Sign Petition

FDA should give CFS patients access to Ampligen!

4,995 Signatures Goal: 8,000

An estimated 4 million US citizens and 20 million worldwide are suffering from Chronic Fatigue Syndrome or CFS/ME[CDC, CFIDS]. It's a life-threatening illness, as debilitating as MS[CDC]. There is no cure and no FDA-approved drug treatment.

Rintatolimod(Ampligen) has been undergoing FDA trials for over two decades and has benefited a great number of patients to no end and without ill effect.

An FDA Advisory Committee has recently seen fit to block marketing of Ampligen, even though they voted it safe for approval. Instead of encouraging drug companies to pinpoint the subset(s) of people who respond so well, theyexpect sponsors to attract millions of dollars without a return.Ampligen is safe and has been available in places like Canada and Brussels for 17 years.There is no alternative.

We urge the FDA toApprove Ampligen now.

Thanks to the efforts of people like patient/advocate Mr. Robert Miller, the FDA is inviting patients to attend its ME/CFS Stakeholder Workshopon April 25 and 26, 2013.

Find out how you can help herehttps://twitter.com/bobmiller42and show your support bysigning this petition. Share it with your friends and let the FDA know they too should hear us loud and clear: Let ME/CFS patients decide!

Enter your full name and email below and click on the blue "sign now" button. We're not looking for donations. The donation request some will see after signing is unrelated to this petition, but rather for/bythe site hosting it,ipetitions.com.

Sponsor

Fred. Neither patient, doctor, nor investor. I was touched by testimony.

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ME/CFS Facts

  • Barbara Kloeppel
    Barbara Kloeppel United States, Berkeley
    Feb 04, 2016
    Feb 04, 2016
    I have chronic fatigue and would definitely take amplified if it were available!
  • kathleen Goldstein
    kathleen Goldstein United States, Truckee
    Jan 19, 2016
    Jan 19, 2016
    I've lived with ME/CFS for thirty years.
    the disease has robbed me of my young adulthood, I missed out on raising my children properly, rather survival mode. The disease causes me to feel flu-like every day of my life, the first 6 years was sever flu symptons, especially nausea. To this day, I'm not quite sure how I hung onto life during that time. It was a constant battle in my mind, to stay in this life with chronic illness or to leave it behind. Can you imagine waking up every day of your life with swollen glands, chills, diarrhea, extreme nausea and exhaustion and then wake up for the next six years with the same severe symptoms. On top of dealing with the symptoms I had three children that needed me and I had nothing to offer them except hugs. They had to deal with the constant flow of baby sitters and disappointments, when I had to tell them time and time again that we wouldn't be able to attend sport practices or any events really.
    I think the only reason I'm writing to you today is because I didn't want my children to have the legacy that their mother committed suicide.
    I've lived to see better days due to IVGG treatment monthly. My flu symptoms are a little quieter, but they refuse to ever give up completely.
    I've also learned to cope better with chronic illness and find joy in life. However, on the bad days, it's so hard to stay positive. I pray answers to what the disease is and a cure come soon for all of us patients and families who care for us so that another young mother of three children never has to lose so much again.
  • Christoph Belka
    Christoph Belka Germany, Hattersheim
    Dec 12, 2015
    Dec 12, 2015
    Fuck, just do it!
  • lisagehringer
    lisagehringer United States, Phoenix
    Dec 08, 2015
    Dec 08, 2015
    I have suffered from this disabling illness for 25 years and have tried every thing under the sun to cure it. I think we CFS patients should be allowed to try it.
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4995

Signatures

  • 2 days ago
    Barbara Kloeppel United States
    2 days ago
  • 1 week ago
    John Danielewicz United States
    1 week ago
  • 3 weeks ago
    kathleen Goldstein United States
    3 weeks ago
  • 3 weeks ago
    Jenny C United States
    3 weeks ago
  • 1 month ago
    Gabriele Henne Germany
    1 month ago
  • 1 month ago
    Anja Kamp Germany
    1 month ago
  • 2 months ago
    liesk, alexander Germany
    2 months ago
  • 2 months ago
    Christoph Belka Germany
    2 months ago
  • 2 months ago
    lisagehringer United States
    2 months ago
  • 2 months ago
    Bob Denmark United States
    2 months ago
  • 2 months ago
    Alexander Harder Germany
    2 months ago
  • 2 months ago
    Anne Kranzb├╝hler Netherlands
    2 months ago
  • 2 months ago
    Peter Kranzbuehler United States
    2 months ago
  • 2 months ago
    Roy Santos United States
    2 months ago
  • 3 months ago
    Noreen Murphy Ireland
    3 months ago
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