Sign Petition

Campaign for Kalydeco

17,382 Signatures Goal: 9,000

Kalydeco is a transformational treatment that has been appraised and confirmed as having a significant clinical benefit for people with cystic fibrosis over the age of six with the G551D gene mutation.

It is vital that a fair and affordable arrangement is reached soon between the NHS and Vertex, the drug's manufacturers, to ensure all who would benefit from the drug receive it as soon as possible at a reasonable cost to the NHS.

We welcome the work of NHS commissioners and advisors in England to accelerate the system of approval, and their recognition of the drug's clinical benefit. We also welcome the work continuing in Scotland, Wales and Northern Ireland to appraise the treatment.

We therefore call on both Vertex and the NHS to recognise, when they meet this month, that they have an unprecedented opportunity to make available a treatment which has the potential truly to change the lives and outlooks of patients with cystic fibrosis in England who carry the G551D mutation.

We call upon Vertex to recognise the financial pressures on the NHS and to demonstrate an ability to deliver innovative and cutting-edge treatments at a price which is affordable. We call upon the NHS to demonstrate that it has the will and capability to make such treatments available to patients on an equal and speedy basis.

Sponsor

Cystic Fibrosis Trust

Links


  • Bill Whiteford
    Bill Whiteford Australia, Eastwood
    May 11, 2014
    May 11, 2014
    Please add my name to this petition to help the grandson of our friends.
  • Leon Bennett
    Leon Bennett Australia, Launceston
    May 04, 2014
    May 04, 2014
    It's unclear to me why Australia is so conservative in adopting new drug treatments,
  • Anthony Drew
    Anthony Drew Australia, Sydney
    May 01, 2014
    May 01, 2014
    My grandson has this disease it is not very pleasant to see him so sick.His name is Flynn Morrison the little boy in your flyer
  • Roula Tzwnou
    Roula Tzwnou Greece
    Mar 27, 2014
    Mar 27, 2014
    My son has CF and we are from Greece
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16182

Signatures

  • 1 year ago
    sam morrison Australia
    1 year ago
  • 1 year ago
    mandidrew@iprimus.com.au
    1 year ago
  • 1 year ago
    Melanie Lenarduzzi
    1 year ago
  • 1 year ago
    Bill Whiteford
    1 year ago
  • 1 year ago
    Glennis Russell
    1 year ago
  • 1 year ago
    Leon Bennett
    1 year ago
  • 1 year ago
    Joanna Rodman Australia
    1 year ago
  • 1 year ago
    Tess Martin
    1 year ago
  • 1 year ago
    Lyn Stanley
    1 year ago
  • 1 year ago
    Trevor Loone
    1 year ago
  • 1 year ago
    Susan Allen
    1 year ago
  • 1 year ago
    Sue Ashworth
    1 year ago
  • 1 year ago
    Anthony Drew
    1 year ago
  • 1 year ago
    Robyn Burns
    1 year ago
  • 1 year ago
    Roula Tzwnou
    1 year ago
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