Signatures 4691 total
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2451
Name: Dawn on Jan 21, 2013Comments: We need medication now we have waited long enough we need help.Flag
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2452
Name:
Sam Bradbury on Jan 21, 2013
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2453
Name: Lisa La Rosa on Jan 21, 2013Comments: Please give me and others like me a chance to regain some of my former health.Flag
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2454
Name: Margaret Hray on Jan 21, 2013Comments:Flag
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2455
Name: Mrs Suzanne Spearing on Jan 21, 2013Comments: please please approve this drug it has successfully treated some with cfs/me who were extremely ill & bedbound & in agony & now have a lifa again. there is also no officially approved medication for cfs/me so decades without anything to improve their lives & reduce symptoms & severity & being bedbound or houseboundFlag
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2456
Name: Jane Anderson on Jan 21, 2013Comments: FDA has voted Ampligen is safe for approval and have the evidence that Ampligen has been safely used by seriously ill patients 2 decades, there is no excuse to deny ME/CFS patients this extensively tested treatment any longer!Flag
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2457
Name: Nancy Henson on Jan 21, 2013Comments: This disorder has been ignored for 30 years. Its time we had some decent treatment for those who suffer greatly from this disorder.Flag
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2458
Name: Leeray Denton on Jan 21, 2013Comments: I have suffered from this illness for 22 years, my daughter has suffered for 5 years, Isn't that enough, we are sicker than some people we have seen go through cancer. Please give us a choice on treatment.Flag
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2459
Name: Wim Hamminga on Jan 21, 2013Comments:Flag
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2460
Name: Mary S Rominger on Jan 21, 2013Comments: Please give hope to those suffering from CFS!Flag
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2461
Name: Sherry Lee on Jan 21, 2013Comments:Flag
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2462
Name: Jayne E Eldred on Jan 21, 2013Comments:Flag
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2463
Name: Sherrie on Jan 21, 2013Comments: Please approve, what have we got to lose?Flag
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2464
Name: Heather Johnson on Jan 21, 2013Comments: Have had CFS/CFIDS/ME since 1989, a long time with no treatment, and no help, a hard few years to struggle on one's own. Hope if ampligen can help a fwew that it becaomes approved.Flag
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2465
Name: David Price on Jan 21, 2013Comments:Flag
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2466
Name: Todd Jones on Jan 21, 2013Comments: please make this available for those who need itFlag
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2467
Name: M. Imanaka on Jan 21, 2013Comments:Flag
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2468
Name: Shawna Stockton on Jan 21, 2013Comments:Flag
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2469
Name: Anonymous on Jan 21, 2013Comments:Flag
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2470
Name: Russ Wullenwaber on Jan 21, 2013Comments:Flag
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2471
Name: Hieu on Jan 21, 2013Comments:Flag
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2472
Name: Michelle Furbershaw on Jan 21, 2013Comments: CFS is REAL. If you or a family member had it, you would understand, and want the best treatment available. Don't deny this to millions of suffering individuals who want to be active in life. It's time to recognize CFS and take action. It is real and it is serious. And there is enough research to prove it, with concrete and substantial information.Flag
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2473
Name: Kathy Parker on Jan 21, 2013Comments:Flag
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2474
Name: Karen Hart on Jan 21, 2013Comments: Approve a chance at a normal life for me.Flag
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2475
Name:
Ashley Hinds on Jan 21, 2013
Comments: It is a good drug owned by an inept company, it has been proven safe enough - just let people have it!Flag -
2476
Name:
Lisa Frattaroli Baldwin on Jan 21, 2013
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2477
Name: Gina on Jan 21, 2013Comments:Flag
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2478
Name: Ashley Sin on Jan 21, 2013Comments:Flag
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2479
Name: Keri Wagner on Jan 21, 2013Comments:Flag
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2480
Name: Debbie Holbrook on Jan 21, 2013Comments: im laying in bed dying right now . please pass this drug . I deserve to live and so do others . please pleases helpFlag
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2481
Name: Thea on Jan 21, 2013Comments:Flag
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2482
Name: Hans R. Fuchs on Jan 21, 2013Comments: ME/CFS is a serious, physical illness which need every support it can get. Not only Ampligen must be allowed by the FDA but also Rituximab (Rituxan)Flag
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2483
Name: Marijke De Jong on Jan 21, 2013Comments: Please, we need this medicine, I am a ME-patient.Flag
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2484
Name: Lindsay Douglas on Jan 21, 2013Comments:Flag
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2485
Name: John Mitchell Jr on Jan 21, 2013Comments: ME/CFS is likely comprised or subsets which may or may not even be the same illness. Therefore treatments which work on one subset may not work on another subset, and might even make another subset worse. This heterogenous response has the effect of watering down the efficacy signal from the subset which the drug truly helps and whom are true responders. With no other approved treatments available, these individuals who respond to the treatment would be deeply deprived of a safe and efficacious treatment for their disease.Flag
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2486
Name: Tino Barbati on Jan 21, 2013Comments: Aloha, I was 35 years old and after a very difficult life to that point I finally had positioned myself where I had intended to be through very, very hard work building a construction company from nothing more than a paint brush given to me by my grandfather before he passed and my god given intelligence. With little more than being born and fed I built a small business and eventually purchased a small franchise, I thought I had finally made it. I got myself a small home on the beach in Hawaii and every morning went down to the beach on my way out to work as the sun rose out of the Pacific and there stood just slightly to my left the amazing life creation force of a snow topped Mauna Kea volcano, incredible! I wound be pulled down to my knees by my gratitude and would tear up because almost every morning as it had been such a long and hard road to get to where I was at that moment in my life. I was fully aware that not everyone was this blessed and I gave to charities and looked forward to making larger contributions. My heart would break for those less fortunate as I had previously traveled much of the world working on ships and later as a employee for private government contractors in South East Asia... I surfed often, played on a basketball league, took tennis lessons, lifted weights, kayaked, scuba and snorkeling often and was blessed to swim and surf with dolphins, whales, giant sea turtles and even sharks. I had a beautiful girlfriend with a masters from Boston College who worked as a psychotherapist treating PTSD for the V.A. and she was fantastic, we talked about marriage in the beginning and having children. However, for her and others who are healthy they get to walk away while we are still here suffering. She could no longer in her words, "watch me suffer any longer without the ability to help me" and she eventually after 12 difficult years left to go on to the life she deserved, the life we all deserve to have a shot at. The very same day I purchased my franchise in 1995 just past my mid 30's many years ago I flew to the east coast to be trained at corporate headquarters and I became ill the very next day. I was in excellent physical condition and felt no excessive stress at all. Six years later however I would make the mistake of selling my dream business and devote everything to regaining my health as I no longer could suffer and function. Since those 18 years ago it would say very little to tell you life has been very difficult, no that wouldn't even begin to scratch the surface. I never thought that here and now at 55 years old I would still be as sick as I ever was, just older and life would be even harder. However, I have grown spiritually. For some who are fortunate to have enough wealth, these select few can afford high-end and alternative medical help and from what I have read only a fraction have found any substantial relief, but it may be a little easier. Hell, if I could even pay my bills life is a lot easier, that is what I hear. I was blessed while I was still able to barely work to be able to fly from Hawaii and go to Massachusetts General Hospital and have extensive testing and was seen by the head of Rheumatology after my local neurologist suggested I give it a try, yet warned me that this would be one of the last diseases to be well treated and wouldn't be solved in his lifetime. After extensive testing at Mass General as I previously mentioned I spoke with the head of Rheumatology who diagnosed me with Fibromyalgia..., he said that it was not a psychological disorder even though my general practitioner kept telling me in Hawaii it was. Also the head of Rheumatology at Mass General said that they had no idea how to treat it, this was in 1997. I have checked with the Mayo Clinic and they suggest Yoga, diet and exercise. The Cleveland Clinic has or had a program were one goes in everyday and works out for eight hours a day, this is crazy and impossible for those of us who actually have this diease and out loud laughable. Later in 1997 or 98 I would again fly from Hawaii and visit another doctor, but this time in Maryland. This doctor who had been managing his own FM, M.E., CFS... since he went to medical school and was forced to drop-out, yet a year or so later drag himself through while still graduating second in his class. I spent over $6,000 cash at his clinic since insurance didn't cover this 'non-existing condition", plus traveling expenses, tests and supplements, etc. We spent about 5 hours during diagnosis, going over my test results, medical history and a protocol. As time passed and thousands of dollars more I don't believe I was ever fully able to follow the protocol as best as possible as I was unable to work and therefore treatments, supplements and medications, testing... were more than I could afford. I believe if one can afford all the alternative care that this would in fact help patients to do a little better. And a little improvement I have learned, can mean a lot. Those of us who are as sick as I am cannot work to pay for comprehensive advanced and alternative care. And the stress of this illness accumulates in many facets making life harder and harder essentially until many end-up completely alone and some have even taken their lives and many contemplate this what seems to them a way out. Even while I suffer I do my very best to will myself to get through each moment and to not get ahead of myself as I muster all positive intentions and plans possible. This is quite difficult with very little energy and for me in constant 24/7/365 pain that in my case is completely unrelenting. Please pardon my very strong opinion and emotion regarding the ill treatment of patients as I detour from the topic of Ampligen for two paragraphs: It is worth mentioning without pain meds and sufficient sleep medication I would not be able to take care of myself and likely the worse outcome would have come about a long time ago. Regarding pain medication there should be an exception for those of us who must have more than 6-8 Tramadol a day. We are not looking to "get high" we are looking for basic human rights. Enough medication is being able to go to the bathroom, or make some food... to have some minimum function and not be constantly is so much pain that it is unbearable. Many of us MUST go outside the system and put ourselves in jeopardy and spend money we don't have to acquire "a little" more non-narcotic medication. The topic of pain medication is an urgent topic, and one that to me and millions of others should have been addressed a long, long time ago. To make those of us who are already suffering tremendously have to stress over getting enough medication, is nothing more than inhumane and insane treatment and a disregard to our basic democracy. The topic of 'just enough" pain medication is easily addressed and I could care less what those who do not suffer "think" is best for me or who can get their medications due to their different treatment becasue of their professional position or economic advantages. This is a Constitutional Right in our democracy which has been unlawfully trampled on by those without the capacity of true compassion or the understanding of what is our reality, or only concerned by thier liability. We deserve the right to simply have enough pain medication and to be able to sign a legal document absolving pharmaceutical companies or physicians of any liability for simply enough, not too much, but just enough medication. And the cost to insurance companies for non-narcotic pain medication as in Tramadol is minimal, especially since we are often talking about companies whose profits and bonuses continue to rise at the cost of human suffering. As well patients are looked at with suspicion as drug seeking. This is due to the lack of proper education starting at the top and getting all the way through the medical system, that some patients require "enough" medication. The stress of "I am going to run out of medication" every single month adds to poor heath and has an even more negative effect on a patients quality of life. The facts of past decades have proven that peoples health and well being not only effects individuals dealing with these incredibly difficult diseases, but also destroys relationships, effects entire families and clealy, clearly our economy. This disease and those of whom it effects seemingly has been almost completely forgotten, and definitely there has been no urgency regarding research from what I have read, and I have read a considerable amount from the CDC and NIH throughout the years. Basic math 101 tells me that economically and our collective health is better served to address these diseases the best we can as the "modern and humane country" we are. However, the best from our government and corporations is not what we have gotten, no not even close, yet this is only my opinion based on 20 years of reading about this issue and attempting every trick in the book to pull myself back up to some quality of life. I don't know all the facts surrounding this medication, therefore I can only say the clock is ticking and I and many others feel desperate beyond description, out of options and many are willing to at least give Ampligen a chance. We have not given up and are willing to do whatever we can collectively and individually improve our lives and the lives of others. What else do we have to date with the exception of exercise, diet and CBT...? How would you want to be treated with your one life, and it was being crushed as those in a position to take action did little to nothing? What has this country and it's prestigious medical community done in it's efforts to help us? I know some of the answers, yet what is most important is for those who will make this choice I pray you will make a choice based on love and not some other reason. For only love for one's self and fellow humans and all of life, is why we exist. Please check your heart and use the power of love and compassion to guide you. I and others infinitely appreciate your time and efforts regarding this more important that you can imagine issue unless you suffer as we do. May your life and to those of whom you love be filled with love, light and joy, mahalo nui loa. Tino BarbatiFlag
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2487
Name: Anonymous on Jan 21, 2013Comments:Flag
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2488
Name: Cindy Rice on Jan 21, 2013Comments:Flag
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2489
Name: Leigh Prim on Jan 21, 2013Comments:Flag
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2490
Name: Schmid on Jan 21, 2013Comments: I firmly support this petition!Flag
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2491
Name: Helen Krause on Jan 21, 2013Comments:Flag
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2492
Name: Oldenburger on Jan 21, 2013Comments:Flag
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2493
Name: Louise Whelan on Jan 21, 2013Comments: The latest DSM V is about to further entrench ME/CFS as a somatic disorder, and ICD 11 is about to follow. Therefore, it is more vital than ever that a biological treatment be approved for ME/CFS to make it more widely available for the subset of patients who have responded to this drug, and to counter those who believe the disease is merely all in the mind. Moreover, approving Ampligen will serve to encourage more research into other drugs for other subsets of this illness. ME/CFS has been classified for over 40 years, and all we have by way of 'treatment' are myriad psychological interventions that have done more harm than good. Approve this drug and others will follow, we are sick of the politicking, the mistreatment and the neglect. I, for one, want my life back; Ampligen may not be the answer for me, but FDA approval may lead to other drug developments, and the recognition that this disease is real and that sufferers are wholly undeserving of the stigma and delegitimisation that adversely affects almost every aspect of our lives. Thank you for your consideration.Flag
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2494
Name: Alan Twose on Jan 21, 2013Comments: I have been sick with ME 30 years.Its so much more than people imagine!Flag
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2495
Name: James York on Jan 21, 2013Comments:Flag
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2496
Name: Constance on Jan 21, 2013Comments: Please, give all of us a chance at hope.Flag
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2497
Name: Anonymous on Jan 21, 2013Comments:Flag
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2498
Name: Sally Burch on Jan 21, 2013Comments:Flag
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2499
Name: Neel Anne Keith on Jan 21, 2013Comments: I have seen half of my life destroyed because there was no treatment for this disease. As a direct result of this illness, I have lost my ability to support myself financially. I have lost relationships with friends and family. I have had to see my dreams of the future reduced to ashes. For many years, I have been asked to wait for medical serendipity to strike and for uninterested pharmaceutical companies to suddenly discover a cure. I tell you, it is past time for that to change. I have waited for Ampligen’s approval for 20 years. Please do not ask me to wait any longer for even the chance at a near normal life. Like many, perhaps most, of us, I am simply too ill to travel to research sites. Until there are economies of scale, there is simply no way my disability pay could cover the costs. I know this medication will help only some but, until it is available, I have no chance at all to find out if it will help me and neither will most other patients. With sufficient numbers of patients finally able try this, our researchers and doctors may be able to finally find clear subsets within our difficult diagnosis – something that will aid in both treatment and understanding of the condition overall. With a viable medication and the huge number of potential customers for other medications, big pharma may at last “discover” us, leading to medications to help other subsets within the disease. I know Ampligen is not a panacea but it is at least a major step in the right direction. The choice before you is not between Ampligen and something better. It is the choice between Ampligen and years more of certain suffering (and even death) by all patients. By approving this drug, you will finally help some sufferers. By helping some directly, you help all indirectly. Please, give us some hope. Please approve this medication without any more delays.Flag
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2500
Name: Jill Diprose on Jan 21, 2013Comments: this illness desperately needs therapies that work. many people have been helped by amigen and it deserves wider use in this ignored patient groupFlag