| # | Name | Comments |
|---|
| 2451 | Les Moncada | tea tree oil in shampoo and vitaclina cream sold at wall mart seem to help, vitacilina has a sulfate. There is a website DermaTechaRx that seems to help but is costly. Do have any ideas. They say diamatecous earth should be spread any ideas? Thanks |
| 2452 | ROSEZANN ETHERINGTON | OUR FAMILY - OF 4 - HAS SURVIVED THIS DISEASE SINCE AUG 2005. WE HAVE SPENT OVER A 1/4 MILLION DOLLARS. THAT DOES NOT INCLUDE ANY OF THE CLEANING SUPPLIES, SELF TREATMENT PRODUCTS, WATER AND ELECTRIC USED IN THE CONSTANT CLEANING FOR THE PAST YEAR AND A HALF OR THE RENT WE NOW PAY. OUR HOME SITS WITH ALL OF OUR BELONGINGS, KEEPSAKES AND OUR CHILDRENS MOST FAMILIAR THINGS. WE RESIDE IN AN APT, JUST 2 MILES FROM THAT HOME, PAYING MORT. AND RENT. WE HAVE BEEN FORSAKEN BY THE MEDICAL COMMUNITY (WITH THE EXCEPTION OF 2, THAT ARE NOW TOO FAR AWAY AND TOO EXPENSIVE TO SEEK) WE HAVE BEEN IGNORED BY OUR GOVERNMENT. IN CONTACTING WASHINGTON D.C. IN 05, DAYS TO GET THROUGH TO CDC (THERE IN D.C. , NOT ATLANTA , THEY / EVA NACE, ARE / WERE NO HELP AND STILL AREN'T, YOU JUST GET AN AUTO REPLY,NOW) MAKING MY WAY THROUGH TO ANY DEPT. THAT WOULD LISTEN. FINALLY I THOUGHT I HAD SOMEONES ATT. AT/ THROUGH NIAID WITH A KATHY STOVER , TO MAKE A PLEA TO THE DEPT. FOR PUBLIC SERVICE ANNOUCEMENTS. EXPLAINING THEY HAD NO IDEA OF THE NUMBERS THAT THEY ARE DEALING WITH AND THE FALL-OUT FROM THIS i.e. SUICIDE, UN-EMPLOYMENT, MENTAL HEALTH, ETC. IF THEY WOULD JUST POST A P.S.A. LISTING SYMPTOMS AND A # TO CALL THEY MIGHT GET AN IDEA OF THE MAGNITUDE OF PEOPLE AND THEIR SUFFERING. THAT P.S.A. ALONE MIGHT MEAN THE DIFFERENCE OF LIFE OR DEATH, TO SOMEONE DEALING W/ THIS. NOPE....... GOT A REPLY FROM A "CARA" RECOMMENDING THAT I SEE A DERMATOLOGIST....... WOULD THAT BE A DIFFERENT ONE FROM THE ONE I HAD SEEN 6 TIMES? MISS STOVER WAS QUITE UNAWARE OF HER FRWD TO CARA TO "TAKE CARE OF ME" WAS ATTCHED TO CARAS' E-MAIL TO ME. SHAME ON YOU KATHY STOVER FOR SOUNDING SO SINCERE ,ONLY TO WRITE ME OFF AS SOMEONE THAT SEEMED UPSET AND SOMETHING WAS PROBABLY WRONG, BUT........"HERE, YOU TAKE CARE OF THIS ONE, CARA" I HOPE NO ONE EVER KNOWS THE FEAR AND CONFUSION AND DILEMMAS ASSCTED W / THIS RE: YOUR SELF AND MORE IMPORTANTLY YOUR CHILDREN i.e. SHOULD YOU LEAVE THEM IN SCHOOL, WHAT IS HAPPENING TO THEIR DEVELOPEMENT, SHOULD YOU LET THEM PLAY W/ THIS OR PLAY THERE, SHOULD YOU PUT THEIR PETS "DOWN", WHEN DO YOU TELL THE OTHER PARENT OF THE CHILD, YOUR CHILD HAS JUST MET, WHAT OUR HEALTH ISSUES ARE, IF I CONT. TO TAKE THEM TO A DR, AM I GOING TO RISK THE STATE TAKING CONTROL OF MY CHILD BECAUSE THEY / THE DR.s SEE ME AS DELUSIONAL, OR MUINCHAUSENS BY PROXY???????????? ALL THE WHILE YOU'RE EYESIGHT IS DEMINISHING, YOUR STRENGTH IS DEMINISHING, YOUR THOUGHT PROCESSES ARE DEMINISHING, COGNITIVE DECLINE, JOINT , BONE AND MUSCLE ACHES, ETC. AND WHEN YOU DO GET TO LIE DOWN SOMETIME IN THE A.M. NO SLEEP BECAUSE OF THE CONSTANT CRAWLING . HAS THE GOV. BEEN WELL AWARE ALL OF THIS TIME, BUT HAVE TRIED TO FIGURE OUT A WAY FOR INS. CO. TO SAVE MONEY AND THE DRUG CO A WAY TO MAKE MONEY BEFORE YOU BRING THIS TO THE FORE FRONT AND HELP US? SHAME ON ALL OF YOU THAT HAVE REPEATEDLY LISTENED TO OUR SUFFERING AND ALL WITH THE SAME SYMPTOMS . DID IT EVER REGISTER TO ANYONE TO BE A LITTLE MORE CURIOUS AND ASK A FEW MORE QUESTIONS OR COMPARE A FEW MORE NOTES? A PUBLIC SERVICE ANNOUCEMENT IS WELL OVER DUE, TO FIND THE #s OF ALL SUFFERING AND THE FALL OUT THAT IS GOING TO HIT THIS COUNTRY HARD; NOT EVERYONE HAS A COMPUTER TO HELP RESEARCH AND FIND SOME MODE OR PRODUCT OF COMFORT, BUT ALMOST EVERY AMERICAN OWNS A TELEVISION!!!!! THANKS TO THE HANDFUL OF DR.s THAT STILL HAVE A LOVE OF LEARNING, CURIOSITY, AND A WANT TO HELP. |
| 2453 | Trudy Murdock | I have had morgellons for 3 years now. I am trying my best to hang in there for a cure. I am loosing respect for doctors and our government.! We are the richest country in the world and we take care of everyone else. What about us! |
| 2454 | Lesa Morgan | Morgellons is real I have suffered with the dreaded disease for 8 yrs now , been in the nut hut 25 times put on mind altering drugs so they would disappear but they were so real that another person witnessed them pop right out of me before thier very on eyes imagen that with total shock said my GOD there are blood spots appearing all over you like I have never seen and knew right then that something was very not normal but with much persistant talk the docs tried very hard to insist that they were all in my head, they just kept on eating holes in me that I could not even reach were by my on hand and mind BUT I WASNTCRAZY ENOUGH TO RECIEVE HELP FROM THE GOVERNMENT. These docs I think got thier degree out of a cracker jack box and came to believe they were smarter than GOD. Remember this even crazy people get dieases. |
| 2455 | Sibyle F Johnson | |
| 2456 | Anonymous | |
| 2457 | april bentley | i am a family member of someone that has been identifyed as having morgellons hopefully something is done before i and my children become sick as well |
| 2458 | Trudy Murdock | I have suffered for almost 6 years and don't want to live any more. We as a country take care of others, why can't we take care of our own people in our nation. I never thought our government would allow something like this to happen. |
| 2459 | Donna Goodwin | My daughter has suffered with MORGELLONS for 7 years. Only 2 years ago, we found a label for it on the ABC news. There are many more not knowing where to get help. Please take this seriously and expedite the investigation. Thanks ..... D G |
| 2460 | Donna Goodwin | Please make this matter a priority. My daughter has suffered for 7 years with this dehibilitating disease, although we did not have a name to put with it till 2 yrs ago. |
| 2461 | Anonymous | why would a government not want to address this epidemic if there is evidence that it renders people incapable of working or maintaining a functional life? What will happen to this country, or the world for that matter, if someone doesn't step up to the plate? |
| 2462 | Jeff Jones | MY girlfriend has this and it is so sad. I do not have this( Yet ) What can I do to make sure research is being done to find a cure or where it comes from.
This is worse than Bird Flu ... Someone needs to get the ball rolling on this..... |
| 2463 | Sibylle Faye Johnson | Something needs to get done to help the unfortunate patients. Please don't wait any longer. |
| 2464 | ROBERT ETHERINGRTON | WE, MY WIFE AND 2 CHILDREN, WERE STRICKEN WITH THIS DISEASE, IN AUG. 05. OUR HOME SITS VACANT WITH ALL OF OUR BELONGINGS AND KEEPSAKES AND ALL THAT IS/WAS FAMILIAR TO OUR CHILDREN. HAVING HAD THE FUNDS, IN THE BEGINNING, WE WERE ABLE TO KEEP THIS AT A LEVEL OF SOME COMFORT, IF NOT BUT FOR AN HOUR TO AN ACTUAL FULL DAY. AT THE TIME WE HAD NO IDEA THAT WE WOULD BE DEALING WITH THIS AFTER 3 YEARS. FUNDS DIMINISHED, WHILE OWNING A HOME AND RENTING AN APT. OUR CHILDREN ARE OUR GREATEST FEAR; NOT KNOWING WHAT THE FUTURE WILL BRING THEM. HOW MANY PEOPLE ARE HOME SCHOOLING THEIR CHILDREN, BECAUSE OF THIS DISEASE AND HOW MUCH OF THEIR CHILDHOOD, WILL BE LOST? WHEN WILL WE GET ANSWERS, OR AT THE VERY LEAST BE BELIEVED BY DOCTORS FOR SOME SORT OF DIRECTION, IF NOT SOME SORT OF HELP? |
| 2465 | Anonymous | I AM A 10 Y.O. WHEN CAN I LIVE LIKE ONE? WILL SOMEONE PLEASE HELP US? |
| 2466 | Anonymous | I AM A 7 Y.O. WHEN CAN I LIVE LIKE ONE? HOWEVER, I'VE LIVED WITH THIS FOR 3 YEARS, SO I DON'T REALLY KNOW TOO MUCH DIFFERENT FROM HOW I AM SUPPOSED TO LIVE AS TO HOW I HAVE BEEN LIVING. WILL SOMEONE PLEASE HELP US? DOES ANYONE CARE? I DON'T UNDERSTAND WHY I CAN'T SEE AND PLAY WITH MY FAMILIAR THINGS, THAT I LEFT IN MAY 06 AND WHY WERE MY 2 DOGS GIVEN AWAY? WRITTEN BY MOM |
| 2467 | Nicholas Kepner | This is a real disease, I know some one that is suffering from this. The CDC should not ignore this issue any longer as it could possibly turn into an epidemic, since there is little known about it. |
| 2468 | Amiee | |
| 2469 | Callie Johnson | |
| 2470 | Lawrence Wedvik |
| 2471 | angelica mckinnon | |
| 2472 | Trudy Murdock | |
| 2473 | Cassie Ingle | |
| 2474 | amiee | |
| 2475 | Anita Cooley | |
| 2476 | Anonymous | I HAVE HAD IT SINCE 1996. CANT WORK SO CANT PAY TAXES... |
| 2477 | Tammy Motsinger | My mother has morgellons disease and for a while we really thought she was crazy! Finally I found a little information online explaining all of her symtoms, please help with research and remodies- it is horrible!! She gets spots all over and even on her face, it totally controls her life! HELP I want to start a research awareness group in NC? |
| 2478 | Anonymous | |
| 2479 | Anonymous | |
| 2480 | Joseph Hoffman | |
| 2481 | Leesa Bloom | |
| 2482 | Dollie Shepherd | 214-328-5836 |
| 2483 | Dora Wratchford | |
| 2484 | Donna Goodwin | Please....... Somebody pay attention to this urgent cry.. My daughter has suffered with Morgellons for 9 years, 5 of which we had no name. There are still many sufferers out there who are thinking they are the only one with these dreadful symptoms. We need a cure.
Donna Goodwin
Oklahoma City |
| 2485 | Miriam Lewis | It is time to be transparent about this frightening illness and fully disclose the source, treatment and cure for this disease, that you CDC already know much about but are hesitant to disclose. |
| 2486 | Tracy Cornelll |
| 2487 | Janet Pietromonaco | |
| 2488 | Anonymous |
| 2489 | Michele Sullivan | This is a debilitating disease. The lesions are one small aspect of the ilness that becomes systemic as more time goes by without answers. If you can get to the moon I am sure we can solve this if we put our collective knowledge,resources, time technology, science and money behind the research project. It is sad when the only relief I have found is from a home made product out of Germany! Do we have to wait for thousands to die before we act? Why can we not take a proactive stance and solve this emerging epidemic |
| 2490 | Toni Rogers |
| 2491 | Alice |
| 2492 | A. LATIMER | There was no published result from the Kaiser study. Researcg Morgellons Now |
| 2493 | gary strickland | |
| 2494 | Tara Young | |