An estimated 4 million US citizens and 20 million worldwide are suffering from Chronic Fatigue Syndrome or CFS/ME[CDC, CFIDS]. It's a life-threatening illness, as debilitating as MS[CDC]. There is no cure and no FDA-approved drug treatment.
Gala Esther Gómez Rodríguez
I suffer from CFS from years ago and I can assure it´s a terrible disease, worse here in Spain where we´re force to work because the social security doctors don´t give us even a week´s sick leave.
We are no given any drug to release our pain either. If Ampligen is approved in the USA, it´ll be also in other countries all over the world. Plesase Approve it, we are willing to try it because it won´t make us feel worse!
I and thousands of others are in chronic pain and other horrid complications due to this disease. Many of us are bed ridden or home bound. Ampligen is our only hope at this point. Please release this drug so we may find out it's true medical help. I've been on hundreds of meds only to suffer great side effects from these useless medications. How come if a disease is 'recognized' for a 'recognized' disease there are many drugs to help?! Since we have no spokes person for this disease (ie Michael J Fox/Parkinson's) we are ignored! This is a disease that can be cured with ampilgen. The FDA has released far more drugs that have been tested/released then pulled for causing stroke/heart attacks or cancers. All we ask for is the chance to try this drug/sign a release form so no one will beheld accountable. At this point, we have no other options. I will end up in a wheelchair because the FDA will not release this drug. Just give us a chance or some hope. I know many people have already taken their lives because they cannot go on. In their honor please do what it takes to make our lives hopeful and perhaps back to 'normal' once again. If I sound like I am begging then I am. Why do we have to wait ,and wait???
We are people who are entitled to live a productive and happy lives here in the USA. We ARE the people and we need help NOW! Do the right thing and give us all a chance to live again!
I'm sorry if we are not out with posters backing for help or running marathons for money...we cannot. It takes great effort to get out of bed everyday, our bodies have been ravaged by this germ and ruined our lives. All I can say that if it were you or perhaps your child /grand baby would you find away to have them treated? Of course you WOULD!! I guess we are the people unseen and unheard and we don't matter?! We have hopes and dreams and would embrace the chance. Life is far too short...7 yrs so far for me and I'm near my breaking point.
Please help us ...we are sending out an SOS. Much thanks for even reading this or taking our lives into consideration .Susan M. Kennedy
I feel so bad that I want to try Ampligen, or anything that might help me. I think it´s imposible for it to make me feel any worse!
Melissa Angel, Brooklyn, NY, United States15 hours ago
James Martin, Dunbar, PA, United States19 hours ago
Sandra Martin, Dunbar, PA, United States19 hours ago
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