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FDA should give CFS patients access to Ampligen!

FDA should give CFS patients access to Ampligen!

4,317 signatures 683 to reach 5,000
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Tracy w. signed
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Daniel L. signed
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Joseph G. signed
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Elizabeth L. signed
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Elizabeth K. signed
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Paula S. signed
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Jajuan D. signed
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Started by Fred Steegmans 13 years, 7 months ago
An estimated 4 million US citizens and 20 million worldwide are suffering from Chronic Fatigue Syndrome or CFS/ME[CDC, CFIDS]. It's a life-threatening illness, as debilitating as MS[CDC]. There is no cure and no FDA-approved drug treatment.

Rintatolimod(Ampligen) has been undergoing FDA trials for over two decades and has benefited a great number of patients to no end and without ill effect.


An FDA Advisory Committee has recently seen fit to block marketing of Ampligen, even though they voted it safe for approval. Instead of encouraging drug companies to pinpoint the subset(s) of people who respond so well, theyexpect sponsors to attract millions of dollars without a return.Ampligen is safe and has been available in places like Canada and Brussels for 17 years.There is no alternative.


We urge the FDA toApprove Ampligen now.


Thanks to the efforts of people like patient/advocate Mr. Robert Miller, the FDA is inviting patients to attend its ME/CFS Stakeholder Workshopon April 25 and 26, 2013.


Find out how you can help herehttps://twitter.com/bobmiller42and show your support bysigning this petition. Share it with your friends and let the FDA know they too should hear us loud and clear: Let ME/CFS patients decide!


Enter your full name and email below and click on the blue "sign now" button. We're not looking for donations. The donation request some will see after signing is unrelated to this petition, but rather for/bythe site hosting it,ipetitions.com.

Updates

February 17, 2014

We hit a new level of momentum that makes it impossible for the FDA to keep ignoring us. Post our link on your Facebook wall today. Send a direct email to your representative and demand they support Ampligen access.

Reached 1,000 supporters

January 3, 2013

December 29, 2012

We just hit 100 signatures to demand FDA approval for Ampligen. Use the link to email your representative today and let them know why this treatment is essential for patients. Post this link on Facebook to get the word out to your network.

Reached 100 supporters

December 28, 2012

172 Comments

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Joseph Girsch
1 year ago Featured

I've had Chronic Fatigue Syndrome for a year now, preventing me from working full time hours and living a full life. Please accelerate the process for this drug. There is no alternative on the market for people like me.

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Maria Johnson
3 years ago Featured

I have had CFS for decades. One of my children has it as well. Been in and out of doctor's offices in desperation for years until finally diagnosed at the Mayo. Please give us the opportunity to live productive lives.

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Kathleen Riley
10 years ago Featured

I am 74 a have suffered 40 years since I had infectious mono. I was hospitalized 2 was. I had a temp of 105 they had a difficult time getting down. I am home bound most of the time. I would like to live healthier for whatever time I have left.

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Barbara Bloom
11 years ago Featured

My son became ill at 16 after a viral infection that never went away. He has been sick for 10 years and he has not benefited from any treatment. Please don't deny him the possibility of benefiting from Ampligen.

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suzanne jackson
12 years ago Featured

My son has been diagnosed with this disease after always being healthy. He has already lost the last year and 1/2 of his life. He has no treatment now. Please approve so he can finish his last semester in college and get on with his life.

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kathleenharper
12 years ago Featured

I am stunned at the refusal of the FDA to give ampligen fast track status after all the patients reports of how it helps them. The lack of compassion and inaction is shocking . We asked for help and were refused.Decide again,dont leave us untreated.

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Tracy walker
10 months ago

Please approve Ampligen. I want my life back. And so does the 20 millions worldwide that are suffering from ME this is not living. Our lives have hit the pause button.

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Elizabeth Kempton
2 years ago

I have ME/CFS and need a treatment

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