Sign Petition

Bringing Awareness of Pudendal Nerve Entrapment to Peripheral Nerve Surgeons

496 Signatures Goal: 500

To: Dr. Ivan Ducic, President, American Society for Peripheral Nerve, and fellow surgeons, residents, speakers, and members of the ASPN:


There are only a mere handful of surgeons in the world who are offering surgical decompression of the pudendal nerve and its branches. While we, the patients, are very grateful for the work and dedication of the surgeons who are treating pudendal nerve entrapment, this petition comes with extreme urgency as so many continue to suffer.

Currently, there is no standard of care for patients with pudendal neuralgia/entrapment and patients typically must undergo various tests in different cities by different doctors such as EMG, pudendal nerve terminal motor latency test, Botox injections, pudendal nerve blocks, and trials of numerous drugs while waiting long periods of time to obtain appointments. The current success statistics of pudendal nerve decompression surgery, according to the publication by Robert, et al (which are very debatable and perhaps inaccurate) are 33% cured, 33% somewhat better, 33% no change, and 1% worse. Better results need to be obtained.

The majority of patients suffer silently and terribly, with an extremely poor quality of life because of the sexual, physical, financial, and social limitations that this disease causes. Additionally, patients are constantly burdened with the cost of flying all over the country and even the world to the limited number of specialists, and fighting insurance companies to pay for treatment.

We, the undersigned, desire that more attention be given, effective immediately, to one of the most important peripheral nerves in the body. We request that peripheral nerve surgeons in America and worldwide sense the urgency that pudendal nerve entrapment entails, and develop appropriate and timely diagnostic testing and successful surgical treatment for suffering patients. We implore you to discuss this important site of nerve entrapment and injury with your peripheral nerve colleagues at your upcoming American Society for Peripheral Nerve conference. On behalf of all PNE sufferers, we are eternally grateful.

Links


Is there a cause you really care about? Start a free petition like this one and make a real difference.

  • Robert Ché McColl
    Robert Ché McColl United Kingdom
    Oct 01, 2015
    Oct 01, 2015
    feel the pain they made me feel was all in my brain,feel the pain that would make you all insane I'm strong Il stand up all night. PNE tell them all il fight
  • Michelle Kinley
    Michelle Kinley United States, Lock Haven
    Sep 28, 2015
    Sep 28, 2015
    I have PN, I HAVE TERRIBLE PAIN EVERY MINUTE OF EVERY DAY.. MY QUALITY OF LIFE IS GONE :-( I used to be happy, I'm 35 and haven't had a pain free day in over a year..
  • Anonymous
    Anonymous
    May 11, 2015
    May 11, 2015
    I've had pudendal nerve damage since prolapse surgery in February 2009. We desperately need awareness for surgeons operating carelessly causing this problem. Please help.
  • Jenny Hall
    Mar 14, 2015
    Mar 14, 2015
    I have suffered pudendal nerve damage symptoms since a traumatic vaginal delivery 2 years ago. It has ruined my quality of life. I can't find any medical help after trying for a year. Suicidal because of the symptoms and being told it is all in my head.
See More
496

Signatures

  • 9 months ago
    Robert Ché McColl United Kingdom
    9 months ago
  • 9 months ago
    Michelle Kinley United States
    9 months ago
  • 1 year ago
    Jenny Hall
    1 year ago
  • 1 year ago
    Cliff Lightning
    1 year ago
  • 1 year ago
    Robert Ché McColl
    1 year ago
  • 2 years ago
    Pauline Gower
    2 years ago
  • 3 years ago
    Nick Trenchard United States
    3 years ago
  • 3 years ago
    Sarah Matthews United Kingdom
    3 years ago
  • 3 years ago
    Patrick Bradley, Ph.D United States
    3 years ago
  • 3 years ago
    Jenny Day Austin United States
    3 years ago
  • 3 years ago
    social bookmarks Ukraine
    3 years ago
  • 3 years ago
    social bookmarking service Russian Federation
    3 years ago
  • 3 years ago
    social bookmarking service Russian Federation
    3 years ago
  • 3 years ago
    social bookmarking service Russian Federation
    3 years ago
  • 3 years ago
    modular homes upstate NY Russian Federation
    3 years ago
See More