Sign Petition

Campaign for Kalydeco

17,384 Signatures Goal: 9,000

Kalydeco is a transformational treatment that has been appraised and confirmed as having a significant clinical benefit for people with cystic fibrosis over the age of six with the G551D gene mutation.

It is vital that a fair and affordable arrangement is reached soon between the NHS and Vertex, the drug's manufacturers, to ensure all who would benefit from the drug receive it as soon as possible at a reasonable cost to the NHS.

We welcome the work of NHS commissioners and advisors in England to accelerate the system of approval, and their recognition of the drug's clinical benefit. We also welcome the work continuing in Scotland, Wales and Northern Ireland to appraise the treatment.

We therefore call on both Vertex and the NHS to recognise, when they meet this month, that they have an unprecedented opportunity to make available a treatment which has the potential truly to change the lives and outlooks of patients with cystic fibrosis in England who carry the G551D mutation.

We call upon Vertex to recognise the financial pressures on the NHS and to demonstrate an ability to deliver innovative and cutting-edge treatments at a price which is affordable. We call upon the NHS to demonstrate that it has the will and capability to make such treatments available to patients on an equal and speedy basis.

Sponsor

Cystic Fibrosis Trust

Links


  • Marie Corby
    Marie Corby Greece, Athens
    Jan 29, 2016
    Jan 29, 2016
    Please help these people
  • Bill Whiteford
    Bill Whiteford Australia, Eastwood
    May 11, 2014
    May 11, 2014
    Please add my name to this petition to help the grandson of our friends.
  • Leon Bennett
    Leon Bennett Australia, Launceston
    May 04, 2014
    May 04, 2014
    It's unclear to me why Australia is so conservative in adopting new drug treatments,
  • Anthony Drew
    Anthony Drew Australia, Sydney
    May 01, 2014
    May 01, 2014
    My grandson has this disease it is not very pleasant to see him so sick.His name is Flynn Morrison the little boy in your flyer
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17384

Signatures

  • 1 week ago
    Marie Corby Greece
    1 week ago
  • 4 months ago
    Jess Armstrong Thailand
    4 months ago
  • 2 years ago
    sam morrison Australia
    2 years ago
  • 2 years ago
    mandidrew@iprimus.com.au
    2 years ago
  • 2 years ago
    Melanie Lenarduzzi
    2 years ago
  • 2 years ago
    Bill Whiteford
    2 years ago
  • 2 years ago
    Glennis Russell
    2 years ago
  • 2 years ago
    Leon Bennett
    2 years ago
  • 2 years ago
    Joanna Rodman Australia
    2 years ago
  • 2 years ago
    Tess Martin
    2 years ago
  • 2 years ago
    Lyn Stanley
    2 years ago
  • 2 years ago
    Trevor Loone
    2 years ago
  • 2 years ago
    Susan Allen
    2 years ago
  • 2 years ago
    Sue Ashworth
    2 years ago
  • 2 years ago
    Anthony Drew
    2 years ago
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