Campaign for Kalydeco

Signatures 17280 total

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1. 14951
   Name: Matt Sedgwick on Oct 26, 2012

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2. 14952
   Name: Emma Sedgwick on Oct 26, 2012

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3. 14953
   Name: Peter Chrystie on Oct 26, 2012

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4. 14954
   Name: Carooline Spencer on Oct 26, 2012

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5. 14955
   Name: Anna Chrystie on Oct 26, 2012

   Comments: A wonderful develpement

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6. 14956
   Name: Anna Chrystie on Oct 26, 2012

   Comments: A wonderful develpement

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7. 14957
   Name: Heather Chrystie on Oct 26, 2012

   Comments: YES!

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8. 14958
   Name: Emily Chrystie on Oct 26, 2012

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9. 14959
   Name: Laura Devlin on Oct 26, 2012

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10. 14960
    Name: Fergus Adams on Oct 26, 2012

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11. 14961
    Name: Penny Hilton on Oct 26, 2012

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12. 14962
    Name: Alys Mordecai on Oct 26, 2012

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13. 14963
    Name: Richard Bluck on Oct 26, 2012

    Comments: As a sufferer of CF I would urge the decision for funding to be hastened as lives are lost everyday to this unforgiving illness.

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14. 14964
    Name: Philip Smith on Oct 26, 2012

    Comments: Every day that the availability of Kalydeco is delayed compromises the health of CF patients with the G551D mutation. Please expedite this.

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15. 14965
    Name: Roxanne Anderson on Oct 26, 2012

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16. 14966
    Name: Roxanne Anderson on Oct 26, 2012

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17. 14967
    Name: JENNY SCOTT on Oct 26, 2012

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18. 14968
    Name: Nikki Mills on Oct 26, 2012

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19. 14969
    Name: Emma Day on Oct 26, 2012

    Comments: My 2 wk old nephew has just been diagnosed with CF so I'm doing all I can to find out more about the condition and treatment

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20. 14970
    Name: Andy Bunce on Oct 26, 2012

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21. 14971
    Name: Cj Pengelly on Oct 26, 2012

    Comments: Give this family a chance please.

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22. 14972
    Name: Craig Maunder on Oct 26, 2012

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23. 14973
    Name: Anne Mary Bandy on Oct 26, 2012

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24. 14974
    Name: Antonella on Oct 27, 2012

    Comments: Train train train, establish a trinnaig program that follows Nigel Crisp's vision of inter-state trinnaig programs and healthcare worker exchanges the DoH working hand in hand with DFID, which was until recently a leader in healthcare in international development, and I think should be re-focused on this beneficial aim, and away from fueling conflict zones. (which will also help reduce our disease burden from contageous diseases, increase global GDP, etc.)GPs are under-utilised, much of their job is listening to patients. Councillors and health-workers can be trained quick and cheap that can identify cases that need to be seen by a doctor and people that need to be listened to and given a sick note or some anti-biotics etc. It is working in Iran, America, South Africa and Rwanda why can't it work in the NHS? Would save a fortune!Also, trinnaig on process engineering from people outside the NHS like empoyees from NASA, engineering corporations, BP etc. (done at cheap rates where possible and with a close eye on corruption) would be good looking at phlebotomy processes where patients recordings get lost, looking at processes with an eye on efficiency and safety rather for example trying to reduce the number of times important informational items change hands (each time there's a risk of loss), processes that are failing at an institutional level and need more checks (for example bed sores in older patients, as nurses no longer turn them in their beds and no one has really taken clear responsibility for this).I also think that Cuba has a healthcare system that we could learn from in terms of process, procurement and service management, also joined up government' and how other departments can learn from the health department and visa versa.Just look with fresh eyes at the gaping sores in teh NHS that need to be patched up, keep NICE, keep the new learning process of what people value in health, keep listening, work harder, train appropriately rather than historically it's all common sense stuff and the NHS staff have been trying it for a long time, don't destroy the old knowledge but build on it instead. What are the PCTs telling you?

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25. 14975
    Name: James Carty on Oct 27, 2012

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26. 14976
    Name: Veronica Martin on Oct 27, 2012

    Comments: I have two relatives that would greatly benefit from this product.

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27. 14977
    Name: Susan Hughes on Oct 27, 2012

    Comments: Best wishes with the campagne I hope it is a success

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28. 14978
    Name: Nicola Brown on Oct 27, 2012

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29. 14979
    Name: Mark Connelly on Oct 27, 2012

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30. 14980
    Name: Shonagh MacVicar on Oct 27, 2012

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31. 14981
    Name: Fr Dominic Howarth on Oct 27, 2012

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32. 14982
    Name: Sandy Gray on Oct 27, 2012

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33. 14983
    Name: Tracey Rushin on Oct 27, 2012

    Comments: This should not have to happen!! We cannot sit back and watch the suffering if there is a CURE!!!!

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34. 14984
    Name: Marcia Symonds on Oct 27, 2012

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35. 14985
    Name: Rachel Blair on Oct 27, 2012

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36. 14986
    Name: Stewart Blair on Oct 27, 2012

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37. 14987
    Name: Chris McCann on Oct 27, 2012

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38. 14988
    Name: Marjory Gibbons on Oct 27, 2012

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39. 14989
    Name: Raegan Booth on Oct 27, 2012

    Comments: Of course its bloody cost efficient

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40. 14990
    Name: Mary Minton on Oct 27, 2012

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41. 14991
    Name: Francis And Jane O'BRIEN on Oct 27, 2012

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42. 14992
    Name: Elizabeth Henderson on Oct 27, 2012

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43. 14993
    Name: Ben Henry on Oct 27, 2012

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44. 14994
    Name: Mitch Canvin on Oct 27, 2012

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45. 14995
    Name: John Hogan on Oct 27, 2012

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46. 14996
    Name: Ella on Oct 27, 2012

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47. 14997
    Name: Sue Duffy on Oct 27, 2012

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48. 14998
    Name: Jenny Carr on Oct 27, 2012

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49. 14999
    Name: Thomas Gray on Oct 27, 2012

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50. 15000
    Name: Sandra Doyle on Oct 27, 2012

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