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Help for Amino Acid Disorders

49 Signatures Goal: 100

This petition is to get help with low protein foods and formulas for persons with an Amino Acid Disorder; Phenylketonuria(PKU), Organic Acidemas, Maple yrup Urine Disease, etc. These disorders are genetic and are picked up at birth through the state\'s NewBorn Screening Test, these tests were started in the 1960\'s. There are hundreds of adults and children with one of these disorders. A person with any one of these disorders must sustain a very strict low protein diet for LIFE. If the Diet is not maintained the outcome will result in mental retardation as well as behavior problems, learning disabilities, and neurological problems. The extreme cost of these low protein products is a problem. It is $10.00 (ten) for a loaf of low protein bread, as well as for low protein pasta, and low protein cheeses. Not all states in the US have mandated insurance companies to pay for these products, for most there is no help. SOMETHING MUST BE DONE NOW! This petition will be sent to as may representatives as it will take to ensure all with these disorders have help to live healthy lives.

Sponsor

Kim Marsico Pku4life@aol.com Mom to Robert 3 PKU

Comment

48

Signatures

  • 4 years ago
    Terri Krasny United States
    4 years ago
  • 4 years ago
    Ciara McGilvray United Kingdom
    4 years ago
  • 8 years ago
    Travis Cooper Australia
    8 years ago
  • 9 years ago
    Manjeet Kaur India
    9 years ago
  • 10 years ago
    Lucaya Riley United States
    10 years ago
  • 10 years ago
    Sean Overall United States
    10 years ago
  • 10 years ago
    Raheleh Toughiry Iran, Islamic Republic of
    10 years ago
  • 11 years ago
    Michelle verona United States
    11 years ago
  • 11 years ago
    Jay Sweeney United States
    11 years ago
  • 11 years ago
    Nancy Kiessling United States
    11 years ago
  • 11 years ago
    barry schiel United States
    11 years ago
  • 11 years ago
    dana price United States
    11 years ago
  • 11 years ago
    sara price United States
    11 years ago
  • 11 years ago
    jason price United States
    11 years ago
  • 11 years ago
    david price United States
    11 years ago
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