A comment by anonymous for the New Year Jan 1. 2013 | Comments (1)
Responsible evidence-based decision-making acknowledges the possibility
that it is sometimes the evidence, and not always the subject, that is
lacking. Even the most conclusive studies are still statistical
arguments – concluding what is *likely* to be repeated in *most* cases,
not what is unequivocally true. When you base your decisions on a lack
of evidence, you are in even deeper theoretical territory. I'm sure you
are familiar with the adage that "absence of evidence is not evidence of
absence." Unfortunately, while you have the luxury of arguing these
finer points of scientific epistemology, sufferers of this disease live
very real, very empirically awful lives. And yet you are withholding
their *only* treatment option? Can you find the humility to consider
that inconclusive research is not the same as an identified threat, and
give the sick the option to find out for themselves if they can be
helped by this drug? Sufferers of this disease are already in a
statistical minority; please don't marginalize them any further.
Thank you Anonymous, this is the point some tried to present at the meeting.