Sign Petition

Bringing Awareness of Pudendal Nerve Entrapment to Peripheral Nerve Surgeons

494 Signatures Goal: 500

To: Dr. Ivan Ducic, President, American Society for Peripheral Nerve, and fellow surgeons, residents, speakers, and members of the ASPN:


There are only a mere handful of surgeons in the world who are offering surgical decompression of the pudendal nerve and its branches. While we, the patients, are very grateful for the work and dedication of the surgeons who are treating pudendal nerve entrapment, this petition comes with extreme urgency as so many continue to suffer.

Currently, there is no standard of care for patients with pudendal neuralgia/entrapment and patients typically must undergo various tests in different cities by different doctors such as EMG, pudendal nerve terminal motor latency test, Botox injections, pudendal nerve blocks, and trials of numerous drugs while waiting long periods of time to obtain appointments. The current success statistics of pudendal nerve decompression surgery, according to the publication by Robert, et al (which are very debatable and perhaps inaccurate) are 33% cured, 33% somewhat better, 33% no change, and 1% worse. Better results need to be obtained.

The majority of patients suffer silently and terribly, with an extremely poor quality of life because of the sexual, physical, financial, and social limitations that this disease causes. Additionally, patients are constantly burdened with the cost of flying all over the country and even the world to the limited number of specialists, and fighting insurance companies to pay for treatment.

We, the undersigned, desire that more attention be given, effective immediately, to one of the most important peripheral nerves in the body. We request that peripheral nerve surgeons in America and worldwide sense the urgency that pudendal nerve entrapment entails, and develop appropriate and timely diagnostic testing and successful surgical treatment for suffering patients. We implore you to discuss this important site of nerve entrapment and injury with your peripheral nerve colleagues at your upcoming American Society for Peripheral Nerve conference. On behalf of all PNE sufferers, we are eternally grateful.

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  • Anonymous
    Anonymous
    May 11, 2015
    May 11, 2015
    I've had pudendal nerve damage since prolapse surgery in February 2009. We desperately need awareness for surgeons operating carelessly causing this problem. Please help.
  • Jenny Hall
    Jenny Hall United Kingdom, Morecambe
    Mar 14, 2015
    Mar 14, 2015
    I have suffered pudendal nerve damage symptoms since a traumatic vaginal delivery 2 years ago. It has ruined my quality of life. I can't find any medical help after trying for a year. Suicidal because of the symptoms and being told it is all in my head.
  • Jenny Hall
    Mar 14, 2015
    Mar 14, 2015
    I have suffered pudendal nerve damage symptoms since a traumatic vaginal delivery 2 years ago. It has ruined my quality of life. I can't find any medical help after trying for a year. Suicidal because of the symptoms and being told it is all in my head.
  • Robert Ché McColl
    Robert Ché McColl United Kingdom, Birmingham
    Feb 18, 2015
    Feb 18, 2015
    I have found what no doctor in the United kingdom said said existed.my life has been a living hell for 8 yrs told I was imaging all my symtoms lost family friends and the girl I loved not to mention the 1000s of pounds in private investigations. We will be taken seriously l.Feel the pain.
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443

Signatures

  • 2 months ago
    Jenny Hall
    2 months ago
  • 3 months ago
    Cliff Lightning
    3 months ago
  • 3 months ago
    Robert Ché McColl
    3 months ago
  • 8 months ago
    Pauline Gower
    8 months ago
  • 2 years ago
    Nick Trenchard United States
    2 years ago
  • 2 years ago
    Sarah Matthews United Kingdom
    2 years ago
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    Patrick Bradley, Ph.D United States
    2 years ago
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    Jenny Day Austin United States
    2 years ago
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