Sign Petition

Campaign for Kalydeco

17,388 Signatures Goal: 9,000

Kalydeco is a transformational treatment that has been appraised and confirmed as having a significant clinical benefit for people with cystic fibrosis over the age of six with the G551D gene mutation.

It is vital that a fair and affordable arrangement is reached soon between the NHS and Vertex, the drug's manufacturers, to ensure all who would benefit from the drug receive it as soon as possible at a reasonable cost to the NHS.

We welcome the work of NHS commissioners and advisors in England to accelerate the system of approval, and their recognition of the drug's clinical benefit. We also welcome the work continuing in Scotland, Wales and Northern Ireland to appraise the treatment.

We therefore call on both Vertex and the NHS to recognise, when they meet this month, that they have an unprecedented opportunity to make available a treatment which has the potential truly to change the lives and outlooks of patients with cystic fibrosis in England who carry the G551D mutation.

We call upon Vertex to recognise the financial pressures on the NHS and to demonstrate an ability to deliver innovative and cutting-edge treatments at a price which is affordable. We call upon the NHS to demonstrate that it has the will and capability to make such treatments available to patients on an equal and speedy basis.

Sponsor

Cystic Fibrosis Trust

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17388

Signatures

  • 2 months ago
    Julia Free Australia
    2 months ago
  • 10 months ago
    Fwooldridge United Kingdom
    10 months ago
  • 10 months ago
    Norah Ward United Kingdom
    10 months ago
  • 10 months ago
    barry tobin United Kingdom
    10 months ago
  • 10 months ago
    Marie Corby Greece
    10 months ago
  • 1 year ago
    Jess Armstrong Thailand
    1 year ago
  • 2 years ago
    sam morrison Australia
    2 years ago
  • 3 years ago
    mandidrew@iprimus.com.au
    3 years ago
  • 3 years ago
    Melanie Lenarduzzi
    3 years ago
  • 3 years ago
    Bill Whiteford
    3 years ago
  • 3 years ago
    Glennis Russell
    3 years ago
  • 3 years ago
    Leon Bennett
    3 years ago
  • 3 years ago
    Joanna Rodman Australia
    3 years ago
  • 3 years ago
    Tess Martin
    3 years ago
  • 3 years ago
    Lyn Stanley
    3 years ago
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