| # | Name | Comments |
|---|
| 901 | Anonymous | Dr Myhill has provided the only real source of help I have experienced of all the medical doctors I have seen regarding my CFS. The tests she recommended were informative and useful. The treatments, based on test results, really help, although it is not a cure. She has worked with my GP, and within all ethical guidelines as far as I am concerned.
In my view, Dr Myhill should be getting support and funding for crucial work in CFS. |
| 902 | Dorian McClain | The world needs more pioneering doctors like Dr Myhill, and fewer less-competent, professionally jealous, backstabbing doctors like those who are making this bogus case against her, plus fewer doctors who subscribe to the antiquated Simon Wessley school of quackery who dismiss ME/CFS as some mere 'psychosocial' condition of 'fatigue' that can be treated with psychotherapy (useless to ME/CFS sufferers) and exercise (harmful to ME/CFS sufferers), as opposed to the totally devastating organic illness that is the true reality. I have not been treated by Dr Myhill as she is so swamped with patients that she is unable to take on any more, but have read much of her amazing successes, have corresponded with her secretary who thinks extremely highly of her, and have a copy of her book 'Diagnosing and Treating CFS' which I have found absolutely invaluable as a reference guide that has helped me with my own ME/CFS. I very strongly recommend that this witch hunt be dismissed. |
| 903 | catherine bamford | |
| 904 | Sandra Lucille | What can i say? Sarah Myhill saved my life. She diagnosed me in September 2008 after I had been seriously ill for fifteen months. I gladly undertook a two year series of EPD for horrendous allergies which made my life almost unliveable. I was lucky as someone who was multiply chemically sensitive: It worked. And gradually I began to try and recover my health under the care of Dr. Myhill plus other help in my city of Leicester. I find this action against Dr. Myhill abhorrent, and malicious in the extreme. With little/no help from the NHS for people with ME, we are eternally grateful for people like Sarah Myhill who are prepared to operate outside of the system - which doesn't want them anyway - in the interests of those who suffer from ME. I experienced extreme hostility from one GP, less from a couple of others. It is they who should be questioned as to the reason for their antagonism towards people with ME and those like Sarah Myhill, who are dedicated to treating us. Thankyou a million times Sarah, and don't let the bastards grind you down. You know you are right ,as do all of your patients, so feel assured that you will triumph in the end. My very best wishes, Sandra Lucille. |
| 905 | James Davies | At all times during my involvement with Dr. Myhill has she kept my GP informed and her treatment recommendations have been through the GP. |
| 906 | Margaret Tranter | |
| 907 | J Mhay | Dr Myhill offers support to those patients that are often mistreated or not even taken seriously by other Drs. I probably wouldn't even be here today if I had not come across her information on CFS/ME when I did. Rather than being punished, Dr Myhill should be held as an example of what a Dr should be doing for his/her patients. |
| 908 | Anonymous | Dr Myhill is a pioneer. She is exploring avenues that are miles ahead of non-specialists in this area are doing. As long as what she is doing is safe and causing no harm (I'm not aware if any evidence that she is - no patients have complained), I passionately believe she should be supported in her work. |
| 909 | Christine Hamer | |
| 910 | Judy Hayman | I despair. Does anyone apart from doctors like Dr. Myhill ever consider the interests of patients. I am an M.E. sufferer myself who has been helped by a like-minded doctor, who is also being persecuted by the GMC. If doctors like this did not try and help us, we would get not help at all and what happens to these doctors. They are persecuted for trying to help us. Two GP's have told me there is nothing they can do for me and that is nonsense. At 69 I am now leading a relatively normal life. I would be in a wheelchair if I had not received help from my specialist and the State would be having to keep me. Does anyone out there care apart from the likes of Dr. Myhill? And what about all those other poor patients who have not been fortunate enough to receive the kind of help Dr. Myhill is giving. |
| 911 | Sandra Jones | |
| 912 | julia warman | why does this country insist on supporting cbt which doesn't work and get which is harmful and causes relapses. prof fidley states that he gives b12 jabs and 50% of his patients get show improvement or benefit why is he not on trial. regarding trials there have been trials to back this up. |
| 913 | Anonymous | I had to step outside the NHS to get Hashimoto's disease treated-because bloods were 'normal' which stopped the process in it's tracks. Doctor's whose instincts are to help patients should not be hounded not bound by blood tests that do not show the whole picture. Do not criminalise good healing hands! |
| 914 | Mary Parker | Dr Myhill is the only person who listened and then acted. She is wonderful! |
| 915 | Catherine Glanfield | |
| 916 | LESLEY LAING | |
| 917 | F Jackson | I consider myself very fortunate to have been seen by Dr Myhill during her all too brief sojourn with Shropshire PCT. If I had not been treated by her I would still be sleeping my life away with CBT instead of returning to my much-loved job as a dance teacher. The GMC should be ashamed that it has so little interest in the real improvements Dr Myhill has made to many patient's lives. B12, Magnesium & radical dietary change, as advised by Dr Myhill, have given me my life back, no-one else offers this kind of help. I can only assume her detractors are jealous both of her success & her alarming tendancy to treat us as thinking human beings. I realise that's not a comfortable option for her deteractors. |
| 918 | P M Karp | |
| 919 | Carole Donoghue | |
| 920 | Patricia Dye | sarah Myhill's work freely available on the internet has helped me beyond words to get a grip on ME and to start a disciplined recovery programme. After nearly 18 years of illness, I am now well on the way to being 90% recovered after initially being bedridden for a few months, then housebound for 5 years. I cannot thank Dr Myhill enough. |
| 921 | Chris McCormack | Sarah Myhill is a wonderful, caring GP who has devoted her career to helping people with CFS/ME. She has had the courage to put her head above the mainstream medical parapet in order to help her patients; she should be lauded and applauded not vilified and abised by the GMC. |
| 922 | sally neish | |
| 923 | Daisy Neish | |
| 924 | kay rowley | I wouldnt be alive now if it wasnt for Dr myhill |
| 925 | Anonymous | We need more doctors like DR Myhill. |
| 926 | Zoe Norris | |
| 927 | david ebdon | we need more doctors like sarah myhill |
| 928 | Anonymous | |
| 929 | Sarah Veasey | I was absolutely astounded when I heard about the appalling conduct of the GMC against Dr Myhill.
I was desperately ill with CFS when I got in contact with Dr Myhill in 2006 and I think that she (and several other practitioners of similar thinking) literally saved my life. 18 months later I am nearly fully recovered and enjoying life with my husband and 3 small children again. I can never thank her enough for this.
I am English but was and I still am living in Singapore, where there is no help for CFS at all. When I collapsed with CFS I was sent to one of Singapore's top private hospital where I was given worm tablets and then sent home as "test results are all normal and CFS is all in the mind".
Being English I then tried to find resources in the UK (even though I was bedridden at the time and it is a 13 hour flight away). Some of the more "conventional" doctors that I approached were either entirely unmoved by my case and never got back to me or so wrapped up in NHS bureacracy that they couldn't help. A lot of the receptionists kept emphasising quite how busy and important their consultants were and how they would never have the time or resources to help a mere mortal like myself...............others told me CFS was all in my mind.
Finally I spoke to Dr Myhill, and within hours I was able via her website to connect to a lot of vital information and help. She was understanding, supportive and optimistic about my case and most importantly it was the first time that anyone actually believed what I was saying or had any insight into the terrible symptoms that I was experiencing. She supported me in getting the specialised testing that I needed in the UK and then designed a recovery plan and helped me to implement it in Singapore by writing to the necessary doctors here, who were willing to follow her guidelines in the absence of any better ideas of their own.
By doing all of the above, Dr Myhill had to overcome considerable logistics problems - she need not have bothered but she did and it entirely changed my world. But it appears that she is approaching her work from the angle of healing patients rather than complying rigidly with some "rule book" in the narrow sense of the word, and the fact that the GMC does not place value on this approach is to me beyond belief.
I noticed that one of the criticisms levelled against Dr Myhill is this "diagnosis by internet" approach. In my case most of the dialogue did indeed have to be undertaken by phone and internet (as it probably does with UK CFS patients too as a proportion of them are bedridden). But I would like to emphasis that at no point was there any guesswork involved. She worked at all times with my GP here and all advice and recommendations were soundly based on actual physical tests done either in Singapore or by sending samples over to the UK. And what is more, all recommendations were backed up by explanatory letters sent both to myself and my GP setting out the proven basis for the treatments. I doubt that you would get that very often from an NHS doctor.
In fact, when considering whether it would be worth moving back to the UK from Singapore, one of my prime concerns is my health and the health of my family. From what I am hearing recently, it makes me terrified to re-enter the NHS system and put myself and my family at the mercy of its vagaries !!
I am deeply grateful to have Dr Myhill as my doctor and am extremely saddened to hear about the unneccessary ordeal to which the GMC is subjecting her. |
| 930 | Anonymous | |
| 931 | Carol Mathison | Dr Sarah Myhill is the only person who keeps me sane with this terrible illness . The National Health Service should be following her lead not persecuting her. I am appalled by the way she is being treated. |
| 932 | kim finch | |
| 933 | Helen Gilbert | |
| 934 | Heather sutton | |
| 935 | Heather sutton | |
| 936 | Katie Miller | |
| 937 | ann legg | One cannot help but wonder what the GMC are for?? Dr Myhill, with her unique capacity for actually healing patients, for looking beyond the prescription pad for reaons for ill health, and her knowledge of human nutrition,should be held up as a role model for other doctors not victimised. |
| 938 | Gerry Rowe | I don't know Dr Myhill personally however I have benefited from the skills of doctors who work in the same area - Len McEwen, Sybil Birtwistle, Damien Downing. I also don't know what she is accused of. If it is of practising in this area in the enlightened manner I associate with those mentioned above she has my full support. I wuuld like to know more. |
| 939 | maureen turner | i have very high regard and respect for dr myhill and her great work . thank goodness for drs like her . we need more. |
| 940 | elizabeth nokes | the GPs and NHS who have not fulfilled their duty of care should be held accountable not Dr Myhill who has a proven track record of sucess with the patients the NHS would probably prefer to undergo a lobotomy |
| 941 | Barbara Watkins | As career to my adult daughter , 20 years and more suffering from ME/CFS - Dr. Myhill has been the sole source of wise and helpful medical support to her. |
| 942 | Paula Gilfedder | I am disgusted beyond words by the lack of money given to M.E. research. If there were more people like Dr. Myhill to help us we wouldn't be suffering the way we are today. Until this awful disease hits certain people or their families we are going to be left in despair. For pity's sake do something to help the researchers to help us. |
| 943 | John Norton | |
| 944 | Edel McKenna | I have CFS and have found Dr Sarah Myhill of great support. We need more doctors like her to treat this terrible illness, |
| 945 | Lena Hedendahl | I have read Dr Sarah Myhill's book and find her theories about a pathological reduction in mithocondrial function in patients with CFS very interesting. I value her theories both as a patient myself with CFS and as General Paractioner and Medical Doctor in Sweden. |
| 946 | jane round | |
| 947 | Anne-Marie Green | I am lucky enough to be a patient of Dr Sarah Myhill, and am recovering after treatment not available on NHS. These actions against an excellent dr have had at least one positive outcome; in that patients with ME are prepared to be named and take a stand. |
| 948 | Helen Deakin | After finally finding Dr Myhill, a Doctor that listens and most importantly understands M.E./CFS , I am disgusted yet not surprised that the GMC cannot (and will not try to) understand Dr Myhill's knowledge and methods.
Dr Myhill is making such a difference to people's lives - we need many more Doctors like her, NOT for her to be feared, hounded and misunderstood. She is absolutely essential to many patients well-being, and more importantly gives them their lives back. This amazing achievement should be learned from. |
| 949 | HELEN EVANS | I am so grateful to Dr Myhill, and her team for all their help and support . CFS is a terrible condition- we need more doctors like her.
I am horrified at the way the GMC have treated her- they simply have no idea about the illness. Quite clearly none of the council members have family members who suffer from this condition! |
| 950 | Sally Ager-Harris | |