Kalydeco is a transformational treatment that has been appraised and confirmed as having a significant clinical benefit for people with cystic fibrosis over the age of six with the G551D gene mutation.
It is vital that a fair and affordable arrangement is reached soon between the NHS and Vertex, the drug's manufacturers, to ensure all who would benefit from the drug receive it as soon as possible at a reasonable cost to the NHS.
We welcome the work of NHS commissioners and advisors in England to accelerate the system of approval, and their recognition of the drug's clinical benefit. We also welcome the work continuing in Scotland, Wales and Northern Ireland to appraise the treatment.
We therefore call on both Vertex and the NHS to recognise, when they meet this month, that they have an unprecedented opportunity to make available a treatment which has the potential truly to change the lives and outlooks of patients with cystic fibrosis in England who carry the G551D mutation.
We call upon Vertex to recognise the financial pressures on the NHS and to demonstrate an ability to deliver innovative and cutting-edge treatments at a price which is affordable. We call upon the NHS to demonstrate that it has the will and capability to make such treatments available to patients on an equal and speedy basis.
Updates
Reached 10,000 supporters
October 15, 2012
October 8, 2012
The momentum behind this effort has grown into a powerful collective call for change. Seeing so many people acknowledge the clinical necessity of this treatment confirms that our focus on fairness and accessibility resonates far beyond our immediate community.
October 7, 2012
Reaching one thousand signatures serves as a quiet reminder of the urgency surrounding access to this treatment. It is heartening to see so many families and individuals acknowledge the potential for change that lies within these negotiations.
Reached 1,000 supporters
October 4, 2012
Reached 100 supporters
October 4, 2012
October 2, 2012
The steady growth of this petition shows how many of you recognize the necessity of making this treatment accessible to those who need it most. We are nearing one thousand signatures and reaching that mark will send a clear signal to the decision makers that this issue demands their attention when they meet.
19 Comments
My grandson has this disease it is not very pleasant to see him so sick.His name is Flynn Morrison the little boy in your flyer
It's disgusting that drug companies can hold sick people hostage for drugs they desperately need to make them better ......it's all about money not about health !!! How dare they!!!!
This treatment doesn't only have the potential to change lives of patients in England; Cystic Fibrosis affects vast numbers of Canadians. Please accelerate this process. My cousins need this treatment, yesterday.
If any drug that has proven efficacy in any serious,debilitating ,even lethal disease, then this drug should be made available to anyone..no matter where the drug was discovered , no matter where they live in the world. This is a travesty to with hold medicine that has been proven to be beneficial!
I'm more than appalled at Vertex Pharmaceuticals to gouging CF sufferers with the high price of reliable drugs like Kalydeco. In fact, the annual cost to purchase this drug is an equivalent to the average price for a house in Canada. When you charge an equivalent to an average housing price in one year for a drug like Kalydeco, you know something is wrong and this has to be fixed.
So important
Julia
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Kalydeco is a transformational treatment that has been appraised and confirmed as having a significant clinical benefit for people with cystic fibrosis over the age of six with the G551D gene mutation.
It is vital that a fair and affordable arrangement is reached soon between the NHS and Vertex, the drug's manufacturers, to ensure all who would benefit from the drug receive it as soon as possible at a reasonable cost to the NHS.
We welcome the work of NHS commissioners and advisors in England to accelerate the system of approval, and their recognition of the drug's clinical benefit. We also welcome the work continuing in Scotland, Wales and Northern Ireland to appraise the treatment.
We therefore call on both Vertex and the NHS to recognise, when they meet this month, that they have an unprecedented opportunity to make available a treatment which has the potential truly to change the lives and outlooks of patients with cystic fibrosis in England who carry the G551D mutation.
We call upon Vertex to recognise the financial pressures on the NHS and to demonstrate an ability to deliver innovative and cutting-edge treatments at a price which is affordable. We call upon the NHS to demonstrate that it has the will and capability to make such treatments available to patients on an equal and speedy basis.
Updates
Reached 10,000 supporters
October 15, 2012
October 8, 2012
The momentum behind this effort has grown into a powerful collective call for change. Seeing so many people acknowledge the clinical necessity of this treatment confirms that our focus on fairness and accessibility resonates far beyond our immediate community.
October 7, 2012
Reaching one thousand signatures serves as a quiet reminder of the urgency surrounding access to this treatment. It is heartening to see so many families and individuals acknowledge the potential for change that lies within these negotiations.
Reached 1,000 supporters
October 4, 2012
Reached 100 supporters
October 4, 2012
October 2, 2012
The steady growth of this petition shows how many of you recognize the necessity of making this treatment accessible to those who need it most. We are nearing one thousand signatures and reaching that mark will send a clear signal to the decision makers that this issue demands their attention when they meet.
19 Comments
This can potentially slow this horrible disease down giving suffers hope for better treatment in the future
My grandson has this disease it is not very pleasant to see him so sick.His name is Flynn Morrison the little boy in your flyer
It's disgusting that drug companies can hold sick people hostage for drugs they desperately need to make them better ......it's all about money not about health !!! How dare they!!!!
This treatment doesn't only have the potential to change lives of patients in England; Cystic Fibrosis affects vast numbers of Canadians. Please accelerate this process. My cousins need this treatment, yesterday.
If any drug that has proven efficacy in any serious,debilitating ,even lethal disease, then this drug should be made available to anyone..no matter where the drug was discovered , no matter where they live in the world. This is a travesty to with hold medicine that has been proven to be beneficial!
I'm more than appalled at Vertex Pharmaceuticals to gouging CF sufferers with the high price of reliable drugs like Kalydeco. In fact, the annual cost to purchase this drug is an equivalent to the average price for a house in Canada. When you charge an equivalent to an average housing price in one year for a drug like Kalydeco, you know something is wrong and this has to be fixed.
So important
Julia
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This can potentially slow this horrible disease down giving suffers hope for better treatment in the future