ALD affects boys between the ages of 5 and 12 years. Symptoms include the loss of vision, hearing, and speech, often just six months into onset. These symptoms lead to a vegetative state usually within the first year. There will be 225 children born with (ALD) Adrenoleukodystrophy every year in this country, most will not be diagnosed until they are symptomatic and it is too late. We are asking for a signature to petition for ALD to be added to the Newborn Screening both in the State of Ohio and nationally. These children can be saved if parents and doctors are aware of the disease and can monitor it with MRI's early on. All three of my sons have Adrenoleukodystrophy (ALD). As of today they are healthy thriving young men.In 2006 Dylan and Owen received bonemarrow transplants. Jacob remains asymptomatic . Tragically my nephews Billy and Chad Barley lost their life's to ALD. It was then brought to our attention to have our boys tested. If ALD newborn screening was available years ago Billy and Chad would be here with us today. It is Extremely Crucial to add ALD to newborn screening.My boys are proof that early detection saves lifes.Imagine if a child you love, maybe your son,brother,grandson, or your nephew was unexpectedly diagnosed with Adrenoleukodystrophy and it was too late. All children deserve a chance at a healthy life.