My daughter is 20 months old and has recently been diagnosed with congenital bilateral hip dsyplasia.This means that both hips are affected.Mia underwent an open reduction operation at the end of September and is now in a hip spica cast in a frog position with a bar inbetween.Unfortunately her right leg was unable to be operated on so after the treatment for her left hip is finished she will need to have another operation on her right hip.For each leg time spent in casts is typically around 18 weeks.This means Mia is going to be completely immobile for around 8 months and then there is the time afterwards where she will need to learn to walk again.I have tried unsuccessfully to obtain a blue badge but under current legislationshe is not eligible. Qote- Taken from an excerpt from the disabledpersons(badge for motor vehicles)(England)regulations 200. \"The prescribed descriptions of disabled person whom a local authority may issue a disbaled persons badge are a person who is more than 2 years old who falls withinone or more descriptions specified...\" \"has a permanent and substantial disability which causes innability to walk or considerable difficulty in walking\". I have been incontact with my local MP Maria Miller who contacted Hampshire County Council on my behalf,she sent a letter they had sent to her. Quote- \"I do sympathise with Mrs.Grindrod but regrettably I am prevented from issuing a badge by the regulations as they currently stand.\"Jean Frost Blue Badge team leader. Mia is extremely heavy in the cast,she is completely immobile and needs her pushchair with us at all times.She\'s also very wide,50 cms at widest part.It\'s not possible for us to get her in and out of the car in a normal parking space.I don\'t wish to risk her legs being redislocated.There are not always parent spaces available and some people do abuse them. There are many other parents/children in our position and I feel strongly that something should be done to get the Department of Transport/Government to look at their current legislation r.e the age of the child claiming,most children are walking independently by the age of 2 and also that there needs to be a temporary badge made available.If you agree with this petition please sign.Thankyou so much for your help.Helen Grindrod Jessica is 8 months old and is currently waiting for her operation. Jessica is only affected in her left hip, but will go through the same procedure as Mia and also the same aftercare with the casts. Jessica has already been in a harness for 6 weeks, which unfortunately was unsuccessful. The procedure is a week in traction in hospital, followed by the operation. Jessica and her family are going to face the same struggles as Mia and her family and we all need your help. Kelli With this in mind Helen and Kelli (the mum
I have a daughter Alacey that was diagnosed when she was 16 month old with cdh.she is now nearly 13 years old and still struggles wking after many operations even tho she now has a hip socket, however she struggles getting in and out of cars and needs the door to be wide open as she uses this as support and also myself.i do have a blue badge now as she is thirteen however when she was 18 month old and was in a hip spica I struggled to get her In a car in a normal parking bay and I often csught her toes even walkining through shop doors. Eventually I didn't even bother taking her out as getting her in the car was too difficult.
Kelly Nelson1 month ago
Paula gregson5 months ago
susannah sharlandUnited Kingdom9 months ago
There are no highlights yet.