Signatures 4674 total
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3551
Name: Anonymous on Jan 28, 2013Comments:Flag
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3552
Name: Dr. Ellen Wiegner on Jan 28, 2013Comments: I have seen friends whose lives have been significantly impacted by CFS and Ampligen has helped them tremendouslyFlag
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3553
Name: Nicole Hinkley on Jan 28, 2013Comments:Flag
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3554
Name: Kelly Simko on Jan 28, 2013Comments:Flag
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3555
Name: Jennifer Myers on Jan 28, 2013Comments:Flag
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3556
Name: Sandi Solomonson on Jan 28, 2013Comments:Flag
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3557
Name: Anonymous on Jan 28, 2013Comments:Flag
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3558
Name: Stephanie Doane on Jan 28, 2013Comments:Flag
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3559
Name: Amy Mandel on Jan 28, 2013Comments:Flag
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3560
Name: John Ulyatt on Jan 28, 2013Comments:Flag
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3561
Name: Anonymous on Jan 28, 2013Comments:Flag
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3562
Name: Beth Patkoske on Jan 29, 2013Comments:Flag
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3563
Name: Su Irwin on Jan 29, 2013Comments: if this gets one sufferer's life back it has to be worth making available. I'd live that chance.Flag
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3564
Name: Monica Teicher on Jan 29, 2013Comments: Hopefully my friend can get access to the medication that helps her daily life.Flag
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3565
Name: Clare on Jan 29, 2013Comments:Flag
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3566
Name: Nikola Debelic on Jan 29, 2013Comments:Flag
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3567
Name: Lawrence Richards on Jan 29, 2013Comments: about timeFlag
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3568
Name: Angel A.Cortes on Jan 29, 2013Comments:Flag
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3569
Name: Anonymous on Jan 29, 2013Comments:Flag
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3570
Name: Elizabeth Belstraz on Jan 29, 2013Comments:Flag
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3571
Name: Kris Rosa on Jan 29, 2013Comments: We need this desperately.Flag
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3572
Name: Cliff L. Wang on Jan 29, 2013Comments:Flag
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3573
Name: John Ulyatt on Jan 29, 2013Comments:Flag
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3574
Name:
Iris Alfonso-Giebus on Jan 29, 2013
Comments: The is more about acknowledging & accepting ME as a legitimate physical disability than exclusively approving a treatment.. Please sign if you know someone with ME or God forbid, have it yourself.Flag -
3575
Name: Anonymous on Jan 29, 2013Comments:Flag
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3576
Name: Emily Doskow on Jan 29, 2013Comments:Flag
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3577
Name: CATHERINE PASTOREK on Jan 29, 2013Comments: PLEASE GIVE US A CHANCE I HAVE HAD 6 MONTHS OF AMPLIGEN WITH IMPROVEMENT IN MY SYMPTOMS BUT COULD NO LONGER AFFORD ITFlag
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3578
Name: Stan on Jan 29, 2013Comments: FDA does not understand the suffering we go through every dayFlag
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3579
Name: Wendy Monaghan on Jan 29, 2013Comments:Flag
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3580
Name: Julie Hunt on Jan 29, 2013Comments:Flag
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3581
Name: Anonymous on Jan 29, 2013Comments:Flag
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3582
Name: Anonymous on Jan 29, 2013Comments:Flag
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3583
Name: Mathew Maifilo on Jan 29, 2013Comments:Flag
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3584
Name: Anonymous on Jan 29, 2013Comments:Flag
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3585
Name: Terry Ryan on Jan 29, 2013Comments: This is what the CDC lists as how to "treat" CFS, and this was updated just this year. Doctors can help people with CFS adopt good sleep habits. Patients should be advised to practice standard sleep hygiene techniques: •Establish a regular bedtime routine •Avoid napping during the day •Incorporate an extended wind-down period •Use the bed only for sleep and sex •Schedule regular sleep and wake times •Control noise, light, and temperature •Avoid caffeine, alcohol, and tobacco •Try light exercise and stretching earlier in the day, at least four hours before bedtime, because this may also improve sleep Most doctors begin by recommending the patient take pain-relievers like acetaminophen, aspirin, ibuprofen, or acetaminophen. Additional pain therapy, if needed, can be managed by a pain specialist. Counseling for pain management techniques is advisable for CFS patients who experience constant pain. Memory and concentration complaints are two of the more distressing symptoms reported by people with CFS. Relaxation and meditation training and memory aids, such as organizers, schedulers, and written resource manuals, can be helpful in addressing cognitive problems. Stimulating the mind with puzzles, word games, card games and other activities may also be beneficial for some patients. In addition, deep breathing and muscle relaxation techniques, massage and healing touch, and movement therapies like stretching, yoga and tai chi can be beneficial for some CFS patients in reducing anxiety and promoting a sense of well-being. Treatments for orthostatic problems include volume expansion for CFS patients who do not have heart or blood vessel disease. If symptoms do not improve with increased fluid and salt intake, prescription medications and support stockings can be prescribed. Nutritional supplements can't take the place of good diet and nutrition, so a well-balanced diet is encouraged. CFS patients should avoid taking certain supplements because they are dangerous. Some people with CFS report sensitivities to various foods or chemicals, and these items should be avoided. If they are sensitive, they should avoid these potentially troublesome products. Patients should talk with their doctors about all potential therapies because many supposed cures and treatments for CFS that are promoted on the Internet are unproven and could be dangerous. Instead, CFS patients should learn to pace activities and work with their health care professionals to create an individualized exercise program that focuses on interval activity or graded exercise. The goal is to balance rest and activity to avoid both deconditioning from lack of activity and flare-ups of illness due to overexertion. Effective activity management may help improve mood, sleep, pain, and other symptoms so patients can function better and engage in activities of daily living. Doctors may refer some of their CFS patients to specialists who can help them problem-solve and develop techniques for conducting activities of daily living that have become difficult because of their CFS symptoms. Referral to a neuropsychologist, neurologist, or psychiatrist for evaluation and testing may be necessary to determine whether other underlying conditions may be involved. It should be noted that CBT is a highly specialized therapy and requires the input of trained behavioral health clinicians. As anyone can see, the CDC has no idea what CFS is. They need to approve this drug for CFS suffers!Flag
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3586
Name: Loumaile Heimuli on Jan 29, 2013Comments:Flag
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3587
Name: Feao Heimuli on Jan 29, 2013Comments:Flag
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3588
Name: Anonymous on Jan 29, 2013Comments:Flag
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3589
Name: Mele Teu on Jan 29, 2013Comments:Flag
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3590
Name: Fakanonga Tahaafe on Jan 29, 2013Comments:Flag
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3591
Name: Temaleti Mahe on Jan 29, 2013Comments:Flag
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3592
Name: Siousuia Masifilo on Jan 29, 2013Comments:Flag
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3593
Name: Etika Masifilo on Jan 29, 2013Comments:Flag
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3594
Name: Olivia Manisela on Jan 29, 2013Comments:Flag
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3595
Name: Jina Lee on Jan 29, 2013Comments:Flag
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3596
Name: Michelle Dawley-harrison on Jan 29, 2013Comments: UtI have been living with both fibromyalgia and CFS for more than 5 years and I have tried and done everything possible to ease this diseases hold on me. I have now had to stop working as a test engineer ,and trying to just live one day at a time since I don't know what tomorrow will bring. I would like to go back doing the things I love. This disease has taken so much away not only from myself but my family as well.Flag
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3597
Name: Maafu Manisela on Jan 29, 2013Comments:Flag
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3598
Name: Maafu Manisela on Jan 29, 2013Comments:Flag
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3599
Name: Maafu Manisela on Jan 29, 2013Comments:Flag
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3600
Name: Lekini Maufualu on Jan 29, 2013Comments:Flag