki | MI | US | |
| 7639 | Anonymous | Anonymous | WA | US | |
| 7640 | Patricia | Patton | NJ | | |
